Confusion and conflicting messages - again

Hi again

Am becoming major pain in the pancreas to this site I fear (boom boom).

Just had conflab with SDN who has cut insulin down to 6u am and 4u pm (honeymooning, moi?). She is aware I am desperate for control but the cut is due to 4's most afternoons and a lovely hypo today at the same time. However the cut at night time is because I am going to bed in the 5's at times (though not always) and she says that for a newly diagnosed the control is 'too tight' :?:

When I queried this reasoning she said gold standard pre bed was around 7. preferably 8 and otherwise as long as bg was not over 10 that this would be fine for now. When I queried how long they would keep me at non diabetic levels of bg I was advised that I was not to worry about this as when honeymoon period ended my requirments would go up.

Is it just me?
Is she right that newbies are preferred not to have readings like this already? I am only staring to try as I mean to go on (lectured again for not eating gigantic plates of pasta if I want). She says she knows I want tight control but it is too soon to be at this level. Am frustrated and feel quite despondent now. Am glad insulin is cut but not to expense of high bg.
BTW they havent all been at 4-7, some are still over this (almost 50/50 over test period of 9 days).

I also queried post prandial as when driving they are not within range sometimes hours after eating. I asked when we would start to look at this. Was told no to worry about that for now.

Not to worry! I know what the research says.

Sorry for the moan people. Am fed up working really hard and trying to be positive in lieu of some notion that things will work out eventually, maybe, whenever. :?

Lx

Well

As suspected would happen, BS back in double figures before bed for the first time in two+ weeks and higher this morning.
Am actually livid now but have decided to give it one more day with their advice, change what I am eating at tea time and then see. I prefer my bigger meal at night too so am loathe to cut portions again (only having tablespoon starchy carbs at most) If they are higher again, I will be calling first thing tomorrow and strongly suggesting my night time dose increases to what it was.
Have new patient appt with endocrinologist in 4 weeks - god help him.
Maybe if they are lucky the lurking low mood will descend and I'll be too depressed and unwell to be feisty.

My DSN knows my wishes for my condition (ie tight control, always) and I dont understand why they dont realise that most people with diabetes psychological wellbeing is tied to their blood sugars from what I can see, and its certainly the case for me.

Thanks for the support guys

Lx :

Hi Fergus

Yes am on premix 2x daily. Have no idea why they started me on that. Initial regimen was sliding scale via hospital inpatient stay so dont know if the 'crisis management' aspect has influenced them. In terms of injections etc, like most people you dont really have much choice but to get on with it, if you are able.

DSN has made reference to basal/bolus and the fact that most people eventually go on to this but no timescales mentioned as such and no reference made to me. Caitycakes has made point that due to low doses at present plus honeymoon period they might be reluctant to given titrating the dose might be difficult . Or maybe they are just trying to get me stable. My worry is of course is that stability wont be forthcoming. At present am on 6 and 4 am and pm -Mixtard 30

I appreciate Rome wasnt built in a day I and probably err on the side of zealous but I would have thought that was a good thing :!: DSN clearly thinks because diagnosis only three or so weeks that I am rushing thing and things need 'time to settle'. Not to sound overly negative but as far as I was concerned, the clock started ticking as soon as I was diagnosed, and more so cause I obviously had it before diagnosis - for who knows how many weeks.

I was devastated, like most people, on diagnosis for the reasons that I knew what diabetes entailed and what the complications are. As the A and E doc (un)kindly said whilst I cried my eyes out on a trolley 'well, at least you're taking it seriously'.

Again, thanks for the support. Im sure I'll get there. I just want to get there quickly and the unfortunate thing about this condition (aside from everything else) is the fact that there are no benchmarks as to how long it should take to settle etc. Being told Im making progress is the stock phrase but doesnt cut the mustard as far as I am concerned.

L x

PS is mustard low carb