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CGM & how to go about them..
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<blockquote data-quote="CathytheChef" data-source="post: 1473123" data-attributes="member: 39439"><p>The libre completely changed my life - I couldn't recommend it more. My hospital aren't very progressive and my DSN actually said "you must be stupid if you think that'll help you" before I started on it. But within 3 months my HbA1c was down by 2% and it's stayed down. It's alleviated soooo much anxiety for me around what my blood sugar is and "I'd better eat because I could be hypo soon." A few weeks before I started on it I had a really bad hypo because my blood test had said 21 or something and without thinking I'd taken a large correction and then walked to the shops while on the phone with my sister. By the time I realised my blood was in it's boots and I actually had to ask the shop staff to help me (thus making it one of the worst hypos I've ever had!) ... my conclusion was that the original blood test was probably wrong - with the libre you can see trends so this is much less likely to happen. I can also now test without stopping - walking along the road, while in a meeting, even on a spin bike - it allows an instant BG any time anywhere. The drawbacks are that it's another visible sign of T1D and you have to be a bit careful not to knock it off - I think you get used to that pretty quickly and then forget about it. The first 24 hours or so of a new sensor are less accurate and that's quite annoying - I normally put mine in the day before I start it to try to let it settle - that does seem to help. If you can afford CGM the bonus with that is that it will wake you up in the night if you're hypo, and if you use a pump you could get CGM to link to it (too rich for me). Of course the biggest drawback is the cost. The hospital told me "well if it was available on the NHS it could be abused" ... ***?!! I find that attitude so frustrating. The libre is about half the price of the 10 or so strips a day the NHS previously paid for for me. I'm lucky that so far I've been able to afford to pay for it, but I face a massive pay cut in July (austerity measures) - one think I'm certain of is that I would go without almost anything else if it meant staying on the libre and if necessary I think it will be well worth doing a second job to pay for it, although I do find it ridiculous that we have to!! The good thing is that if you're thinking about it you can buy a sensor and download the free app for your phone and you're good to go - even if you decide it isn't for you, those 2 weeks of data will be invaluable in checking your lantus / basal rates etc. (I planned to just do a 2 week trial but once I'd tried it there was absolutely no way I was going back!!)</p><p></p><p>Hope that helps xox</p></blockquote><p></p>
[QUOTE="CathytheChef, post: 1473123, member: 39439"] The libre completely changed my life - I couldn't recommend it more. My hospital aren't very progressive and my DSN actually said "you must be stupid if you think that'll help you" before I started on it. But within 3 months my HbA1c was down by 2% and it's stayed down. It's alleviated soooo much anxiety for me around what my blood sugar is and "I'd better eat because I could be hypo soon." A few weeks before I started on it I had a really bad hypo because my blood test had said 21 or something and without thinking I'd taken a large correction and then walked to the shops while on the phone with my sister. By the time I realised my blood was in it's boots and I actually had to ask the shop staff to help me (thus making it one of the worst hypos I've ever had!) ... my conclusion was that the original blood test was probably wrong - with the libre you can see trends so this is much less likely to happen. I can also now test without stopping - walking along the road, while in a meeting, even on a spin bike - it allows an instant BG any time anywhere. The drawbacks are that it's another visible sign of T1D and you have to be a bit careful not to knock it off - I think you get used to that pretty quickly and then forget about it. The first 24 hours or so of a new sensor are less accurate and that's quite annoying - I normally put mine in the day before I start it to try to let it settle - that does seem to help. If you can afford CGM the bonus with that is that it will wake you up in the night if you're hypo, and if you use a pump you could get CGM to link to it (too rich for me). Of course the biggest drawback is the cost. The hospital told me "well if it was available on the NHS it could be abused" ... ***?!! I find that attitude so frustrating. The libre is about half the price of the 10 or so strips a day the NHS previously paid for for me. I'm lucky that so far I've been able to afford to pay for it, but I face a massive pay cut in July (austerity measures) - one think I'm certain of is that I would go without almost anything else if it meant staying on the libre and if necessary I think it will be well worth doing a second job to pay for it, although I do find it ridiculous that we have to!! The good thing is that if you're thinking about it you can buy a sensor and download the free app for your phone and you're good to go - even if you decide it isn't for you, those 2 weeks of data will be invaluable in checking your lantus / basal rates etc. (I planned to just do a 2 week trial but once I'd tried it there was absolutely no way I was going back!!) Hope that helps xox [/QUOTE]
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