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Coeliac Disease.

glenmoray

Well-Known Member
Messages
81
I have type 1 diabetes. I've been to my doctors today and was told that having type 1 diabetes make you prone to getting Coeliac Disease. Coeliac Disease is when you are aillergic to gluten. Has any other Type 1 diabetics been told this.
 
glenmoray said:
I have type 1 diabetes. I've been to my doctors today and was told that having type 1 diabetes make you prone to getting Coeliac Disease. Coeliac Disease is when you are aillergic to gluten. Has any other Type 1 diabetics been told this.
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Hi glenmoray

I have been told this by my doctor because of ongoing stomach problems and I have a 2nd Endoscopy with a biopsy this week for Coeliac disease. Unfortunately people with diabetes are prone to this. Have you been having any gut problems then?

best wishes RRB
 
They're both auto-immune diseases and I was told I was more likely to get coeliac than a non Type 1, but it's not a huge increase in risk. Plus I didn't get it until 39 years after I got Type 1 (although I think it had been building up for 5 years).

There's a few of us here with T1 and coeliac but a large majority of the T1s don't seem to have it.
 
Hi guys,

I've got type 1 and was diagnosed with coeliac disease also about 7 years ago, they told me the same thing at the time, that it's quite closely linked. Thankfully the gluten free range in supermarkets/restaraunts are ever growing though. When I first got diagnosed you were lucky to get a fish finger!
 
I have both type 1 and coeliacs. They are both autoimmune conditions. Having one autoimmune be condition makes you more likely to get another. There are loads of gluten free foods you can buy. It's a pain at first but not too bad once youget your head around things
 
I'm 17 and got diagnosed with type one diabetes when I was 2 years old! when I was 13/14 I got diagnosed with Coeliac Disease and to be honest I hate it! All the gluten free food just seem to crumble especially the breads! I don't find anything appitising apart from the pizzas and pastas. .. its really hard going out for meals or if your just going out shopping for the day you can't just grab a sandwich or a past. also staying out at friends having to explain what your allergict to pretty much every food. and relationships, going on dates is hard to find somewhere that provided gluten free meals that you actually like!

Thats just my opinion.
Ashley
 
Yeah I suppose so!:') some tomato soup from Greg's for me Haha.
 
I was diagnosed as Type 1 in 1981 but my Coeliac diagnosis was only in about 2004 - several years after my diagnosis with Dermatitis Herpetiformis - another gluten-related autoimmune condition.

Type 1 does mean that you have a slightly increased risk of Coeliac, but doesn't automatically mean that you'll develop it.

In terms of avoiding gluten, there is an ever-increasing range of foods that are gluten-free. It's possible now to buy burgers and fish fingers and frozen pizzas that are GF. M&S do a huge amount of stuff, though it's not always obvious.

The good news is that many of the staple foods that one might have (meat, potatoes, veg, milk, tea/coffee) are GF. It's only when they're processed or thickeners/gravy added that they become gluten laden.

Items purchased by weight (e.g. sweets) can be a bit awkward as there's no label to check. Soups are also a problem - some do and some don't. A restaurant I used to go to occasionally had a GF soup for the child's portion but the adult one (same flavour) had gluten in it!
 
I just wrote all this and it's not saved my post grrrr...

short version:

Have you tried Warburtons gluten free bread (Asda and Tesco should sell it) I love it toasted and occasionally have it with Jam, it's by far the best bread out there.

I think the best biscuits i've come accross are in Tesco - jammy dodgers and digestives, they do crumble but they are gorgeous.

As for dates, don't be too disheartened, I usually ask the restaraunt when I get there or ring them up to see what foods have Gluten/Wheat in. Frankie & Benny's are great they just amend the dish slightly. Bella Italia, Nando's offer gluten free foods/menus. Dominoes and Pizza Hut now have to offer a gluten free base.

If i'm in a pub I usually ask if the chips have gluten in and if they do i order my food with a jacket potato instead of the chips.

