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Diabetes Discussion
Newly Diagnosed
Awaiting results??? Type 1 or 2?
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<blockquote data-quote="TashT1" data-source="post: 2289845" data-attributes="member: 526953"><p>I am going through exactly the same thing. Diagnosed 4 weeks ago sent to hospital by docs - BG 25, ketones 3, Hba1c 97 (11%) - told almost certainly it is Type 1, given a freestyle libra on prescription, 28u of Lantus daily, 10u of Novarapid with each meal & told to await antibody tests. </p><p></p><p>Having originally been told my antibody results were confusing I then got a call to say they were negative & on that basis I am Type 2, it was like being diagnosed all over again, overwhelming. </p><p></p><p>Well it just doesn’t sit right with me so I put my research head on and found this:</p><p></p><p>1. I don’t know if they did a c-peptide test & if they did it must have been random non-fasting - I find out later today if/ how they tested for this. </p><p></p><p>2. 40% of Type 1’s get misdiagnosed as Type 2 especially if you are over 30</p><p></p><p>3. 30% of Type 1’s are antibody negative or develop antibodies 6-12 months later</p><p></p><p>4. Several studies suggest that anyone over 30 & requiring insulin should be treated as Type 1 until proven otherwise, a high BMI, age & a lack of antibodies is not automatic proof of Type 2.</p><p></p><p>5. There is growing evidence that coronavirus (even mild cases) is leading to diabetes diagnosis & lead researchers investigating this do not know if this results in Type 1, Type 2 or a new classification. </p><p></p><p>I’m just at the start of this journey but the one thing I do know is to follow my instincts and push for the right diagnosis. I had to learn this the hard way through another autoimmune diagnosis. </p><p></p><p>Make a list of questions for the next time you speak to your DN and ask for a copy & full explanation of your results, don’t just accept positive/ negative, good/ bad. Without this information you can’t double check the advice you are receiving. </p><p></p><p>Good luck</p></blockquote><p></p>
[QUOTE="TashT1, post: 2289845, member: 526953"] I am going through exactly the same thing. Diagnosed 4 weeks ago sent to hospital by docs - BG 25, ketones 3, Hba1c 97 (11%) - told almost certainly it is Type 1, given a freestyle libra on prescription, 28u of Lantus daily, 10u of Novarapid with each meal & told to await antibody tests. Having originally been told my antibody results were confusing I then got a call to say they were negative & on that basis I am Type 2, it was like being diagnosed all over again, overwhelming. Well it just doesn’t sit right with me so I put my research head on and found this: 1. I don’t know if they did a c-peptide test & if they did it must have been random non-fasting - I find out later today if/ how they tested for this. 2. 40% of Type 1’s get misdiagnosed as Type 2 especially if you are over 30 3. 30% of Type 1’s are antibody negative or develop antibodies 6-12 months later 4. Several studies suggest that anyone over 30 & requiring insulin should be treated as Type 1 until proven otherwise, a high BMI, age & a lack of antibodies is not automatic proof of Type 2. 5. There is growing evidence that coronavirus (even mild cases) is leading to diabetes diagnosis & lead researchers investigating this do not know if this results in Type 1, Type 2 or a new classification. I’m just at the start of this journey but the one thing I do know is to follow my instincts and push for the right diagnosis. I had to learn this the hard way through another autoimmune diagnosis. Make a list of questions for the next time you speak to your DN and ask for a copy & full explanation of your results, don’t just accept positive/ negative, good/ bad. Without this information you can’t double check the advice you are receiving. Good luck [/QUOTE]
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