autonomic neuropathy - anyone got it?

[goji]

Hi

Just wondering if anyone has autonomic neuropathy? If so what are your symptoms and how did you know you have it and what tests were done? And also if you do have it what kind of meds do you take and has anything improved?

Thanks
Goji

 

[hanadr]

I don't have it, but there's a chapter on it in Bernstein

 

[ChocFish]

Hi goji, I used to suffer gastroparesis, symptoms were nausea, vomiting, not digesting food, sweating, days of diarrhoea, then days being constipated, stomach pains, I also had neuropathy in my legs up to my knees and drop foot, inability to walk properly, I used a wheelchair, frequent falls and stumbles, numbness in both hands, fainting spells, esp when getting out of bed or getting up from a chair.

I had various tests, including blood tests, x-rays, cognitive function tests, ultra sound scans and EEC.

Treatment was painkiller (in those days it was Distalgesic), tranquillizer and anti-depressant, blood pressure medication, oral diabetes meds and frequent telling off for not losing weight, advised to eat starchy carbs with every meal.

And then things changed......

I am not suffering any neuropathy symptoms now, I am fit and healthy and very active - you can read my story in Success Stories.

I hope you are ok and dont have neuropathy and that you were just curious when you posted your question.

All the best

Karen

 

[Trinkwasser]

Hi

Just wondering if anyone has autonomic neuropathy? If so what are your symptoms and how did you know you have it and what tests were done? And also if you do have it what kind of meds do you take and has anything improved?

Thanks
Goji

Almost certainly, some of my symptoms put down to "neurosis" "hypochondria" "depression" and "side effects of antidepressants" have proved to be autonomic neuropathy.

I have been doing this

http://www.diabetic-talk.org/dpn.htm

in addition to close BG control and some of the symptoms have resolved, though it took much longer than the peripheral stuff.

I still have acid reflux which is mostly under control with famotidine and the occasional rennie.

I don't have gastroparesis as such but my guts will lock up occasionally, further down from the stomach. An alternative explanation I was offered was adhesions from a previous operation.

The main one was that my heart was locked into a range of 60 - 80 bpm for a long time and exertion would cause it to beat harder but not speed up. Now at long last it has started to respond properly again.

I still have a certain amount of ED and also often can't tell if my bladder needs emptying unless I'm stood up. I also used to have poor temperature control, would start to shiver going from hot to cold or sweat going from cold to hot, but the thermostat lag seems now greatly improved, I respond much more immediately to environmental changes.

 

[hanadr]

Another success for tight BG control then!