Child with type1

Welcome to the forum Lisa.

It is heartbreaking and can't imagine how it must feel for you all, try posting something in the Parents section of the forum as you may get a few replies from other parents who have type 1 children, but don't forget you also can get support from your child's diabetes care team too.

@giverney can this post be moved to parents forum?

Lisaroberts24 said:

I'm all new to these forums too and not sure we're I've posted it, but thank you I will

Click to expand...

I've moved your thread to the Parents section in the hope you get a few replies Lisa.

Hello and welcome. I'm sorry to hear about your son, it sounds as though he may be having a bit of a meltdown, with anger and frustration. Have you been back to see your GP or DSN who should be able to help and support children who find it difficult.His confidence has been knocked a bit and hopefully with some sort of counselling he will get back to his normal self again. Is there a sport an out of school activity he could take up, that would give him a new lease of life and therefore focus his thoughts on that and then he will see that having diabetes ( with injections and blood testing) shouldn't stop you from doing anything.
I wish you and your son all the best as time is a great healer and hopefully this is just be a little blip.

Take care and good luck

RRB

Hi Lisa
The trouble is your son is actually right.... A non diabetic honestly just has no idea of how it feels every meal time, every time you're with friends or family that you are different to everybody else.

First off.... Has your hospital got any other children your son's age that he could meet up with? Some hospitals arrange a summer camp weekend away etc for T1 children.

Does your hospital actually run a child clinic session?

It is **** hard for parents too. As you are taking on your child's extra care but trying to reassure your child.

There is no quick fix... Just try to do things a little at a time and with re assurance that he is actually no different. He is still able to think, run, play, laugh and do things... Just that some times or when he eats he needs to do something extra.

Hopefully some parents will be along soon.

However..... It took me nigh on 30 years to tell my mum that foremost I am her daughter.... NOT her diabetic daughter. For example... If you can see that your son is with friends but you think he is hypo... Don't force him to stop playing and test and treat the hypo.... That makes him feel different. If you went to him and his friends and offered them all 3 jelly babies (without mentioning diabetes or hypo) then you would not be making your soon feel different...
Sure initially you may not be aware of hypo signs but there is all sorts of ways to make your son feel less different. Don't say he can't have a sleepover until you have checked with other parents because of injections... Just offer a sleepover at your place or say that you need to check that other parents haven't arranged to go out etc.... Then phone or speak to other parents away from your son...

It is very hard, but more parents will be along with advice...

Hi Lisa

Sorry to hear about Lucas but I can assure you it does get better .
I was diagnosed with Type 1 when I was 10 year old & am now 67 & reasonably fit .
The equipment we had to use in those days was like something from the Stone Age compared to today & I remember the first
3 months were pretty traumatic . Also because Diabetes was not fully understood in those days the school I attended felt it
necessary to announce at the morning assembly about my problem & initially I was treated like somebody from outer space .
However it soon got better & as I joined in all the games eventually I was not treated any differently.
All I can advise is to tell Lucas to join in as much as possible with his friends & soon they will just forget about his problem .

Hi lisa
i was diagnosed at 14 so a bit older than your son but everything you have written pretty much echoes my early days.
if you want to message me i will be happy to help in any way i can.

i have popped in a link for the JDRF charity which does have some great support for parents and younger children.

https://www.jdrf.org.uk/life-with-type-1-diabetes/kids-stuff