Sorry @Brunneria I should have been clearer! I eat as little carbs as I can but I can't do the fats at all! So I have cut out my worst carbs - bread, pasta rice completely now and limit the others. Trouble is then I have problems keeping the weight on!Mrs P, if you eat less than 60g carbs a day you are most definitely a card carrying, fully paid up member of the LC Brigade. Low carbing starts at below 130-150g carbs a day. At 50g or below, people start flirting with ketosis, which is often considered a bit hardcore LC.
Sorry for that derailment folks. I will shut up now and let everyone concentrate on helping @Cumberland - to whom i wish all the best! Sounds like a horrible situation and i hope you find a solution.
Thank you for thisYou need to break it down even more.
The norm is to have the basal before breakfast so perhaps discuss injecting when you get up or pre breakfast and perhaps move the evening to before evening meal and see if that helps.
Bottom line though is your hospital team are playing with your life, you need your levels lower and the insulin you are using doesn't appear to be working.
So either a different insulin needs to be tried or a pump needs to be considered.
Thank you so much for this@Cumberland I really feel for you it must be exhausting to constantly have bg readings that high, I know how awful I feel with the very occasional reading of around 12 so to be in the 20's so often you have my sympathy!
I noticed in post 10 you mentioned about sometimes you can experience a hypo due to missing lunch, which says to me if you maybe had lunch but without the carbs (as many others have suggested) you will get much better readings. Instead of the bananas on a morning raspberries or strawberries are a lovely replacement and very low carb, also the lidl protein rolls that have been mentioned are great, very low carb and very filling, I do think if you gave it a go of low carbing for a few days (will need to see patterns develop) you may see an improvement.
I have a pump (I'm type 1) and I love it, never had such great readings, but it takes work it isn't magic, for your team to say the are expensive sounds like they are fobbing you off, maybe it's a case of they don't think it would be suitable for you because of the amount of insulin you are on but they should be honest so I would question them again about that.
I wish you luck as I said at the beginning of my post it must be awful to have such high readings and go about your day to day life feeling so rubbish, but think how great you will feel when this begins to get sorted and you have lower readings
Thank you so muchI'm going to chance my luck here and apply some simple logic to this, if I may. As a non-medicated, non-diabetic levels person clearly I have absolutely zero experience of taking insulin, but in my early days I do consider I had some insulin resistance, so obviously when diagnosed I wanted to focus on my getting my numbers down, then ideally improving insulin resistance.
I'm very much with @Mrsass here, in terms of taking out the rising agents so to speak. If carbs push your numbers up, take down the rising agent. Clearly, you would need to monitor your insulin use diligently (and I couldn't begin to suggest how you would do that), but surely if you are not eating 50-60gr of cab at a sitting your insulin needs would reduce, thus either allowing your bloods to moderate a bit (and hopefully you would feel better in that situation) or allowing you to take less insulin and give your body a bit of a rest.
If you were to commit to a two week period, say, where you log everything you eat, drink, all exercise, all medication, mood and well-being feelings, you could get some clues.
I reiterate, I have never used insulin, and thankfully, I have never, knowingly, had scores as high as yours appear regularly to be, but I do know that as my numbers moderated my mood rose no end, and as my insulin resistance improved I could be a bit more relaxed in my diet/lifestyle choices. Now that I am where I am, I have been asked by normal people, diabetics and HCPs why I don't just revert to a "normal diet". Well, I don't because I feel so well as I am, and I don't want to redevelop insulin resistance.
On my journey I have become very slight, and actually wouldn't mind gaining a couple handful of kilos, but I don't want to add the carbs to be diet to do that, and without them, for me, it's a challenge to gain weight these days. Although your BMI is not obese, or even overweight, it would be interesting to experiment with losing 6-7lbs and see if that makes any difference to things.
It almost sounds like your diabetes is a truly portfolio condition - and in this instance sort of 3-sh, with a bit of 2 bundled in. Don't they call a blend of T1 and T2 "Double Diabetes"? It could be you are a bit TOFI (thin outside, but fat inside), with some pesky visceral fat preventing your system coping with the carbs/insulin juggling match.
So, that's my brain dump.
Your home may be repossessed if you do not keep up payments to your mortgage. The value of shares can fall as well as rise, and any other risk warnings you can think of. None of my foregoing are instructions (how could they be?), but hopefully perhaps a bit thought provoking.
Good luck with it all.
Thank you for thisMrs P, if you eat less than 60g carbs a day you are most definitely a card carrying, fully paid up member of the LC Brigade. Low carbing starts at below 130-150g carbs a day. At 50g or below, people start flirting with ketosis, which is often considered a bit hardcore LC.
Sorry for that derailment folks. I will shut up now and let everyone concentrate on helping @Cumberland - to whom i wish all the best! Sounds like a horrible situation and i hope you find a solution.
No just hypos that a pain in the article because background insulin could not match my own basal pattern.Thank you so much for this
Very interesting read
Were you on the high side before introduction of a pump?
Yes will cut back on carbs and enquire about a punp
Thanks for this nosherHi mate, not a clue with what's going on but I know how evil carbs are!!!!!
I cannot understand why you have been left to suffer, so to speak. The amount of care if you are not producing any if at all insulin! Insulin is why I used to hypo before going very low carb.
You could say I'm the opposite to you.
You have none, I can if eating kfc, reproduce far too much Insulin.
You do need to speak with your health care team and fight for what should be happening with your treatment.
HelloApart from cutting carbs (but to be honest I don't think its your main problem, as insulin should cover them) I think the only way to become more sensitive to insulin is to be more active. Sports helps a lot and can make MASSIVE difference. Try something what suits you, can be fast walk for 30 mins, swimming or cycling and see if it helps. I walk to work every morning (40 min) and it halves the insulin I take for breakfast
Thanks for this nosher
I went to the diabetic teams office at the hospital today and got myself booked on a DAFNE course (lasting a week in March)
I bought a new carb counting book on line will use that to help meHopefully you should get the advice that is required for you.
You do need to sort out the best insulin for you.
Wasn't there something you could try in the meantime?
March is still a couple of months away!
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