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Message: <blockquote data-quote="RobertJ" data-source="post: 2563944" data-attributes="member: 351599">I've had type 1 nearly twenty years and have become very engaged with things in recent months, more engaged than any time previously. I feel like the general message from my clinic was that an HbA1c of 50-53 was really good, but then when you look it up on here or Diabetes UK it says it should be 48 or lower. I've never been in the 40s but I am aiming to get there as soon as I can. I recently met up for coffee with a woman who has had Type 1 almost forty years. She has good control, no complications and is 59 years old. She said she's been told it's fine for the time in target on the Freestyle Libre to be 60% (hers is much higher). Well I'm sorry but that's irresponsible on the part of whatever doctor or nurse said it, because being between 3.9 and 10mmol 60% of the time is not going to be enough to save someone from complications. My HbA1c has always been 50-something. I think it's got as high as 57, maybe even 59, and never officially lower than 53. I used to think this was really good but I now feel like my clinic has misled me. I thought I was one of the well-behaved diabetics with good control but in the last few months I've really had a lot of doubt about that. I was reading about the former Tottenham player Gary Mabutt who has lost all feeling in his feet and had a situation where a rat ate part of his foot on holiday. He was in his late 50s at the time, so not even that old. Surely someone like him would have had "good control" over his life? I worry what I've been told is good control isn't going to be good enough. The idea of losing nerve feelings is so terrifying, it makes me want to never do anything fun again and just become an out and out health freak.</blockquote>

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