Hope this helps...
 
Yeah, I've tried pretty much everything... I am quite a fussy eater! and for them restaurants you have suggested I do know they can do gluten free meals but if your going on a first date it is pretty awkward... Plus I'm very shy so I tend not to ask:/

Thanks though
 
aww bless you, I used to be shy like you but I've given up now and say what I say haha.

Hope you find a solution or somewhere good to eat
 
yes... i actually have coeliac disease and i am also a type 1 diabetic... became diabetic in december 2006 and found out i had coeliac disease in 2008 my docters in the hospital checked my urnie to see if i have coeliac disease but they couldnt find anything but to be on the safe side i was sent to have an biopsy where a camera was put down my mouth all the way down to by bowle and i actually did have it.
 
November 1st, found out today that I do have Coeliac disease. I really thought the result would be negative, but it is definite Lots of changes to come, but I will get there. I should get an appointment through to see a mangement nurse at the DTC and then go from there, I do like my bread and cereals though, especially Weetabix
I have had type 1 now for 23 years. RRB
 
Sorry to hear that it's been confirmed RRB. That said, the range of products and quality is getting better and, depending upon what you normally eat, many of the staple foods are gluten-free anyway provided that they're not cooked or prepared in an odd manner. Odd manner?
Well, if I cook roast potatoes I use potatoes and vegetable oil. Frozen ones have batter to make them crispy.
Sometimes the same with chips.
Coeliac-UK do a gluten-free directory that your dietician should have pointed you in the direction of. It's very handy when going round the supermarket. Labeling is improving too.
 
Depending on where people live, many GPs are now no longer prescribing gluten free bread, biscuits, crackers etc anymore because of the huge prices that the gluten free food manufacturers are charging the NHS. It is a bit alarming and for the food producers to stay in business they are now going to need to reduce their prices or rely on coeliacs buying the food directly from them which some people will do but many will now just use the internet to search how to make gluten free bread and other stuff themselves....

An Asian food supermarket is a coeliacs best friend. Many of the gluten free flours can be bought at fairly low prices. Sainsburys also sell Xanthum Gum and gluten free cereals (the cereals are expensive though so my partner only eats them when they are going on a special offer). He now has a porridge made up using some Sainsburys gluten free porridge with some rice flakes bought from Asian supermarket.
 
Yes gluten free foods are becoming a lot better than they used to these days. I eat quite a lot of things nowaddays. There is usually always gluten free pasta in the big supermarkets (in the free from sections) and the frozen foods are always improving. I did a test on a few of my friends and the diferences between the foods is sometimes hardly noticeable by non coeliacs.

Hit these in the search engines as you can get a welcome hamper off most major brands. My advise would be to just try all the available gluten free foods and see which ones you prefer etc. I must admit after a few years I did start baking a lot of things myself (mainly cakes etc) but the flours are pretty good and as iHs said the xantham gum in mixtures helps the flour to bind.

Juvella
Glutafin
Dietary Specialists (DS)
Coeliac UK
Tesco free from range
Asda free from range
Sainsbury's free from range
Trufree (available at tesco and via DS)
Amys Kitchen
Kirsty's Meals (sainsburys)
Warburtons do gorgeous gluten free breads as well.

Hope this hels RRB Good luck
 

Thank you etmsreec, it's only been a few days , but I can't believe how expensive the products are. I have been looking in different supermarkets and Holland and Barrett today and the girl in the shop was very helpful. Its gravy and sauces that I like, especially casseroles, so I bought a gluten free product from H & B today its called Marigold Swiss vegetable Bouillon powder.

I have never bought frozen roast poatoes, I have been served them once, a few years ago and I could taste the difference, I wasn't keen on them, but then again I think nearly everything on the plate was frozen, Veg, stuffing etc
I too have noticed the labeling is better, but its taking twice as long to do the shopping now :roll: :lol:

All the best RRB
 

Thank you very much, thats very helpful, really good to know :thumbup: RRB
 
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