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Message: <blockquote data-quote="JanieMc" data-source="post: 339798" data-attributes="member: 52138"><p>It's no wonder you're at your wits end. You have the sympathy of every reader here I'm sure. I have no advice for you, only little random bits of info. I've been diabetic since 1975. In those days you couldn't take your glucose reading quickly. Insulin was also horribly slow. During my childhood, because of lack of balance, I was also threatened with being taken into care. My mum challenged the hospitals specialist diabetic knowledge and they backed down. You have the power to do this too. You can demand that they give you training to find your daughters carbohydrate to insulin ratio - it's different for everyone. Without this there is no realistic chance of achieving good control. Also I can tell you as a senior teacher of 23 years in a high school, SENCOs have the most ridiculously limited knowledge of diabetic care imaginable. They are in touch with the diabetic care nurse yes and therefore links to the authorities but universally, the school care plans are woefully outdated and again could be easily challenged. they are exactly the same as the one put in place by my own school as a teenager. New diabetic care  follows the DAFNE rules. If the authorities start on you go for their throats- challenge their own knowledge. Find out the DAFNE principles on line and show that they ( the sch authorities) are lacking. That's one thing you CAN do. As far as a pump is concerned, the doc is right in some ways that the lack of glucose balance is usually a qualifier. However poor funding for them means that generally they are only given to those who really try to keep themselves balanced but have some reason for not being able to do this just by injecting. I've got a pump but only because of problems with my basal insulin. I hope I'm wrong but I think you're unlikely to qualify for one until your daughter shows some responsibility for her own life. Finally, your daughter WILL suffer in later life. Complications will follow. Because of poor control in the 70's I have some circulatory issues, including retinopathy. However, since the DAFNE training ( mine through my care team in b'ham) I have literally halted the damage and even displayed signs of regeneration. I'm unaffected by complications now, on an every day basis, so I've been very lucky. There are many who have had amputations after this time. So, my point here is - your daughter needs to grow out of her teenage rebelliousness and stop dumping on her poor mother. No one can do that for her. She needs to accept her condition and stop fighting it . All the attention is great, but it brings physical and emotional consequences on her and you that she will regret. In the mean time, be more forgiving of yourself. You're stretched too thinly here. You cannot fix your daughter neither can the authorities. She needs more education about her diabetes and you need the authorities off your back. Remember, all is not lost- this is just a terrible time and there is also much physical regeneration that can take place  if she does do damage. I wish you and your kids the best and hope you don't feel too alone x</p></blockquote><p></p>

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