I have only been a type 1 for 6 months and recently had some blood tests which has shown that I'm anaemic and have low calcium which they believe means I now also have Coeliac disease, having another blood test to confirm. I would really appreciate hearing from anyone else with the same as starting a new job in a week and typing hard not to stress about this as struggling to find a diet to work so need to get my head around this quickly so I can cope with concentrating on my job... Thanks for any help advice !
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Coeliac and type 1
- Thread starter Justine18
- Start Date
Hiya,
I'm type 1 and also have coeliacs. It can be a bit of a pain getting your head round what you can and can't eat, but it is honestly not that bad. You can buy gluten free breads and pastas in the supermarkets - dove farm are best for pasta and genius for bread, in my opinion.
If you go to the coeliacs uk website you can get a handbook that lists all the gluten free foods. Also go to websites such as juvela and glutafin - they will send a free starter pack full of gluten free goodies.
Eating out can be a little tricky, mostly as a lot of restaurants have no idea what gluten is! A lot of Italian restaurants offer gluten free pasta now and many others show which dishes contain gluten on their menus - so it is definitely improving!
It's honestly nothing to stress about - once you work out what's safe and what's not you'll be fine. I felt so, so much better within six weeks or so of giving up the gluten.
Hope this helps. Please hour if you need anything else!
Em
I'm type 1 and also have coeliacs. It can be a bit of a pain getting your head round what you can and can't eat, but it is honestly not that bad. You can buy gluten free breads and pastas in the supermarkets - dove farm are best for pasta and genius for bread, in my opinion.
If you go to the coeliacs uk website you can get a handbook that lists all the gluten free foods. Also go to websites such as juvela and glutafin - they will send a free starter pack full of gluten free goodies.
Eating out can be a little tricky, mostly as a lot of restaurants have no idea what gluten is! A lot of Italian restaurants offer gluten free pasta now and many others show which dishes contain gluten on their menus - so it is definitely improving!
It's honestly nothing to stress about - once you work out what's safe and what's not you'll be fine. I felt so, so much better within six weeks or so of giving up the gluten.
Hope this helps. Please hour if you need anything else!
Em
Robinredbreast
Oracle
Justine18 said:
Hi Justine so sorry to hear of your conditions
its not nice!I have been tested for Coeliac disease ( type 1 for 23 yrs) 1st part negative and 2nd part 'high'( the test test comes in 2 parts and don't come together, so it might take 2 to 3 weeks) so I am awaiting an Endoscopy and I have an appointment for an Ultrasound scan on the 15th August. Do you have any Coeliac symptoms ? I have a few of the symptoms, including weight loss and its dropped even more over the past 2 days and I have felt so ill and the pain in my stomach is getting much worse. Lots of people have no symptoms at all or different symptoms. If it is Coeliac disease, then it will probably be a wheat free diet and you can get this on perscription from the doctor. Good luck and take care I hope you get it sorted out very soon. RRB
I'm sure you will settle well into your new job, congratulations, and the diabetes and other conditions wont interfer too much.
Hi and thanks for replies, it's just trying to work out what I can and can't eat that's the pain, I only have wind and weight loss, the docs could see from my results that I'm not absorbing calcium, iron etc hence the weight loss so all signs point to coeliac. Also my sugars have been high and low but yesterday after following a gluten free diet they seemed to regulate quite well. Am going to check out the websites you recommended and just try and learn how I can adapt into my diet. Head was a little sore just thinking about it yesterday so thank you for your advice 
To confirm coeliac they need to do an endoscopy where they take a sample of the lining of the stomach. You should continue eating a the same diet with gluten in it up until you have the test as this could affect the result. ie by following a gluten free diet, the lining of the stomach will have time to repair itself, so if they do an endoscopy it won't show the signs of the disease.
My sons blood showed a high level of antibodies for coeliac disease, but fortunately the test came back negative. We were told it's normally a 50/50 chance.
My sons blood showed a high level of antibodies for coeliac disease, but fortunately the test came back negative. We were told it's normally a 50/50 chance.
Hi Justine
Although I am not coeliac, my partner is... It does appear that you are displaying the classic signs of coeliac... anaemia, wind, loose stools ?, weight loss and once you have an endoscopy done you will know then what the state of your villi are in in your intestine. If they are lying flat, then that's a good indicator.
Once you start eating a gluten free diet after coeliac disease has been confirmed, you'll then start to slowly feel better with less wind, firmer stools and you will start to be able to absorb all the nutrients from the food you eat and slowly the anaemia will start to improve.
Some gluten free food such as bread, rolls, crackers etc are available on prescription from a GP so you shouldn't have to buy too much of the expensive stuff in supermarkets.
Hope you start to feel better soon
Although I am not coeliac, my partner is... It does appear that you are displaying the classic signs of coeliac... anaemia, wind, loose stools ?, weight loss and once you have an endoscopy done you will know then what the state of your villi are in in your intestine. If they are lying flat, then that's a good indicator.
Once you start eating a gluten free diet after coeliac disease has been confirmed, you'll then start to slowly feel better with less wind, firmer stools and you will start to be able to absorb all the nutrients from the food you eat and slowly the anaemia will start to improve.
Some gluten free food such as bread, rolls, crackers etc are available on prescription from a GP so you shouldn't have to buy too much of the expensive stuff in supermarkets.
Hope you start to feel better soon
Thanks again for your replies. I have been doing peptide research as newly diagnosed type 1 So having lots of bloods taken regularly which is how this has been picked up and had another blood test taken last week to confirm. The docs are fairly certain of the diagnosis and have asked me to adapt my diet and monitor my bloods in the meantime so the coeliac situation has only happened fairly recently, they are going to get me to see a dietician in the next few weeks. I am fortunate that I'm doing the research as it could of taken a long time for this to be picked up by my doctor, I also now understand its another auto immune disease like type 1 and the thyroid, just now wondering if anything else is going to conk out !!! Just had a very tasty gluten free bread roll, not missing out !!!
You're lucky you get to see a dietician! When I was diagnosed I had a 60 second appointment with the consultant at the hospital. She literally told me "You have coeliacs. Stop eating gluten. Next!"
It is a pain for the first few weeks as you will literally be checking the labels of everything, but it does get easier. You can make gluten free versions of pretty much anything. Some of the gluten free foods take a little getting used to though! I tend to make my own bread if and when I can be bothered! The bread doesn't tend to keep very well, so I make smaller loafs.
Good luck!
Em
It is a pain for the first few weeks as you will literally be checking the labels of everything, but it does get easier. You can make gluten free versions of pretty much anything. Some of the gluten free foods take a little getting used to though! I tend to make my own bread if and when I can be bothered! The bread doesn't tend to keep very well, so I make smaller loafs.
Good luck!
Em
