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Any amputees out there

T

Trev 48

Member
Messages
22
Location
Kent
Type of diabetes
Treatment type
Insulin
Dislikes
people who ignore me because of my amputation
HI My Name is Trev and last May had a below knee amputation, is there anybody else had the same experience and how do you deal with life.
I was so Lucky after my op, I was out of hospital after 18 days and back too work after 5 weeks, I felt like some kind of superman but now I feel like I'm going backwards, I have more pain more painkillers and incredibly tired, but the most important thing is I am a positive person and won't feel sorry for myself.
Please share with me your experiences.
Trev
 
hi Trev

Painkillers can make you tired but so can diabetes. What are your sugar levels like and what food do you like to eat?

A few dietary changes may give you more energy.

Cara
 
carraway said:
hi Trev

Painkillers can make you tired but so can diabetes. What are your sugar levels like and what food do you like to eat?

A few dietary changes may give you more energy.

Cara
Click to expand...

Hi My sugar levels vary between 5-8 but I do eat too much bread as I don't have breakfast but have lots of sandwiches for lunch.
I do eat fruit but only like apples and bananas. I think it could be the painkillers that are the main problem as I take 9 per day.
I'm like a walking tube of smarties
Trev
 
Hello Trev, you have been though the mill your stress levels must be very high, what type of diabetic are you and have you looked at lots of posts.
From your post it looks like you test your bg levels, but do you test before and 2 hours after your meals or fruit portions , this may be giving you spikes you are not aware of.
your pain levels may be increasing due to nerve growth in the amputation area, this needs to be checked by your orthopaedic team, i would think,
.Kevin in Kevins post in terminal and scared, may be able to advice you in pain relieve. he is a good chap.
good luck to you I hope it starts to get better from now on.
have a look at daisy`s posts if you haven't already.
 
To be honest with you it's not advice on pain relief it;s lack of energy I need help with.
I'm very lucky because I don't get stressed I take things as they come.
I think I'm still lucky because there are many people worse off than me
Trev
 
Pain can make you feel tired, but have you considered other causes of your tiredness such as
  1. High blood sugar
  2. Vitamin D deficiency (during your recovery you may not have been eating properly or going outside to get Vitamin D from sunlight)
  3. Vitamin B12 deficiency
  4. Anaemia
  5. Underactive thyroid
I would suggest going back to your GP and ask for some blood tests.
 
Hi Trev
Sorry to hear of your amputation. I think everyone is right. Sounds like you need a slight change of diet. Have you seen a dietician and had full bloods and then based your diet on these findings?
Sorry to ask but ...how long have you been a diabetic and what was your control like before the amputation?
Do you do any excercise?
 
Omnipod said:
Hi Trev
Sorry to hear of your amputation. I think everyone is right. Sounds like you need a slight change of diet. Have you seen a dietician and had full bloods and then based your diet on these findings?
Sorry to ask but ...how long have you been a diabetic and what was your control like before the amputation?
Do you do any excercise?
Click to expand...
Been a diabetic for 20 years.
Exercise is painful as I have a tumor in leg and trapped nerve in right shouder.
I sound like a right hypochondriac but I'm not really just unlucky I think
T
 
Hi trev

I'm a below knee amputee and I have low vit d and chronic anaemia. Maybe get these checked as I'm happy too but it's a hard ride from going to active to everything seeming to be so much harder and takes more energy. Prosthetics are heavy.
 
Bubbatara said:
Hi trev

I'm a below knee amputee and I have low vit d and chronic anaemia. Maybe get these checked as I'm happy too but it's a hard ride from going to active to everything seeming to be so much harder and takes more energy. Prosthetics are heavy.
Click to expand...

Was it a long time ago you had your amputation and did you find that people ignored you? It's nice to find someone else in a similar position to me. I had my amputation on 28 May 2012. I also have polyneuropathy and am waiting for a scan on my stump to see if I need further surgery following the discovery of a neuroma. Once they have scanned it, they will decide whether to just remove the neuroma or re-section another 2-3 inches off my leg.
 
I had mine in 2008/9 on the 5th dec and was just home before Christmas - after a 4-5 month struggle of trying to keep my leg but it was beyond help. I conceded defeat finally ( you know when your in a loosing battle)
I have dealt with staring , being ignored in my wheelchair and verbal abuse whilst being out. It's made me agoraphobic and I suffer anxiety now so am housebound. Now I'm happy and whilst I don't see people a lot I've been sick since I was 3 , worked my whole life and then amputation flipped my world upside down. I can't change things but I'm well aware there are worse people dealing with far more.

I haven't had problems with my stump luckily I did compression and was left to fully heal as I have neuropathy so they were wary of my healing when in rehab plus I asked for quick discharge post amputation as trauma wards are bug ridden hot pans. So I was happier having the nurse at home then be an inpatient.

I hope they can save that for you and plse feel free to keep in contact as I don't speak or know of any amputees. I felt quite distanced in rehab as I was the youngest and no offence many of the old people took an instant dislike to me for assuming of my age I must be some hoodlum who was in a crash or self harmed myself. So yes I've dealt with all manner of ignorance even from fellow survivors.



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Bubbatara said:
I had mine in 2008/9 on the 5th dec and was just home before Christmas - after a 4-5 month struggle of trying to keep my leg but it was beyond help. I conceded defeat finally ( you know when your in a loosing battle)
I have dealt with staring , being ignored in my wheelchair and verbal abuse whilst being out. It's made me agoraphobic and I suffer anxiety now so am housebound. Now I'm happy and whilst I don't see people a lot I've been sick since I was 3 , worked my whole life and then amputation flipped my world upside down. I can't change things but I'm well aware there are worse people dealing with far more.

I haven't had problems with my stump luckily I did compression and was left to fully heal as I have neuropathy so they were wary of my healing when in rehab plus I asked for quick discharge post amputation as trauma wards are bug ridden hot pans. So I was happier having the nurse at home then be an inpatient.

I hope they can save that for you and plse feel free to keep in contact as I don't speak or know of any amputees. I felt quite distanced in rehab as I was the youngest and no offence many of the old people took an instant dislike to me for assuming of my age I must be some hoodlum who was in a crash or self harmed myself. So yes I've dealt with all manner of ignorance even from fellow survivors.



Sent from the Diabetes Forum App
Click to expand...
If you would like to chat I can give you my email address or mobile number, I know it is good to talk about things and even better if they know what you have to deal with
Take care
Trev
 
Trev 48 said:
If you would like to chat I can give you my email address or mobile number, I know it is good to talk about things and even better if they know what you have to deal with
Take care
Trev
Click to expand...
Hi Bubbatara

I hope I didn't offend you by offering you my mobile number, my wife thought it would be a good idea
hope you are ok
Trev
 
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