A MUDSLIDE TO TYPE I

sparacino

Newbie
Messages
2
Type of diabetes
Type 2
Dear Readers,
This is my first THREAD and I hope I know what I am doing. I have read much of what people write in forums and blogs and can I only say I sympathise and empathise with much of what I read,
I was diagnosed with Type 2 Diabetes in 2003 and due to severe chronic pancreatitis have been informed that I am now Type1 as suffice to say my pancreas no longer produces any insulin.
As with most diabetics diagnosed in adulthood, I pieced bits od the puzzle that haunted me since childhood: Why were the other children not as thirsty as me?; why was I craving starchy foods like breads and potatoes and pasta?; Why was I always hungry and eating so much without managing to gain weight?
All these gnawing questions fell on deaf ears and when at age 16 I was diagnosed as bi-polar, the answer was simple: it was all in my head!
Living with an often crippling mental illness and diabetes makes for a challenging life. I find it virtually impossible to control my BSL as even with medication can simply not control my emotional state: one condition feeds off the other and suffering epilepsy on top of all the rest makes life not only difficult but at times unbearable.
Humour seems to work wonders for me, but the thought of a hypo leading to a panic attack which can bring on a Grand Mal Seizure is no laughing matter.
I advise all readers that can relate to this to never feel shame or humiliation if and when such things occur especially in public, and that there are professionals who will listen and understand, because sadly - as I have learned - many friends and family members simply can't or won't.
On that note, I wish everyone out there a happy and safe 2018!
 
  • Like
Reactions: Peppergirl

Jo_the_boat

Well-Known Member
Messages
791
Type of diabetes
Type 2
Treatment type
Diet only
Good post.
One word stands out for me, humour.
While in no way playing down your problems, humour is something that has got my wife and I through some pretty dark times.
There's a constant pressure with chronic illness and any relief from that pressure is worth it's weight in gold.
One thing is for definite, although your friends and family might not empathize with you, an awful lot of people on this site will.
Keep chatting if you need to.
Best of luck for 2018.
 

catapillar

Well-Known Member
Messages
3,390
Type of diabetes
Type 1
Treatment type
Insulin
I was diagnosed with Type 2 Diabetes in 2003 and due to severe chronic pancreatitis have been informed that I am now Type1 as suffice to say my pancreas no longer produces any insulin.

Who ever informed you you are type 1 just because you need insulin is wrong. Type 1 and type 2 diabetes are separate conditions. If your type 2 diabetes requires treatment with insulin that doesn't turn it into type 1 diabetes, it carries on being type 2. Presenting type 1 diabetes as something you "mudslide" into due to progression of type 2 diabetes is rather insulting. It isn't. Type 1 diabetes is an autoimmune disease, caused when your immune system attacks the insulin producing beta cells in the pancreas. Type 1 diabetes isn't caused by severe chronic pancreatitis, it's caused by an autoimmune attack.

Type 3c diabetes is caused by physical damage to the pancreas by pancreatitis and there is a sub forum on type 3c you may want to explore - http://www.diabetes.co.uk/forum/category/type-3c-pancreatic-diabetes.73/

Type 1 and type 3c are treated very similarly. But there are important differences that you should be aware of:
  • With type 1 only the beta cells are destroyed by the immune system. With type 3c both alpha and beta cells stop functioning. The job of the alpha cells is to release glucagon in response to a hypo telling your liver to release glucose stores. So no functioning alpha cells means you need to be more cautious about hypos.
  • Many people with 3c are on creon to replace some of the other pancreas hormones/enzymes. This limits the amount of fat you can deal with in your diet, so an advice for low carb high fat diets should be cautiously recieved.
As with most diabetics diagnosed in adulthood, I pieced bits od the puzzle that haunted me since childhood: Why were the other children not as thirsty as me?; why was I craving starchy foods like breads and potatoes and pasta?; Why was I always hungry and eating so much without managing to gain weight?

If you had symptoms of type 1 as a child but we're not diagnosed until adulthood, you'd be dead. Type 1 is sudden onset and fatal if not treated. It doesn't hang around for years and years causing symptoms. So whatever symptoms you think you were having, they weren't caused by type 1.

suffering epilepsy on top of all the rest makes life not only difficult but at times unbearable.

Not managing blood sugar is probably not helping your epilepsy. High blood sugars increases your vulnerability to seizures. Youre less vulnerable to seizures and epilepsy medication works better if you are euglycaemic.
 
  • Like
Reactions: Dodo

Jaylee

Oracle
Retired Moderator
Messages
18,717
Type of diabetes
Type 1
Treatment type
Insulin
Hi @sparacino ,

A warm welcome to the forum.
It's great you're sharing your thoughts with us.

Reading your post, if your bipolar causes sleeping pattern problems like insomnia? When the body is sleep-deprived, the level of ghrelin spikes, while the level of leptin falls, leading to an increase in hunger. The "cravings" for starch foods could have stemmed from this..? Your lucky metabolism maybe what held of any weight gain.?
This could be one thing to consider in the "puzzle"?


I'm not a doctor by the way! :)

..I'm actually a singer in a rock band, so embarrassing situations like hypos in front of a crowd comes with the territory!

Wishing you all the best on your quest... :cool:
 
Last edited:

TheBigNewt

Well-Known Member
Messages
1,167
Type of diabetes
Type 1
Treatment type
Insulin
There's actually a separate forum for diabetes secondary to pancreatic disease as you describe. Perhaps the mods could consider moving your thread to that forum you might get more feedback from people just like yourself. I think your cause of Type 1 is pretty rare actually, very unfortunate as well. My sympathies. Here's the link: Type 3c (Pancreatic) Diabetes