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Coeliac Disease

HpprKM

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Ok, so this is not specifically related to diabetes, and it is not for myself - but I have read that one auto immune disease can lead to another, so looking to my wise and helpful forum peers for any advice they may have.

My grandson, now almost 20 months old, has recently received confirmation that his recent test for coeliac disease - has come back as positive for auto immune disease and the paedetrician's say that he is to be regarded as having coeliac disease and being totally gluten intolerant until he is 5, when there is a minute possibility he could be tested again and found negative. This is highly unlikely as his mother as good as diagnosed the illness herself, after he started on wheat products (solids) around 6 months, he started to lose weight to the point his bones were sticking out on his little body, was repeatedly vomiting, having diahorrea, his personality changed from happy, laughing baby to whiny and miserable, and his stomach was tight as a drum - all classic symptoms of coeliac , was in and out of hospital where his parents were told, he goes to nursery and bugs are going around, or it was winter and babies are often ill at this time. One day he was sent home from hospital, and back in the same night. Now we don't necessarily hold the medical professional to blame, as far as we can ascertain coeliac is fairly uncommon in children, but needless to say, his parents - who are both educated and sensible were able to quickly get him on the right diet and almost overnight his health improved. Thankfully, he is now a healthy, happy little boy.

There was a blow with the recent diagnosis as paedetrician said he needs to come off the oats and move mainly towards rice substitutes, so no more porridge or cornflakes, bit of a blow as that was his breakfast at nursery also some of his snack bars. My daughter has found a substitute, a kind of cornflake made from rice. My question to other members is, do you have any experience of coeliac, and particularly in children - do you have any advice or recommendations - please :) Should add that he, to date, is also diary intolerant - this may change, but again seems unlikely. Very healthy appetite, eats his veg and fruit daily. He saw paedetrician last week and has the dietian next month. One of my daughter and son in law's chief worries is if he is exposed to gluten by accident in future years, for example, he recently went to a birthday party where the mother knew of his intolerance, and yet put food on a low table where my son in law caught him trying to help himself to cocktail sausage. The mother had provided food for him, but not thought of the food she put out for the other toddlers to help themselves being a risk to him :!:

As diabetics, most of us adults, we know how difficult it is to stick to the right diets - so we can only imagine what it is like for children and youngsters, though I am sure many of you will have experience of this, as a T2 diagnosed just a few years back it came to me later in life, and I have found it doesn't really get easier.
 
Hi Angeleyes, thank you for your information, I have now passed this to my daughter and hopefully she will find this of use :)
 
Parents often do not realise that children are incredibly adaptable. It often upsets parents more than the child when the child cannot have certain food. Food should not be used too often as a treat and I don't think children should be encouraged to get too excited about food. They will eat anyway, if they are hungry. Far better to get them excited about learning their tables!! :lol:

I have coeliac disease in my family, so I know something about it. There are no documented cases of it resolving. If it does "resolve" it probably wasn't coeliac disease in the first place and it was misdiagnosed. Most coeliacs can include oats in their diets - the recommended maximum is 60 grams per day, thought it is very important that these are pure, uncontaminated oats. Coeliac UK will advise on which brands of oats are suitable.

Mark
 
Mark, thank you for your encouraging post. My daughter has suddenly realised that after returning to nursery after the Christmas break that her son's tummy was somewhat upset, in hindsight, having been told that he should steer clear of oats, she realises that over the holidays he was having rice krispies for breakfast and that he had cornflakes at nursery, they have now stopped giving him cornflakes as it seems this may have upset him. The worrying thing is that if the tiny amount of oats that may have been gluten contaminated affect him that he would seem to have quite a severe case (if that is possible). However, he is seeing a dietitian next month at which point his parents will have the chance to raise many concerns and, hopefully, receive some satisfactory answers.

Your valid point that not all oats are gluten contaminated and that Coeliac UK can advise on this is of extreme interest and I shall pass this on to my daughter, again thanks for taking the time to reply :D :D
 
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