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Been Refused Testing Strips

Discussion in 'Blood Glucose Monitoring' started by Davies24, Jul 26, 2012.

  1. Geri

    Geri Type 1 · Well-Known Member

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    I am shocked to hear you've been refused testing strips!!!!!
    I cannot survive without them, and Im sure all Type 1s would agree.
    I was once refused by a GP who assumed that I had Type 2 and said I didn't really need them!!!!! I was horrified and changed my doctor at our local surgery. The new GP was furious that he had made the mistake, especially as he had my notes in front of him at the time and it was noted how sensitive I am to insulin.

    I hope you get this sorted out soon, mistakes are made at surgeries, we are all human, but you need these test strips as a type 1 so that you can keep well. :!:
     
  2. petrichor

    petrichor · Member

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    Hear hear! How dare you drive and put others at risk without even checking your sugar! Especially when your hypo awareness is so bad, 0.8 before it's really bad...
    I suspect your cognitive function is "really bad" long before you feel hypo.
     
  3. ))Denise((

    ))Denise(( Type 2 · Well-Known Member

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    As I got a free meter from Accu-Chek, I seem to be on their email mailing list. On an email I received yesterday there was an article about this. Obviously from a commercial point of view, they don't want strips restricted or have you changed to a different meter. The article was about what you can do https://www.accu-chek.co.uk/gb/myaccuch ... hoice.html

    There is also a leaflet, but you have to be logged into their site to view it.
     
  4. mhoggarth

    mhoggarth · Active Member

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    I had this problem when i changed practice. When i was first diagnosed i got a pot of 50 test strips, and i was back at the chemists every 10 days or so to get some more, so the doctor increased the number to 150. Great!!!!

    However at my new practice my doctor, without speaking to me, lowered it to 50 again. After making an appointment and arguing with him for 20 minutes, he grumpily change the number back to 150.

    With being diagnosed in September, i still test regularly, and was very angry that a doctor was being so unhelpful when my previous doctor and DSN were so great.
     
  5. hanadr

    hanadr · Expert

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    That's ridiculous.
    Even I as a very stable T2 can't use fewer than 50 per month. What kind of insulin regime are you on?
    If it's MDI, you should test before injecting EACH time. One pump user i know tests 10 times per day. 50 equates to 1.67 tests per day. It's definitely not enough to be safe, especially if you drive.
    Check out DUK careline[ number on their website]. they can some times help with this kind of thing
    Hana
     
  6. BeccaJaneStClair

    BeccaJaneStClair · Well-Known Member

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    Lincolnshire here. I'm a T2 on diet control only and was told I don't need to test....and since I really can't afford to buy strips each month, I don't test.....and I'm sure it'd be better if I did. Oh well.

    But you've got my curious about the HB1Ac "rules" as I had mine done in June and the pre-conception clinic wants me to get it done again before I see them in September.....uh-oh. Maybe I had better ring the pre-conception clinic to double check.....
     
  7. Ausra

    Ausra · Well-Known Member

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    50 strips a month...less then 2 a day! that should be enough for waking up time and bedtime..it might sound like a joke to some people but that is really enough for a diabetic who already has a very good control of blood sugars. But if you are new you need to have a lot of strips for experimenting and learning. Dafne says diabetic needs to test 4-5 times a day, plus before you drive or while you drive long distance or exercise. You should be more strict with that person who prescribes you the strips. Let him know why you need it and what for..he might as well have no clue why you need them for if he gives you only 50 a month!!
     
  8. sallymac65

    sallymac65 Type 1 · Well-Known Member

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    HI, I had the same problem with my GP, his response probably like yours was "well you only need to test once a day", err no - more like 6 to 8, but generally what GP's know about diabetes let alone the fact there is a difference between type 1 and type 2, you could put on the back of a postage stamp!! A family friend who was a doctor once told me this and I have never forgotten it! What I did and dont know if you can is to ask your DSN to write a letter to your doctor explaining why you need the strips. Its all a question of money usually and they dont want to waste it, but as we all know, test strips are a must for anyone with diabetes. Best of luck, I hope you have success.
     
