Hello; I am type 1 for 39 yrs and live in US. I am allergic to all insulins since starting on pork back in 1983. Then I was switched to Humulin and felt very ill on it. Switched back to pork and remained on it for 25 years despite not feeling well from it. Tried to switch to Novolin products twice and did not feel well so went back to the pork Lilly insulin. Travelled to many hospitals here in US including Johns Hopkins and skin testing but nothing gave me definitive answer.
Have been using Apidra now for many years and Medtronic pump but still don't feel well and have many side effects. Diagnosed with mast cell activation syndrome which causes me problems in tolerating alot of medications, not just insulins. It has been a nightmare of a journey with no clear cut answers. Even tried European pork and beef insulins and they were a nightmare for me right away; could not tolerate them at all. Just wondering if anyone else suffers from something similar. Used to be in touch with an organization in England but to my knowledge ; I dont think that they exist at this point. Please respond if you have anything similar. Would like to know others' stories. There is much more detail but I will not go into it at this point. Thank you
Have been using Apidra now for many years and Medtronic pump but still don't feel well and have many side effects. Diagnosed with mast cell activation syndrome which causes me problems in tolerating alot of medications, not just insulins. It has been a nightmare of a journey with no clear cut answers. Even tried European pork and beef insulins and they were a nightmare for me right away; could not tolerate them at all. Just wondering if anyone else suffers from something similar. Used to be in touch with an organization in England but to my knowledge ; I dont think that they exist at this point. Please respond if you have anything similar. Would like to know others' stories. There is much more detail but I will not go into it at this point. Thank you
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