I take 2 x 250mg Mag Citrate (NOW products) daily and I am still on fire and have been for six years - blood sugars good or bad. I think I am a lost cause.You don't think it could be something in the LCHF diet? Like magnesium deficiency. It can cause burning hands, and is likely if you eat a lot of dairy and drink caffeinated beverages on top of low carb. Might be worth trying supplements for a few weeks to see if it makes any difference.
Interesting. Mine don't usually keep my from sleeping, but they hurt when I wake up in the morning. They hurt the worst after walking a lot.
I have a very similar pattern to you diagnosed last April with peripheral neuropathy at diagnosis, used Gliclazide (sulfonylurea) to reduce BG quickly then reduced drug in steps and stopped in August. I still get foot heat/cold/tingling but not as often. I understand that because the capillaries supplying blood to nerves are damaged by the high blood glucose that not much repair takes place so I may have to live with it. It doesn't stop me running or walking or swimming and I only notice when I am sitting still or occasionally at night in bed. It is only on one side and in my foot now when it was in my fingers, lips, face, scalp on same side at time of diagnosis so I have had to learn to put up with it. I do still get a dribbly eye and runny nose on same side but that seems to be much less too. So maybe you will improve as you keep going with diet and if you do some energetic activity too. Just don't let it get in the way of life which I'm sure you don't!I was diagnosed last April. Quickly lowered my levels to normal range with LCHF. Have managed to stay there. Started getting a burning type of pain in feet about 6 weeks AFTER diagnosis (as numbers lowered). Hands aren't as bad, but feel warm at times. I know it takes time, but I'm hoping some here have some success stories, tips, etc. I know Jim Lahey went through it and came out on the other side.
Thank you for this link, it is very interesting and not well enough known among primary care doctors [GPs] I shall inform my 3 nieces currently junior doctors! If I can't be an expert at least they can for the greater good...!Treatment-Induced Neuropathy of Diabetes typically occurs within 8 weeks of a sudden, rapid improvement of diabetic control. It has been found to improve after several weeks or months of good diabetic control.
https://www.neurologytimes.com/diabetes/treatment-induced-neuropathy-diabetes-underrecognized-rise
That is really fascinating and potentially explains a little bit of postural hypotension I get sometimes at work or when looking up at things on the wall after standing up - it might not be the reason but could be! It also gives a bit of hope on the nerve repair! Onwards and upwards. Thank you!!!I can recall a number of members posting to say that various neuropathy type pains have improved while getting their blood glucose under control. Sometimes the pain gets worse before it gets better which may be a sign that the nerves are regrowing.
Off the top of my head, I can remember @Jim Lahey experienced great improvements.
You may also find this video interesting.
The key component seems to be getting blood glucose under tight control and keeping it there so that the damage can heal.
I also suggest you do a forum search for threads on neuropathy and r-ALA since this is a fairly frequent discussion and there are lots of people giving their personal perspectives and experiences on those threads.
Edited to add: my personal experience is that if I let my blood glucose swing too high and then back again for even as short a time as a week (e.g. on holiday) I start to experience stabbing pains in my feet. Once I get back to my normal routine and my bgs return to more steady readings, with a much smaller variation, the pains fade and disappear. I find it incredibly motivating to keep to low steady blood glucose, since the alternative is experiencing someone stick a red hot needle up into the sole of my foot at random intervals throughout the day.
My feet burned off and on for about three months as my BS numbers fell. A year on and they are fine.I was diagnosed last April. Quickly lowered my levels to normal range with LCHF. Have managed to stay there. Started getting a burning type of pain in feet about 6 weeks AFTER diagnosis (as numbers lowered). Hands aren't as bad, but feel warm at times. I know it takes time, but I'm hoping some here have some success stories, tips, etc. I know Jim Lahey went through it and came out on the other side.
Not entirely but know it relates to adding sugar of some kind knowingly or not! Any meal I suspect or after a dark choc digestives I drink at least two large glasses of water and that usually helps lessen the impact! Then back onto correct intake fir another few days xI was diagnosed last April. Quickly lowered my levels to normal range with LCHF. Have managed to stay there. Started getting a burning type of pain in feet about 6 weeks AFTER diagnosis (as numbers lowered). Hands aren't as bad, but feel warm at times. I know it takes time, but I'm hoping some here have some success stories, tips, etc. I know Jim Lahey went through it and came out on the other side.
My feet burned off and on for about three months as my BS numbers fell. A year on and they are fine.
It took about two years of eating less than 20 g of carbs a day to stop my neuropathy in my feet.
Sorry for the delay in replying. I don't take supplements, but I do strictly control my carb intake. I'm 65 and still referee rugby. I exercise moderately every day for at least half an hour and (in normal times) referee twice a week. If I do a lot of refereeing in a day my feet do start to burn. It goes off if I give them a brisk massage. Other than that, I have no problems with my feet at all (but they could be prettier)Did you take any supplements? Exercise?
Sorry for the delay in replying. I don't take supplements, but I do strictly control my carb intake. I'm 65 and still referee rugby. I exercise moderately every day for at least half an hour and (in normal times) referee twice a week. If I do a lot of refereeing in a day my feet do start to burn. It goes off if I give them a brisk massage. Other than that, I have no problems with my feet at all (but they could be prettier)
Thank you Aby - just the sort of helpful information I have been waiting for.I was starting to get this, tingling in my feet, a bit sore when i woke up, loss of feeling in one of my feet and searched online. Found Thiamine research and started taking this about a month ago. I feel my feet are much better, less pins and needles and more feeling all over. I take 600g of thiamine a day and it really helps.
Listing the research i found:
http://www.hormonesmatter.com/diabetes-thiamine-treatment-opportunity/
https://pubmed.ncbi.nlm.nih.gov/18220605/
https://onlinelibrary.wiley.com/doi/full/10.1111/j.1742-1241.2011.02680.x#:~:text=Studies have shown altered erythrocyte,studies (14-16)
Forgive the follow up to mine of a few minutes ago. Have read through your kind references and found that Thiamine x 300mg x daily is a HIGH dose. You say you take 600mg x daily - can you comment abount this please - I see that you appear to be of slight stature in your pic - so wonder about bodyweight and your dose - thank you in anticipation?I was starting to get this, tingling in my feet, a bit sore when i woke up, loss of feeling in one of my feet and searched online. Found Thiamine research and started taking this about a month ago. I feel my feet are much better, less pins and needles and more feeling all over. I take 600g of thiamine a day and it really helps.
Listing the research i found:
http://www.hormonesmatter.com/diabetes-thiamine-treatment-opportunity/
https://pubmed.ncbi.nlm.nih.gov/18220605/
https://onlinelibrary.wiley.com/doi/full/10.1111/j.1742-1241.2011.02680.x#:~:text=Studies have shown altered erythrocyte,studies (14-16)
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