I've been going through something similar, though my CCG does MDT meetings to discuss funding instead of IFR's - don't know if the time scales would be similar though
So far:
1. My consultant agreed that the sensors would be helpful for me (I finally got started on my pump in July) on the 1st day of October
2. The October MDT meeting was then missed (my case should have been discussed then), so I was told I'd have to wait til the November one (at one point I was told its supposed to be in the middle of the month, another point I was told it's at the end of the month)
3. End of November (11 days ago), nothing, rang up my hospital to get an update - they told me they'd ring me back, they never did.
4. On Friday (4 days ago) I got a letter (electronically) that says 'We have agreed to apply for NHS funding for Guardian sensor', I think this means its a yes, but its worded a bit oddly, anyways, I have to wait for the admin team to sort that out
5. Now, sit on my hands an wait and hope that that sentence did mean yes
So for me its taken 2 months (and a bit) so far and I think I'm approved.
Given how long its taken my hospital team to do things before, not sure when I'll get said sensors (if its a yes)
Good grief. Another example of CCGs varying wildly. My consultant asked me if I thought my GP would prescribe the Libre, I said probably. A week later I passed the diabetes nurse at the surgery and enquired if the request had got through yet, yes, and if I had half an hour now she could set me up.
Under a week. As far as I am aware, one letter from consultant to GP. Applying to MDT and CCGs for special funding? Didn't happen. The consultant may well have discussed my data with other doctors, but I'm not aware of any approval being needed.
I'm beginning to wonder if I'm living a charmed life when it comes to the bureaucracy (long may it continue).
Do we have a list or consensus on which CCGs are particularly 'tick all the boxes', and which are a bit less bureaucratic?
I was fully supported by my MDT to get cgm, but when they applied to the CCG, they turned it down. Finally got Libre, which was bizarre really as the main reason I needed it was overnight hypo's which I didn't wake up from till hours after. Miaomiao has helped a lot though.
If your CCG operates anything like most I’ve experienced do then it sounds like you’re just starting the IFR stage ‘We have agreed to apply for NHS funding for Guardian sensor'.
The MDT within your hospital meets to agree if they feel you meet the criteria then they apply to your CCG for NHS funding on your behalf.
It’s the CCG who decide if you get the funding or not the MDT just decide if they feel like you are likely to be approved - of course your CCG could be totally different...
The MDT happened back in October for me which is when they applied to my CCG for funding, not heard anything from my CCG yet, hopefully yours is faster! It sounds like at least they keep you informed
So, it's kind of ironic that the Libre2 (available on the same basis as the Libre from Nov 14) does the trends and the going low hypo alarms?Unfortunately I have never got good results from libre, I self funded it on and off for 3 years but it was almost never accurate especially when low and I also really need the alarms, I have no hypo awareness.
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