1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

6 months trial comming to an end

Discussion in 'Insulin Pump Forum' started by phil169, Apr 30, 2016.

  1. phil169

    phil169 Type 2 · Well-Known Member

    Messages:
    203
    Likes Received:
    172
    Trophy Points:
    83
    hi
    on the 4th of may it will be 6 months on the pump (that's how long the C.C.G said they would trial it for). to see if it worked for me. I would say YES it has but would they agree with me ????. my insulin is now down to 49 units per day pre pump 190 lantus and 360 to 440 units of apidra. my blood sugars are now down to 5-7 and my hb1c is down from 114++ to just 44. so I would say yes it has worked. but Iam now getting a bit afraid that they will say no and stop the pump. and the thought of going back to mdi. is not something iam looking forward to. I see consultant on the 22nd May so I hope he will back me to stay on the pump.
     
    • Winner Winner x 1
    • Hug Hug x 1
  2. iHs

    iHs · Well-Known Member

    Messages:
    4,602
    Likes Received:
    2,320
    Trophy Points:
    158
    If your consultant is pleased with the progress the funding of a pump has given you, then I don't think that a CCG would cease payment to the supplier of it but even if they did, a report would need to be done first. You have obviously done very well but take advice from your consultant and dsn how you should control yr bg as you have gone from one extreme to another. Look after yourself...
     
    • Like Like x 2
  3. Snapsy

    Snapsy Type 1 · Well-Known Member

    Messages:
    2,552
    Likes Received:
    2,738
    Trophy Points:
    198
    I would say - and this is just an opinion, as I don't know how they view these things - but given all the impressive changes to the numbers (which are measurable, tangible evidence), they have all they need to understand that the pump has made huge improvements to your control, and it would be very strange indeed if they wanted to take it off you!

    The pump is surely much less expensive than the complications you are likely to be drastically minimising thanks to the pump.

    Sounds like these last 6 months have been amazing, @phil169 - long may your pumping life continue!

    :)
     
    • Like Like x 2
  4. CarbsRok

    CarbsRok Type 1 · Well-Known Member

    Messages:
    4,696
    Likes Received:
    5,290
    Trophy Points:
    178
    @phil169 your results speak for themselves so stop worrying.
     
    • Like Like x 2
    • Agree Agree x 2
  5. phil169

    phil169 Type 2 · Well-Known Member

    Messages:
    203
    Likes Received:
    172
    Trophy Points:
    83
    thanks all. the support you have all given to me has been fantastic. thanks for that, yes the last 6months have been grate, the pump has given me my life back even with the hypos but I suppose that was due to coming down so fast and no one expected that lol. but even thay are getting better. it's just the thought of having to go back on injections every day.
     
  6. noblehead

    noblehead Type 1 · Guru
    Retired Moderator

    Messages:
    23,618
    Likes Received:
    19,618
    Trophy Points:
    278
    @phil169, those numbers speak for themselves, sure your consultant will be over the moon and will want you to stay on the pump. Good luck anyway.
     
    • Like Like x 2
  7. Minnie45

    Minnie45 Type 1 · Well-Known Member

    Messages:
    157
    Likes Received:
    199
    Trophy Points:
    103
    Phil, I know it's easy to say (although I worry every time too) but try not to worry. I know things re funding are slightly different for you as a Type 2, but given how things have turned round positively and so quickly since you've been on the pump I'd be very surprised/shocked if funding were withdrawn. I really think everything will be ok.
     
    • Like Like x 2
    • Agree Agree x 1
  8. phil169

    phil169 Type 2 · Well-Known Member

    Messages:
    203
    Likes Received:
    172
    Trophy Points:
    83
    @ Minnie 45 thank you for your help and support
     
    • Like Like x 2
  9. Minnie45

    Minnie45 Type 1 · Well-Known Member

    Messages:
    157
    Likes Received:
    199
    Trophy Points:
    103
    One thing though Phil, do you have a dedicated pump nurse/co-ordinator? They're often responsible for securing and renewing funding with the CCG. For example my pump co-ordinator puts through my funding renewal request/report 1 month before it's due, then when she confirms it's renewed I contact the hospital pharmacy team who order more cannulas and reservoirs, it may be worth your contacting your team now to ensure everything runs smoothly re funding in place and ordering more supplies.
     
    • Like Like x 2
  10. Gaz-M

    Gaz-M Type 1 · Well-Known Member

    Messages:
    1,108
    Likes Received:
    1,087
    Trophy Points:
    198
    you will be fine phil169, the numbers will do the talking for you
     
    • Like Like x 2
  11. phil169

    phil169 Type 2 · Well-Known Member

    Messages:
    203
    Likes Received:
    172
    Trophy Points:
    83
    thanks for that Minnie45, thanks Gaz-M I hope so . today is the last day. trial ends to day, sat by phone all day and every time it rang I held my breath, (why is that when you waiting for some one to call every ****** els calls but them lol).
     
  12. iHs

    iHs · Well-Known Member

    Messages:
    4,602
    Likes Received:
    2,320
    Trophy Points:
    158
    At my hospital the funding is done continually with no questions asked.
     
    • Like Like x 2
  13. BeccyB

    BeccyB Type 1 · Well-Known Member

    Messages:
    466
    Likes Received:
    537
    Trophy Points:
    153
    Which hospital is that? A few people might want referring there :)
     
    • Like Like x 2
  14. iHs

    iHs · Well-Known Member

    Messages:
    4,602
    Likes Received:
    2,320
    Trophy Points:
    158
    North West London CCG
     
    • Like Like x 2
  15. phil169

    phil169 Type 2 · Well-Known Member

    Messages:
    203
    Likes Received:
    172
    Trophy Points:
    83
    mmm its a long way for me to get there but that's interesting to know. thanks iHs
     
  16. Minnie45

    Minnie45 Type 1 · Well-Known Member

    Messages:
    157
    Likes Received:
    199
    Trophy Points:
    103
    Can I come to your hospital please ;)
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook