Hi, I'm new here and my first post is a long post I'm afraid but I'd really appreciate any advice/help/opinions please!
My daughter is 2 years and 8 months. She has had issues with reflux and with what we think is milk and is currently being intolerance tested privately after our useless GP dismissed our concerns despite very real symptoms and issues with her. Only doing 1 RAST (allergy rather than intolerance) test in the 1.5 years we've been pushing to get to the bottom of that issue.
We are currently getting her tested privately for intolerance and also Ceaolic's Disease.
Apart from that she seemed perfectly ok until approx. 4 weeks ago. She suddenly started drinking a lot - 70-90ozs per day and wetting through her night-time nappy. She always was a soaker but it is now at the point where we put her to bedg at 6pm, change her at 10pm and by morning, 6am, she's soaking again.
We also noted she was waking up each night, sometimes 2 or 3 times, crying out and her hands were jittery and she appeared not to be quite orientated with her surroundings. Also asking for drink each time too.
She has also got a nappy-type rash that she had a problem with on and off since she was about 1.5 years old (connected to her intolerance issue) but back then it always cleared up after a dose of Sudocreme overnight but this time it's been ongoing. Like the skin isn't broken, just very red like nappy rash but also there are a couple of spots under the skin in that area that just won't shift whilst the redness varies from every other day or so - never going away completely.
She also has a very pale complexion and dark almost mauve rings around her eyes, she is not tired though at all - infact she's dropped her afternoon nap.
We had her weighed on the request of her GP (regarding the intolerance issue) and she has dropped slightly on the centile chart which she was right up the top end of it until then. The HV who had no idea about her intolerance stuff alone said it wasn't a concerning issue but coupled with these new symptoms, I am starting to wonder if there is a connection.
And lastly, we've noticed a couple of times that she will stare into space, with no reaction and then suddenly just drop off into a nap of sorts. This has only, so far, been noted in the car travelling so we are unsure if she was just zoning out because of the motion and the warmth and suchlike.
We've noticed she is also very temperamental these days although of course that could just be the age she is, terrible 2's and all that!
As my husband is Type 2 and my grandmother had Type 1, of course diabetes was our first guess. But I tested her a few times and am not convinced by the results, they do not indicate diabetes to me - I'm actually leaning more on the hypoglycaemia diagnosis actually but I thought I'd seek the advice from you people.
For your information, the various results have been:
Fasting of around 7 hours, 4.9 mmol/L
Fasting of around 8 hours, 4.1 mmol/L
Fasting of around 7 hours, 5.2 mmol/L
Fasting of around 6 hours, 5.0 mmol/L
Before evening meal, 7.1 mmol/L which went down to 6.0 mmol/L after only milk and a bit of yoghurt for 'meal' and then down to 5.1 mmol/L 3 hours later
After approx. 1 hour after her lunch, 6.1 mmol/L
After 90 minutes of having her lunch (seperate day to above measurement), 6.3 mmol/L
One night she was jittery and crying out and wouldn't settle, I didn't get the meter but gave her some milk and her BS was 5.4, 15 minutes after that. She hadn't had anything for 4.5 hours or so before that event.
As you can see, nothing at all indicitive of diabetes on that front, I hear that there a significant amount of people who test normal on the fasting but not on the OGTT? Is that true?
I don't want to home test her any further since it's not showing anything worrying or obvious but she has classic symptoms without any blood work signs.
Knowing how much we've struggled to get help with my daughter's health already, I am reserved about wanting to go back with these new concerns. Don't get me wrong, that's not to say I won't or I'd ever let her suffer for fear of being labelled a neurotic parent but yes, I wanted some advice and opinions first please!
My daughter is 2 years and 8 months. She has had issues with reflux and with what we think is milk and is currently being intolerance tested privately after our useless GP dismissed our concerns despite very real symptoms and issues with her. Only doing 1 RAST (allergy rather than intolerance) test in the 1.5 years we've been pushing to get to the bottom of that issue.
We are currently getting her tested privately for intolerance and also Ceaolic's Disease.
Apart from that she seemed perfectly ok until approx. 4 weeks ago. She suddenly started drinking a lot - 70-90ozs per day and wetting through her night-time nappy. She always was a soaker but it is now at the point where we put her to bedg at 6pm, change her at 10pm and by morning, 6am, she's soaking again.
We also noted she was waking up each night, sometimes 2 or 3 times, crying out and her hands were jittery and she appeared not to be quite orientated with her surroundings. Also asking for drink each time too.
She has also got a nappy-type rash that she had a problem with on and off since she was about 1.5 years old (connected to her intolerance issue) but back then it always cleared up after a dose of Sudocreme overnight but this time it's been ongoing. Like the skin isn't broken, just very red like nappy rash but also there are a couple of spots under the skin in that area that just won't shift whilst the redness varies from every other day or so - never going away completely.
She also has a very pale complexion and dark almost mauve rings around her eyes, she is not tired though at all - infact she's dropped her afternoon nap.
We had her weighed on the request of her GP (regarding the intolerance issue) and she has dropped slightly on the centile chart which she was right up the top end of it until then. The HV who had no idea about her intolerance stuff alone said it wasn't a concerning issue but coupled with these new symptoms, I am starting to wonder if there is a connection.
And lastly, we've noticed a couple of times that she will stare into space, with no reaction and then suddenly just drop off into a nap of sorts. This has only, so far, been noted in the car travelling so we are unsure if she was just zoning out because of the motion and the warmth and suchlike.
We've noticed she is also very temperamental these days although of course that could just be the age she is, terrible 2's and all that!
As my husband is Type 2 and my grandmother had Type 1, of course diabetes was our first guess. But I tested her a few times and am not convinced by the results, they do not indicate diabetes to me - I'm actually leaning more on the hypoglycaemia diagnosis actually but I thought I'd seek the advice from you people.
For your information, the various results have been:
Fasting of around 7 hours, 4.9 mmol/L
Fasting of around 8 hours, 4.1 mmol/L
Fasting of around 7 hours, 5.2 mmol/L
Fasting of around 6 hours, 5.0 mmol/L
Before evening meal, 7.1 mmol/L which went down to 6.0 mmol/L after only milk and a bit of yoghurt for 'meal' and then down to 5.1 mmol/L 3 hours later
After approx. 1 hour after her lunch, 6.1 mmol/L
After 90 minutes of having her lunch (seperate day to above measurement), 6.3 mmol/L
One night she was jittery and crying out and wouldn't settle, I didn't get the meter but gave her some milk and her BS was 5.4, 15 minutes after that. She hadn't had anything for 4.5 hours or so before that event.
As you can see, nothing at all indicitive of diabetes on that front, I hear that there a significant amount of people who test normal on the fasting but not on the OGTT? Is that true?
I don't want to home test her any further since it's not showing anything worrying or obvious but she has classic symptoms without any blood work signs.
Knowing how much we've struggled to get help with my daughter's health already, I am reserved about wanting to go back with these new concerns. Don't get me wrong, that's not to say I won't or I'd ever let her suffer for fear of being labelled a neurotic parent but yes, I wanted some advice and opinions first please!