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Advice for Visually impaired Type 1

AndyWol

Newbie
Messages
3
Type of diabetes
Other
Treatment type
Insulin
Hi there,
Hope you can help, I am posting this on behalf of my partner who has been blind for the majority of her life, but has now been recently diagnosed with type 1 diabetes.
My partner lives in Birmingham independently and I live in Coventry, due to work and other commitments I am not able to test her levels regularly with her freestyle Optium Neo that she has been given by her hospital.
We were also given an old talking test meter that I had to purchase test strips for as they claimed they could not get them, this is very difficult to use independently as you still are required to get a blood sample on a test strip, which as you can imagine is very difficult when you have no vision.
Being recently diagnosed (3 months) we are still learning to balance levels, but as we are having difficulty getting regular readings this makes it more difficult to manage and get a clear picture of what is happening with her levels, currently she is experiencing a lot of high and low levels to the extreme that she recently had a hypo at work and past out and they had to call an ambulance.
We have spoken to her consultant and other diabetes health care professionals to try and source a suitable device, but they have not been able to provide good a solution.
Having looked at scanning type monitors (CGM) they look to be the perfect solution to allow a visually impaired person to easily monitor their levels, please could you advise if any of them talk as this would be ideal solution.

To make matter worse my partner has recently been to visit a dietitian and they want her to do carb counting which not only involves reading food labels but taking regular tests which is not possible. They also wanted to sell her a book for £10 that had a lot of pictures and information which is useless unless it is available in braille.

We would be very great full of any help or advice people can give as the NHS seems to be really struggling to provide support for visually impaired and it is starting to get really frustrating for my partner, as she does not normally let her disabillity stand in the way of her indenpendance and so does not like to rely on other people.

Many thanks
 
Hi Andy,

I'm afraid I can't offer any advice, but I'm shocked that the consultant and clinic staff didn't have a solution! Surely this can't be the first time they have encountered the problem!

If/when you find a solution, would you come back and tell us?

It would be very helpful to have this information recorded on the forum.

I hope the RNIB have some suggestions.
 
Hi Andy

There is a voice meter made by CareSens N Voice meter by spirit healthcare for visually impaired, it talks you through the test, gives the result and also gives any errors or problems with the test.. I'm partially sighted so can cope with meters and CGM with a magnifying screen but to my knowledge such devices don't read out the results. I am aware of the real problems your partner faces as I was totally blind for a year and just couldn't manage my diabetes independently although that was a few years back and technology has improved since then. My ophthalmology clinic run a low vision clinic and that has helped me with certain things.

Has the diabetes clinic your partner attends tried to assist her and suggest any ways for her to manage carb counting?. Are there any apps specifically designed for carb counting with sight problems? I hope the RNIB and clinic can help you and your partner find a way to manage. All the best.
 
Hello, I assist a visually impaired man with shopping. This was done through Social services and he has a social worker. Can your partner, or someone on her behalf with her consent, phone Social services to get advice, support and some much needed help. Social services then can get in touch with other organisations and in some cases, hospitals and GP's with a letter or some form of consent from patient, but would need to be assessed first. The gentleman I assist is not diabetic, but he lives alone.
I hope your partner can get the right support she needs, as it does appear it really is needed. I'm assuming she is in contact with RNIB already ?

Good luck and all the best

RRB
 
Last edited by a moderator:
Hi I can't help on this specific issue but I also live in Coventry so if you ever want to meet up and have someone else to talk diabetes to drop me a message
 
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