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Message: <blockquote data-quote="Smallbrit" data-source="post: 2326497" data-attributes="member: 456748">Sorry to pull up an old thread but thought I'd catch up and see how suspected MIDD people were progressing with genetics appointments? [USER=528595]@Bex72[/USER] [USER=470389]@skellysheroes[/USER] [USER=497890]@martl[/USER] I finally, finally after years of trying had a virtual genetics appointment a month ago (with someone in Canada who couldn't make it back to the UK- yay COVID!). And they have referred me to an actual in-person consultation, as it seems reasonable I might be a MIDD person. I had to tell the consultant audiologist about MIDD and watch as he Googled it and looked very sceptical. The diabetic nurse claimed she'd look it up, but seeing as I only see her once a year because I have 'good' control (55 HBA1c on practically keto, I think not...) I don't know if she's done anything. But anyway...I'm now completely deaf in one ear and severely deaf in the other. So am also pushing for a cochlear implant assessment. And having balance and strength issues. I feel like I've turned into my mother with all the symptoms she had. Do we really all become our parents at some point?! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink    ;)" loading="lazy" data-shortname=";)" /></blockquote>

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