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Diabetes Discussion
Type 3c (Pancreatic) Diabetes
Any Type 3C people out there?
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<blockquote data-quote="Ledzeptt" data-source="post: 2402596" data-attributes="member: 160898"><p>Hi Rolandxkey</p><p></p><p>I’m sorry to hear your problems, but glad you’re getting on top of them. </p><p></p><p>One thing I use that may help, is a “Bluetooth bridge” for the Libre: I use a Bubble device from <a href="https://www.bubblan.org" target="_blank"> https://www.bubblan.org</a>, others include <a href="https://miaomiao.cool" target="_blank"> https://miaomiao.cool</a>. This sends the Libre sensor readings to my phone every 5 minutes, so I can always see what’s happening (it can also be connected to a smart watch): in practice I don’t check these readings that often: I rely on multiple alarms, as follows: </p><p></p><p>I can set two low alarms and two high alarms: the custom upper limit of the low alarm is 6.7 which may suit you. However, I find it beneficial to utilise the Bubble’s additional alarms which warn of rapid changes in BG ie a sudden drop/sudden rise so that I’m not caught off guard: I have these set for a fast change of 0.5 mmol/L in 5 minutes (can be as little as 0.3, but I found this was triggered too often).</p><p></p><p>Plus, I can calibrate the sensor readings with a finger prick test to improve accuracy. </p><p></p><p>Fabulous and very helpful to me, but not on prescription… I had to buy it (currently €150 about £130, shipped from Sweden, but I don’t know if there are now Brexit customs duties on top). </p><p></p><p>There are details threads if you search Bubble or MiaoMiao and there’s a good Facebook support group for “Bubblan.org - Libre CGM”.</p></blockquote><p></p>
[QUOTE="Ledzeptt, post: 2402596, member: 160898"] Hi Rolandxkey I’m sorry to hear your problems, but glad you’re getting on top of them. One thing I use that may help, is a “Bluetooth bridge” for the Libre: I use a Bubble device from [URL] https://www.bubblan.org[/URL], others include [URL] https://miaomiao.cool[/URL]. This sends the Libre sensor readings to my phone every 5 minutes, so I can always see what’s happening (it can also be connected to a smart watch): in practice I don’t check these readings that often: I rely on multiple alarms, as follows: I can set two low alarms and two high alarms: the custom upper limit of the low alarm is 6.7 which may suit you. However, I find it beneficial to utilise the Bubble’s additional alarms which warn of rapid changes in BG ie a sudden drop/sudden rise so that I’m not caught off guard: I have these set for a fast change of 0.5 mmol/L in 5 minutes (can be as little as 0.3, but I found this was triggered too often). Plus, I can calibrate the sensor readings with a finger prick test to improve accuracy. Fabulous and very helpful to me, but not on prescription… I had to buy it (currently €150 about £130, shipped from Sweden, but I don’t know if there are now Brexit customs duties on top). There are details threads if you search Bubble or MiaoMiao and there’s a good Facebook support group for “Bubblan.org - Libre CGM”. [/QUOTE]
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