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Anybody else on here suffer with necrobiosis lipoidica diabe
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<blockquote data-quote="Terry K" data-source="post: 365299" data-attributes="member: 28789"><p><strong>Re: Anybody else on here suffer with necrobiosis lipoidica d</strong></p><p></p><p>afc79</p><p></p><p>I was always advised that it was unusual for a male to suffer from this condition, and other than the link with a childhood wasp sting, there was never any mention of a fungal infection. It was some years before mine was diagnosed as NLD by a skin specialist (Dr Dowling) who brought all his assistants in to see it on a young lad, when normally only seen on girls. </p><p></p><p>Mine is clearly less active than yours and only painful when I actually hit or scratch them; I have never experienced them actually opening or ever been advised to wear protective bandages. It was once suggested that I had them injected with steroids, to see if that would make any difference, but that was many years ago and in view of the anticipated pain involved I declined the offer - they were looking to experiment rather than offer a permanent solution. </p><p></p><p>I have a number of quite old BDA magazine articles on the subject that advise:</p><p></p><p>"NLD is neither contagious or infectious", </p><p>"they can slowly increase in size and may eventually fade although they never quite disappear", </p><p>"that it effects up to 1% of all people with diabetes", </p><p>"necrobiosis doesn't seem to be linked to blood glucose control", </p><p>"the marks are caused by a disturbance to some of the cells of the skin associated with blood flow through the fine blood vessels (capillaries)"</p><p>"the patches are usually painless unless they are knocked and become ulcerated"</p><p></p><p>which suggest your fungal infection diagnosos might not be the case; that we cannot blame ourselves as I originally did for poor blood sugar control; that they may fade which some of mine now are.</p><p></p><p>The difference between yours and mine would appear to be that none of mine have yet to form ulcers when otherwise injured, for which you have my full sympathy as I can well imagine how difficult that can be! </p><p></p><p>This leaves me only to apologise for my glib statement on how I won't let any complications impact upon my life, as I had no idea when making that statement how detrimental an impact the condition was having on you.</p><p></p><p>Have you considered camouflage make-up for which you could probably get medical advice and/or assistance?</p><p></p><p>Regards - Terry</p></blockquote><p></p>
[QUOTE="Terry K, post: 365299, member: 28789"] [b]Re: Anybody else on here suffer with necrobiosis lipoidica d[/b] afc79 I was always advised that it was unusual for a male to suffer from this condition, and other than the link with a childhood wasp sting, there was never any mention of a fungal infection. It was some years before mine was diagnosed as NLD by a skin specialist (Dr Dowling) who brought all his assistants in to see it on a young lad, when normally only seen on girls. Mine is clearly less active than yours and only painful when I actually hit or scratch them; I have never experienced them actually opening or ever been advised to wear protective bandages. It was once suggested that I had them injected with steroids, to see if that would make any difference, but that was many years ago and in view of the anticipated pain involved I declined the offer - they were looking to experiment rather than offer a permanent solution. I have a number of quite old BDA magazine articles on the subject that advise: "NLD is neither contagious or infectious", "they can slowly increase in size and may eventually fade although they never quite disappear", "that it effects up to 1% of all people with diabetes", "necrobiosis doesn't seem to be linked to blood glucose control", "the marks are caused by a disturbance to some of the cells of the skin associated with blood flow through the fine blood vessels (capillaries)" "the patches are usually painless unless they are knocked and become ulcerated" which suggest your fungal infection diagnosos might not be the case; that we cannot blame ourselves as I originally did for poor blood sugar control; that they may fade which some of mine now are. The difference between yours and mine would appear to be that none of mine have yet to form ulcers when otherwise injured, for which you have my full sympathy as I can well imagine how difficult that can be! This leaves me only to apologise for my glib statement on how I won't let any complications impact upon my life, as I had no idea when making that statement how detrimental an impact the condition was having on you. Have you considered camouflage make-up for which you could probably get medical advice and/or assistance? Regards - Terry [/QUOTE]
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