Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Children, Teens, Young Adults & Parents
Parents
Advice please
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="SockFiddler" data-source="post: 1496099" data-attributes="member: 412001"><p>Anxiety and dyspraxia - I'm wondering, has your son had an OT assessment for other sensory processing issues? From what you're describing, I wonder if he's not experiencing a little sensory overload which is then magnifying his anxiety about intrusion (the needle thing) and control (the pump thing).</p><p></p><p>Have you tried calming things right down for about 15 minutes before he's due to test, maybe a cool, shady, quiet room to give him a chance to self-regulate a bit and let his senses realign. Aside from anything else, he'll probably just really enjoy the extra time with you, but it might also help him to have a bit of extra time and space (modern life allowing) to process what's happening and get it all straight in his mind.</p><p></p><p>Also, though they were designed for kids with autism, Social Stories are fab for explaining complicated things to kids using their own voices and can be comforting when it comes to things that make them anxious. More info here:</p><p></p><p><a href="http://www.child-autism-parent-cafe.com/how-to-write-a-social-story.html" target="_blank">http://www.child-autism-parent-cafe.com/how-to-write-a-social-story.html</a></p><p></p><p>An example of a story you might write for your son could be:</p><p></p><p>I have diabetes. </p><p>To manage my diabetes, I must measure the sugar level in my blood. </p><p>To measure my level, I must use a machine. My dad (?) will help me to do that.</p><p>The machine will use a tiny needle to prick my finger. This hurts, but not for very long.</p><p>I do not like needle, but knowing my level will help my diabetes.</p><p>If I put the machine in the right place and close my eyes before pressing the button, it won't be so frightening.</p><p></p><p>(Seriously generalised!)</p><p></p><p>Also, don't rely on statutory services for mental health; CAMHS is notoriously dysfunctional and slow to respond due to an overwhelming caseload and not enough funding. I wonder whether either SCOPE or MenCap might be able to offer your son some help much faster:</p><p></p><p><a href="https://www.scope.org.uk/support/disabled-people/young-disabled" target="_blank">https://www.scope.org.uk/support/disabled-people/young-disabled</a></p><p><a href="https://www.mencap.org.uk/" target="_blank">https://www.mencap.org.uk/</a> (I suggest Mencap aware that you haven't specifically mentioned a learning disability, but they're worth contacting anyway as they're all about mental health support and might know of another org who can help)</p><p></p><p>Luck and love - and perseverance!</p><p></p><p>Sock x</p></blockquote><p></p>
[QUOTE="SockFiddler, post: 1496099, member: 412001"] Anxiety and dyspraxia - I'm wondering, has your son had an OT assessment for other sensory processing issues? From what you're describing, I wonder if he's not experiencing a little sensory overload which is then magnifying his anxiety about intrusion (the needle thing) and control (the pump thing). Have you tried calming things right down for about 15 minutes before he's due to test, maybe a cool, shady, quiet room to give him a chance to self-regulate a bit and let his senses realign. Aside from anything else, he'll probably just really enjoy the extra time with you, but it might also help him to have a bit of extra time and space (modern life allowing) to process what's happening and get it all straight in his mind. Also, though they were designed for kids with autism, Social Stories are fab for explaining complicated things to kids using their own voices and can be comforting when it comes to things that make them anxious. More info here: [URL]http://www.child-autism-parent-cafe.com/how-to-write-a-social-story.html[/URL] An example of a story you might write for your son could be: I have diabetes. To manage my diabetes, I must measure the sugar level in my blood. To measure my level, I must use a machine. My dad (?) will help me to do that. The machine will use a tiny needle to prick my finger. This hurts, but not for very long. I do not like needle, but knowing my level will help my diabetes. If I put the machine in the right place and close my eyes before pressing the button, it won't be so frightening. (Seriously generalised!) Also, don't rely on statutory services for mental health; CAMHS is notoriously dysfunctional and slow to respond due to an overwhelming caseload and not enough funding. I wonder whether either SCOPE or MenCap might be able to offer your son some help much faster: [URL]https://www.scope.org.uk/support/disabled-people/young-disabled[/URL] [URL]https://www.mencap.org.uk/[/URL] (I suggest Mencap aware that you haven't specifically mentioned a learning disability, but they're worth contacting anyway as they're all about mental health support and might know of another org who can help) Luck and love - and perseverance! Sock x [/QUOTE]
Verification
Post Reply
Home
Forums
Children, Teens, Young Adults & Parents
Parents
Advice please
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…