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Diabetes Soapbox - Have Your Say
A pointless rant
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<blockquote data-quote="AloeSvea" data-source="post: 1935610" data-attributes="member: 150927"><p><span style="font-family: 'Arial'">Just thought I would jump in and contribute the findings of the Lund Uni endo folks in Sweden - remember when they came up with new definitions of types of diabetes earlier this year?</span></p><p><span style="font-family: 'Arial'"></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"><a href="https://www.theguardian.com/society/2018/mar/01/five-categories-for-adult-diabetes-not-just-type-1-and-type-2-study-shows" target="_blank">https://www.theguardian.com/society/2018/mar/01/five-categories-for-adult-diabetes-not-just-type-1-and-type-2-study-shows</a></span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"></span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"><a href="https://www.thelancet.com/journals/landia/article/PIIS2213-8587(18)30051-2/fulltext" target="_blank">https://www.thelancet.com/journals/landia/article/PIIS2213-8587(18)30051-2/fulltext</a></span></span></p><p><span style="font-family: 'Arial'"></span></p><p><span style="font-family: 'Arial'">I think them wonderful, and use their one for me myself (Severe Insulin Resistant Diabetes, or SIRD). </span></p><p><span style="font-family: 'Arial'"></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'">The key to their definitions is they say they are genetically distinct. A very important point. </span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"></span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'">And - of course - different conditions with a different cause/etiology require different treatments.</span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"></span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'">And, they have also found a couple of the 'complications' to be hugely associated with the different types. For mine, for instance, it is kidney disease.</span></span></p><p><span style="font-family: 'Arial'"></span></p><p><span style="font-family: 'Arial'">According to this labeling system [USER=474433]@Fenn[/USER], you have SIDD, if I have understood your health situation correctly. I think it makes a lot of sense to talk about our types of diabetes this way, rather than the plain old 'type 1' or 'type 2', or at least - to further define it. I force my two main medical professionals to use the term that applies to me, as I think it keeps them more 'in line' with me on where I am going with my own choices in forms of treatment. I have found it exceedingly practical for that purpose alone, let alone keeps my own understanding of my poor old body to the forefront of my poor old brain. (I am deeply respectful for how good a really good definition or label can be in the scheme of things.)</span></p><p><span style="font-family: 'Arial'"></span></p><p><span style="font-family: 'Arial'">The two insulin deficient diabetes labels are:</span></p><p><span style="font-family: 'Arial'"></span></p><p><span style="font-family: 'Arial'">(they say)</span></p><p><span style="font-family: 'Arial'"></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"><strong>SIDD </strong>Severe Insulin Deficient Diabetes (insulin resistance has culminated to a worn-out pancreas and severe beta cell dysfunction) - 17% of those with diabetes have SIDD</span></span></p><p><span style="font-family: 'Arial'"></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"><strong>SAID </strong>Severe Auto-Immune Diabetes, includes LADA - 6% of those with diabetes have SAID (figure closer to 6.5%, actually 6.4%)</span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"></span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'">The other two definitions not already mentioned above are MOD and MARD which form about 60% of those with diabetes.</span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'"></span></span></p><p><span style="font-family: 'Arial'"><span style="font-family: 'Arial'">I hope this may be of some help in this discussion?</span></span></p><p><span style="font-family: 'Arial'"></span></p></blockquote><p></p>
[QUOTE="AloeSvea, post: 1935610, member: 150927"] [FONT=Arial]Just thought I would jump in and contribute the findings of the Lund Uni endo folks in Sweden - remember when they came up with new definitions of types of diabetes earlier this year? [FONT=Arial][URL]https://www.theguardian.com/society/2018/mar/01/five-categories-for-adult-diabetes-not-just-type-1-and-type-2-study-shows[/URL] [URL]https://www.thelancet.com/journals/landia/article/PIIS2213-8587(18)30051-2/fulltext[/URL][/FONT] I think them wonderful, and use their one for me myself (Severe Insulin Resistant Diabetes, or SIRD). [FONT=Arial]The key to their definitions is they say they are genetically distinct. A very important point. And - of course - different conditions with a different cause/etiology require different treatments. And, they have also found a couple of the 'complications' to be hugely associated with the different types. For mine, for instance, it is kidney disease.[/FONT] According to this labeling system [USER=474433]@Fenn[/USER], you have SIDD, if I have understood your health situation correctly. I think it makes a lot of sense to talk about our types of diabetes this way, rather than the plain old 'type 1' or 'type 2', or at least - to further define it. I force my two main medical professionals to use the term that applies to me, as I think it keeps them more 'in line' with me on where I am going with my own choices in forms of treatment. I have found it exceedingly practical for that purpose alone, let alone keeps my own understanding of my poor old body to the forefront of my poor old brain. (I am deeply respectful for how good a really good definition or label can be in the scheme of things.) The two insulin deficient diabetes labels are: (they say) [FONT=Arial][B]SIDD [/B]Severe Insulin Deficient Diabetes (insulin resistance has culminated to a worn-out pancreas and severe beta cell dysfunction) - 17% of those with diabetes have SIDD[/FONT] [FONT=Arial][B]SAID [/B]Severe Auto-Immune Diabetes, includes LADA - 6% of those with diabetes have SAID (figure closer to 6.5%, actually 6.4%) The other two definitions not already mentioned above are MOD and MARD which form about 60% of those with diabetes. I hope this may be of some help in this discussion?[/FONT] [/FONT] [/QUOTE]
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