No she doesn't have diabetes. Want to use as an adrenal pump.Hi @fredt ? Does your daughter also have diabetes? Or do you mean using an insulin pump as an 'adrenal pump'?
No she doesn't have diabetes. Want to use as an adrenal pump.
Thank you Liam.Hello @fredt and Welcome to the Forum.
Then I imagine you'd have to buy one. I'm not sure whether the pump companies would sell you one for use for that. Also, you'd need an expert to set up the correct doses of medication. I'm not sure how the amounts would coincide with the insulin units for which the pumps are set up.
Did the specialist suggest that that would be a possibility? You buying a pump and them setting it up?
Have you tried an Addisons forum to see if any other people are using this method in the UK?
Pumps aren't cheap and then there's an ongoing cost with the cannulas and tubing too, so a bit of an outlay.
Azure: Lost your last post! Read it first, then lost it! From memory: I'm aware it will cost: my GP will help set it up. I realise there may be 3 months or so before we get it balanced. Yes. in the USA they have insulin pumps which are use for hydrocortisone and the insurance pays for them. Not here though! It seems you can get a sex change on the NHS for free, but not life saving pumps! go figure!No she doesn't have diabetes. Want to use as an adrenal pump.
Azure: Lost your last post! Read it first, then lost it! From memory: I'm aware it will cost: my GP will help set it up. I realise there may be 3 months or so before we get it balanced. Yes. in the USA they have insulin pumps which are use for hydrocortisone and the insurance pays for them. Not here though! It seems you can get a sex change on the NHS for free, but not life saving pumps! go figure!
thank's for the info:I don't know how good it is, but here's one
http://www.addisons.org.uk/forum/
Pump companies in the UK are Animas, Medtronic and AccuChek to start you off. You could contact them and ask about a private purchase.
I hope you get this sorted for you daughter and that it improves her life
just got casisus email from another sorce. has replied, take the info to GP for a letter! thank's guy's & gal's for all your help. Fred.You might also want to try http://www.cahisus.co.uk Dr Peter Hindmarsh is a leading light in this area.
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?