  9. Riesenburg

    Riesenburg · Well-Known Member

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    Hi JoCo,

    This made me shudder, I used to be on mixtard too perfect control was brilliant until they stopped producing it :( Ok, now your hypo situation I would take very seriously. By the sounds of it you have hypoglycemic unawareness (which I suffer from too, apparently if you are type 1 for long enough you get it). At levels 2.2, not only are you in serious hypo but your brain is at risk of serious damage, let's not even discuss 0.8s, not only that but your body will react by mass releasing a whole load of hormones and neurotransmitters (as a panic/survival response) which will make things even messier. Won't bore you with the science but there is ample evidence to show that at serious hypo levels we do suffer from brain damage. Talk to your endocrinologist about it, please.

    As for strips I find 50 per month totally outrageous, dam I use that in one week! when driving when exercising when having a slightly different meal you will be checking more often to balance things out expecting patients to do this on 50 strips per month is ridiculous. You need to complain to your practice manager, I cannot see how they expect us all to regulate something as naturally unstable as sugar levels without the ability to check them as and when needed.

    I run through 50 or more strips a week now yet have managed to keep my HBa1Cs in between 4.1 and 6.8 (highest ever in 31 yrs). So checking often and adapting does do the trick!

    Frankie
     
  10. Geri

    Geri Type 1 · Well-Known Member

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    Test strips for me are as important as insulin - Im on a carb controlled exchange diet (type 1 for 42 years) and my blood sugars dramatically increase or decrease according to many other factors other than what I eat and general activity! including - stress, times of the month, other hormone levels, sleeplessness, illness etc etc etc. I am lucky that I havnt been refused test strips yet, but I also remember the days described by jopar, the lancets that would slash your finger for blood and before that - the Clinitest kit that would detect sugar in urine by turning to a specific colour. This was often inaccurate due to time of weeing! You could be hypo and yet the test could show 2% of sugar!
    I have to admit that Test Strips are , for me and Im sure others, an essential part of my well being and I would make a huge fuss at the doctors if I was ever refused them. :twisted:
     
  11. Lemonade

    Lemonade · Newbie

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    I'm type 1 - a student and I've had so much trouble getting my medication! I was told 4 tests a day was more than enough (which considering I exercise a lot because I DO care about my health) is nowhere near enough! I usually test about 6 times a day but maybe 8 or 9 if I'm going low and exercising. I've been given the same story with needles. I 2 two separate lantus injections (morning and evening) so I guess not including corrections, I probably inject about 6 times a day too (though in reality I think it's a bit more). I was wondering, can I re-use needles? I've always been told NO YOU'LL DIE but I'm getting really dirty looks when I try to order more than about 2 boxes a month and I have so much trouble getting what I need anyway it's easier to re-use.
    I'd also like to add that I am so glad I'm not the only one who's had trouble! Since I hit 18 it feels like no one cares about my health at all apart from me, and that's irrelevant because no matter how hard I try I can't juggle sugars, student life and exercise.
     
  12. noblehead

    noblehead Type 1 · Guru
    Retired Moderator

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    Lemonade,

    The needles are for single use only which the manufacturers stipulates in the patient information, if you under a diabetes consultant then get them to write to your gp and explain that you need to test more than 4 times a day and that needles are for single usage only.
     
  13. xyzzy

    xyzzy Other · Well-Known Member

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  14. sinvogue

    sinvogue Type 2 · Member

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    I think that I must be the only person who has a good doctor, He gives me all that I ask for.
    I have type 2 and have never felt ill and never been in hospital and I am now seventy.I thank god for my health.
    I am on insulin twice a day and metformin twice a day, not that they seem to do anything but the doc says I need them. so I do as I am told he knows best. test strips go in the bin needles into a sharps box. all free.on the nhs of cause
     
  15. CaptArtichoke

    CaptArtichoke · Member

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    If you need to buy/top up your own strips I would recommend BGStar strips - these are now at Boots.com or in some Boots stores at £19.95 for 50. Beats most of the others brands who are around £29! They work with BGStar or iBGStar (I use iBGStar - a brilliant little meter)

    http://www.boots.com/en/BGStar-Blood-Gl ... s_1285169/
     
  16. saronie

    saronie · Member

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    I am T2 and have also been told I only need to test ONCE A YEAR so I purchased my own monitor but was told by the surgery that I am only entitled to 50 strips a year one test a week but I need to test at least once a day before I bought my monitor I had a "test" in the chemists and was 18.6 with the help of my monitor I am keeping it in single figures 90% of the time.
     
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