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<blockquote data-quote="donnellysdogs" data-source="post: 1810261" data-attributes="member: 17713"><p>One thing to thicken up the waste into ileostomy bags are sachets called "Diamonds"- are you using these now? </p><p></p><p>My dearest friend has no use of her hands at all or her legs and also has stoma bag, ileostomy bag and bladder as well. Relying upon carers, nurses and friends... however she has a water bottle and long tube on it fixed to her wheelchair each day to ensure she drinks adequate water (and her dog!). She has not been told to drink or eat any of the stuff to avoid dehydration or to thicken the watery waste. She solely thickens it up with "diamonds".</p><p>She would never, ever eat the foods or drinks that you had to do. </p><p></p><p>She also has to be aware of bags bursting and this happens and she unfortunately has to sit in ***** until carers/nurses come to help her... but bags bursting is part of what she has accepted. She is very aware of the ins/outs of liquid in bags, what she eats or doesnt. Ie no green veg at all (same as me except broccoli due to my colon). I have to eat broccoli daily to get some iron but I'm not at stage of needing a bag yet. She and I basically eat and avoid the same things apart from broccoli. </p><p></p><p>She too has had the most awful time in hospitals and weight loss. Left in bed for 21/2 years as carers wouldnt get her out, couldnt eat anything for 3 years besides fortisip thru a straw. Has been put in a coma from somebody giving her wrong doses of meds, has been on deaths door many times.</p><p></p><p>She is not diabetic though.. I think the advice you got ref drink and foods has contributed towards your diabetes problems. She eats normal fats, not high fats, has always avoided any fizzy drinks or sports drinks. She eats well and is an absolute star for smiles and laughter.</p><p></p><p>You can get through this and higher protein will help healing.</p><p></p><p>My friend has enormous quantities of drugs due to other problems totally unrelated to colon/bowel/bladder. She has pain patches and syringe drivers of meds given 24/7 but she is still independent and drives, despite not being able to use her hands or legs either.</p><p></p><p>It is a blooming hard journey to blooming travel with illness but it is do able.</p><p></p><p>My friend has become the expert in what she can eat and drink to stabilise her illnesses. You will too but protein is important for healing and for diabetes. Protein and fat are both important for bags and diabetes. Ie eggs, chicken, cheese. She eats small rounds of cheese n biscuits. The small cheese biscuits she eats have 2.9 or 3.6 carbs in them, so she can balance this with some nice varieties of cheese or chicken or also eggs on top. She will just eat 3 at a time.</p><p></p><p>Also she lost 3 stone literally in less than a week when she was so, so poorly 4 years ago. She also came round deaf from one operation. </p><p></p><p>It is far better for her to eat protein and fat with fewer carbs.. she has also managed to put the weight back on and is the light and positiveness to so many people for being such a dear, dear friend and always with laughter and smiling.</p><p></p><p>You can do it too. </p><p></p><p>Best wishes to you. Xx</p></blockquote><p></p>
[QUOTE="donnellysdogs, post: 1810261, member: 17713"] One thing to thicken up the waste into ileostomy bags are sachets called "Diamonds"- are you using these now? My dearest friend has no use of her hands at all or her legs and also has stoma bag, ileostomy bag and bladder as well. Relying upon carers, nurses and friends... however she has a water bottle and long tube on it fixed to her wheelchair each day to ensure she drinks adequate water (and her dog!). She has not been told to drink or eat any of the stuff to avoid dehydration or to thicken the watery waste. She solely thickens it up with "diamonds". She would never, ever eat the foods or drinks that you had to do. She also has to be aware of bags bursting and this happens and she unfortunately has to sit in ***** until carers/nurses come to help her... but bags bursting is part of what she has accepted. She is very aware of the ins/outs of liquid in bags, what she eats or doesnt. Ie no green veg at all (same as me except broccoli due to my colon). I have to eat broccoli daily to get some iron but I'm not at stage of needing a bag yet. She and I basically eat and avoid the same things apart from broccoli. She too has had the most awful time in hospitals and weight loss. Left in bed for 21/2 years as carers wouldnt get her out, couldnt eat anything for 3 years besides fortisip thru a straw. Has been put in a coma from somebody giving her wrong doses of meds, has been on deaths door many times. She is not diabetic though.. I think the advice you got ref drink and foods has contributed towards your diabetes problems. She eats normal fats, not high fats, has always avoided any fizzy drinks or sports drinks. She eats well and is an absolute star for smiles and laughter. You can get through this and higher protein will help healing. My friend has enormous quantities of drugs due to other problems totally unrelated to colon/bowel/bladder. She has pain patches and syringe drivers of meds given 24/7 but she is still independent and drives, despite not being able to use her hands or legs either. It is a blooming hard journey to blooming travel with illness but it is do able. My friend has become the expert in what she can eat and drink to stabilise her illnesses. You will too but protein is important for healing and for diabetes. Protein and fat are both important for bags and diabetes. Ie eggs, chicken, cheese. She eats small rounds of cheese n biscuits. The small cheese biscuits she eats have 2.9 or 3.6 carbs in them, so she can balance this with some nice varieties of cheese or chicken or also eggs on top. She will just eat 3 at a time. Also she lost 3 stone literally in less than a week when she was so, so poorly 4 years ago. She also came round deaf from one operation. It is far better for her to eat protein and fat with fewer carbs.. she has also managed to put the weight back on and is the light and positiveness to so many people for being such a dear, dear friend and always with laughter and smiling. You can do it too. Best wishes to you. Xx [/QUOTE]
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