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Advice

Andrew1690

Newbie
Messages
1
Hi all

After being type 1 diabetic for 18 years I have finally decided that it’s time to join forum and seek the help of those who know best and live with the condition

My control has never been great with hab1c level around 10 in that time despite never having missed an appointment - I would say these readings are down to control and lack of knowledge as opposed to excess

Last June my first real sign of complication was a progression to severe non prolifatove rstinopophy and macular edema - my eye doctor was very direct and as well as putting me on a course of eye injections stressed the importance of lowering hab1c - this was a wake up call and within months was down to 8.5 - doctors have seemed happy with this and have noted that it’s a good first step and won’t be perfect straight away

Luckily as well I have responded well to the injections so at moment with regular check ups things are stabl

I have no other noticeable complications at moment but recently have been extremely worried in last week I have had a chronic cold so sugars been high and unstable but in general keen to stabilise sugars through night which I believe to be key to getting hab1c down

I am aware it’s time to change and am booked Onto carb course later in year I have had a browse Through posts and notice people who have lived with the condition a lot longer say they have had previous years of poor control but lived 50 years with the condition and still relatively healthy
I guess my first question is anyone else on here similar to me and made wife reaching changes after 15-20 years to stop the onset of complications ?
 
Hi @Andrew1690 ,

Welcome to the forum.

I've worn the "teeshirt" with the Macula edema. Though no issues with retinopathy.
Oddly, for me it was detected after pulling my socks up with my own A1c?
So i would agree a steady acclimatized adjustment in diabetes management for the positive is better than a "short sharp shock."

Take your time, feel free to ask questions.
 
I can't say I have my my diabetic inspiration is always my aunt. She has been diabetic over sixty years now. As she grew up they didn't didn't have the tech or even insulins to cause the control we can achieve now. She has always adapted to new things though. Despite numerous complications and diabetes causing her retirement from work she went on to fight to better herself and now has the best control of her life and spends her days happily with her dog and granddaughter. She always tells me that you have to want it, work at it, and believe in yourself even if doctors say 'no it doesn't work that way'. And always stick with the basics. Test your blood. Count your carbs.. Take all your injections.
 
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