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Type 1 Diabetes
Au secours! I'm frustrated to the max!
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<blockquote data-quote="mentat" data-source="post: 1094802" data-attributes="member: 86670"><p>Hi te kaihau,</p><p></p><p></p><p>I feel your pain! I know this story from first-hand experience.</p><p></p><p>Good on you for taking such a pro-active role.</p><p></p><p>Unfortunately, everyone's body is different. Some people are very sensitive to exercise, some to caffeine, some to stress. Some people have very unstable reactions to exercise, which can either shoot them up or down depending on who-knows-which internal cascade of hormones. Humalog lasts 3 hours in some people, 5 in others.</p><p></p><p>What I'm getting at is: lose the "follow best practices" mentality and adopt the "what works for my body" mentality. Oh, I know how tough it is to find what works for your body! So I'll give you some ideas.</p><p></p><p>The most likely reason why eating meals at inconsistent times would cause unstable sugars is that your basal (long acting) levels are inappropriate. Many people have lower basal needs during the day than they do at night. Switching from Lantus to Levemir could help; because Levemir lasts ~12 hours you take it twice a day and thus can control your nighttime and daytime basal levels. Alternatively, an insulin pump allows even finer basal control, and can make it much easier to adapt to exercise.</p><p></p><p>Caffeine can also have significant effects on your blood sugar. Can you handle cutting it out for a week or two?</p><p></p><p>Eating a low-carb diet can make diabetes management a LOT easier. I did it at one point; my insulin needs dropped over 60% and with smaller dosages, errors are smaller.</p><p></p><p>I never did figure out why my sugars were so variable, but getting a CGM was life-changing for me. It meant I could go back to a more palatable diet and head off sugar problems much earlier. I pay out of pocket for it because it just makes life so much better.</p><p></p><p>I was in a distance relationship, as well as teaching and studying, for the first few years of my diagnosis; sometimes I wonder to what extent the travel and the stress made my sugars haywire, the rules always changing. Your sugars could be affected by really hard to measure things like whether you're putting in a lot of hard work or if everything's just coming naturally on a particular day.</p><p></p><p>If you are often getting the impression there is no "correct" bolus for what you are eating, read about <em>Sugar surfing</em>.</p><p></p><p>One condition that often causes weird day-to-day sugar variability is <em>gastroparesis</em> (delayed stomach emptying). Hopefully you don't have it, but if you do, you'll want to get diagnosed and get as much support from your doctors as possible.</p><p></p><p>Remember that the human body is a very complex system, and it may take more than a few days before it falls into a pattern after you change something. This is a massive bummer when trying to figure out what works and what doesn't, but it's important to know.</p><p></p><p>I have been using intra-muscular injections for a year now as a faster-acting method of insulin delivery. I DON'T advise anyone do this. But it works for me.</p><p></p><p>If you have any questions or want to chat, feel free to PM me.</p></blockquote><p></p>
[QUOTE="mentat, post: 1094802, member: 86670"] Hi te kaihau, I feel your pain! I know this story from first-hand experience. Good on you for taking such a pro-active role. Unfortunately, everyone's body is different. Some people are very sensitive to exercise, some to caffeine, some to stress. Some people have very unstable reactions to exercise, which can either shoot them up or down depending on who-knows-which internal cascade of hormones. Humalog lasts 3 hours in some people, 5 in others. What I'm getting at is: lose the "follow best practices" mentality and adopt the "what works for my body" mentality. Oh, I know how tough it is to find what works for your body! So I'll give you some ideas. The most likely reason why eating meals at inconsistent times would cause unstable sugars is that your basal (long acting) levels are inappropriate. Many people have lower basal needs during the day than they do at night. Switching from Lantus to Levemir could help; because Levemir lasts ~12 hours you take it twice a day and thus can control your nighttime and daytime basal levels. Alternatively, an insulin pump allows even finer basal control, and can make it much easier to adapt to exercise. Caffeine can also have significant effects on your blood sugar. Can you handle cutting it out for a week or two? Eating a low-carb diet can make diabetes management a LOT easier. I did it at one point; my insulin needs dropped over 60% and with smaller dosages, errors are smaller. I never did figure out why my sugars were so variable, but getting a CGM was life-changing for me. It meant I could go back to a more palatable diet and head off sugar problems much earlier. I pay out of pocket for it because it just makes life so much better. I was in a distance relationship, as well as teaching and studying, for the first few years of my diagnosis; sometimes I wonder to what extent the travel and the stress made my sugars haywire, the rules always changing. Your sugars could be affected by really hard to measure things like whether you're putting in a lot of hard work or if everything's just coming naturally on a particular day. If you are often getting the impression there is no "correct" bolus for what you are eating, read about [I]Sugar surfing[/I]. One condition that often causes weird day-to-day sugar variability is [I]gastroparesis[/I] (delayed stomach emptying). Hopefully you don't have it, but if you do, you'll want to get diagnosed and get as much support from your doctors as possible. Remember that the human body is a very complex system, and it may take more than a few days before it falls into a pattern after you change something. This is a massive bummer when trying to figure out what works and what doesn't, but it's important to know. I have been using intra-muscular injections for a year now as a faster-acting method of insulin delivery. I DON'T advise anyone do this. But it works for me. If you have any questions or want to chat, feel free to PM me. [/QUOTE]
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Au secours! I'm frustrated to the max!
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