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am i weird

D

dawnw

Member
Messages
6
hi i was diagnoised type 2 in 2009 been feeling tired getting viruses for couple of years test came back clear,then a mark on my shin which id had since teenager broke down into ulsa the hospital said diabetic with skin condition in diabetic woman.I took that ok healthy eating etc,1 month later im in a+e on fluid and insulin drips,also thought may lose leg as rotting.3 weeks later sent home on insulin ok .what followed hypos 4/5 times aday 5 stone weight gain doc decided exanatide /metformin great except vomiting .lost 9.5 stone then year ago not strong enough back in hos leg rotting,eye sight blurred keytone etc.3 weeks later on combination of exanatide,lantus,nova-rapid and metformin 6 injections a day killer down 2 4 injections now but had muscle damage from last attack and sickness from exanatide getting me down so been cheating and using more insulin but then putting on weight .they now say i must have been type 1 from begging but thought 2 as i was 38 am i the only weird 1
 
Dawn, I don't know what to say - except that you are certainly a survivor!

Did they give you a monitor to test your bg levels when you were first diagnosed Type 2? I'll bet they didn't! If you'd been able to test yourself on a regular basis you might have got them to realise there was something wrong much earlier. But if you weren't getting the info/help from your HCPs - not much you could do by yourself.

Let's hope it's 'onwards and upwards' from here

Good luck, and let us know how you go on.

Viv 8)
 
Re: doctors told blood moniter not needed 4 type 2

correct i was told no need to moniter sugar levels as type 2 as u have blood test every 3 months,good job i brought one as the day i did it measured 21 i rang my doctor and was told i must have read it wrong take a extra metformin. next day went to work drank 8 litres of water measured my sugar when got home 32 rang nhs helpline,told get to hospital now.My doc has now changed his policy he now suggests you get a monitor with type 2 though he says it not norm to go from type 2 to type 1 in 4 weeks from diagnosis. At least i may have helped someone else
 
Hi dawn!

You poor thing! You are not weird - the NHS simply let you down! I'm afraid it's all too common a story on this forum. I was also misdiagnosed Type 2 and only narrowly avoided your awful experience - although I was very ill. I ended up buying a monitor and got told off by the nurse for not following her 'Type 2 don't need to test' mantra - I tested and was 26 followed by 22!

Your doctor still doesn't seem to understand - you haven't gone from Type 2 to Type 1 in a few weeks - you were never Type 2 in the first place - he just misdiagnosed you through his ignorance of diabetes and made you very ill as a consequence!

I am starting to despair at the poor diagnoses of adults with Type 1 - misdiagnosis as Type 2 seems to be very common - even when it's staring them in the face. I am trying to think if there's anything we,as a community, can do to raise awareness of this with the medical profession. Anyone got any thoughts?

Best of luck, Dawn, and I hope you're feeling better soon!

Smidge
 
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