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Bleh (and hi!)

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meechster2000

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I went to see my doc (GP rather than specialist as not been referred to hospital clinic since moving) to ask about coming of Lantus. He was great, really receptive, went through my ****** lifestyle (self employed, work a lot, stupid hours and physically), asked me about sleep, stress levels and said my last HbA1C was 9 something (yikes, always used to come in about 7).

It was through here I saw other people saying about extreme fatigue on Lantus and all of a sudden the lethargy that's plagued me for the last 10 years of my life might make sense. Maybe it's just the way I work but hoping a change of insulin in the not too distant future puts me back on track.

Anyone any experience of kind of turning your T1 diabetes around? To say mine is erratic would be the understatement of the century, not particularly high or massive lows but swinging like a yoyo...I want to feel better and I'm hoping getting rid of lantus will stop me depending on caffeine and sugar hits to function. It's a vicious cycle.

Michelle
 
Hi and welcome to the forum.

Am bumping your post up in the hope that a Type1 will respond.
 
Hi there

I'm on lantus as well and until recently thought everything was fine. I go through phases of being really dog-tired but then I often have trouble getting to sleep so I have always put it down to that.

Recently though I've been trying to lose weight and so observing more closely what's going on. Pattern = ridiculous highs in the morning - like 15-16 mmol/l (regardless of what I ate or didn't eat) - and lows in the evening.

They keep going on about how lantus has such a steady 24 active period with no peaks and troughs but that doesn't seem to be the case for me. I now wonder if all those times I woke up with a high, feeling like I've been hit by a train was down to a night-time hypo. Maybe lantus does deliver steady insulin cover but for some of us our bodies don't need it to be that steady?

I've been experimenting with fasting, lowering lantus dose, upping it again, eating no carbs in evening, etc etc. But weirdly the pattern isn't changing - still high in the morning - through to mid afternoon if I don't eat and shoot fast acting - and STILL low in the evening. GODDAMMIT! What are your BG levels doing through-out the day? The swings I'm getting can't be good for my HbA1C readings either.

For my next experiment, I'm going to try shifting my injection time. If none of that sheds any light, my next clinic appointment is mid October so I'm gonig to ask them about it then. I have mentioned in the past at clinic about issues with morning highs and they went: oh yeah - people get that sometimes - like it was the hiccups or something. Oh yeah AND? *silence punctuated by sounds of howling wind chasing tumbleweed through deserted frontier town* So I've done a bit of reading on dawn phenomenon and that other one named after the hungarian bloke. But I'm still not sure how exactly either might apply to my circumstances.
 
I've been on lantus for about 10 years and get extremely tired. Have progressively thought it has been stress related, wasn't aware that people have trouble with Lantus causing tiredness.

I sometimes get high blood sugars in the morning and assume this is because of hypos Ive had but not woken. They've been better recently, but I find it so difficult to spot patterns, as so many thing affect my control: heat, stress, activity, foods etc.
 
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