Hi EllsKBellsHi @Lynz84 I am going to buck the trend here and say that I can't remember ever not being tired since I have had T1. However, not-so-small caveat to that - I am a terrible insomniac, struggling with control, have been iron and vit D deficient, and various other health problems (what can I say, my other organs are getting jealous). So it could well be part and parcel of being T1, but I would definitely consider raising it with your GP/consultant next time you see them.
I seem to remember you mentioning recently that you are feeling a bit 'burnt out' - could that be impacting things?
A little confused by differing opinions on tiredness for type 1s. I am very tired a lot. I have no underlying conditions and no deficiencies and sleep and eat fine.
Thank you from the bottom of my heart Rosedreams! Your words mean a great deal! Ive had all the blood tests and all ok. Ive been exercising, eating well and with good control aside from the hot weather bringing some hypos. I have done the Bertie course, my own research, taken supplements etc but to no avail. Its so frustrating but thank you for not making me feel like im the only one! My tiredness doesnt render me useless nor does it keep me from having a life but it is hard to keep positive somedays when you feel youve done everything you can and you still feel wore out.I've had T1 diabetes for 43 years since age 5, and I can honestly say ai have felt tired most of my life, despite intentionally living an active life. No matter what exercise regimen or activities I do, no matter how health-conscious I am (I have always been quite strict about diet and BG control), and even at my strictest level of control, I continually feel tired. Anyone with a cooperative, truly understanding doctor or medical team is very lucky, because I 've always had dismissive replies to my questions about unexplained tiredness, and i even paid for my own thyroid tests to find out if I had an under active thyroid to explain my tiredness, but that was normal. I've never let diabetes ruin or obstruct my life despite most medics treating T1 as some sort of death sentence, so I try to learn as much as I can myself, and I love this website for bringing real lives together to share info and advice. I like to quietly prove doctors wrong about how eventually diabetes will just dissolve me and I keep as healthy as I can but of course with the usual hiccups, there's no such thing as perfect control. But I've never cured or found a lasting remedy for this tiredness that's with me all the time. So I found ways of living with it, accepting it, not letting it depress me for too long, and working despite it. I work and have hobbies and I push myself to exercise no matter how tired i feel, because if I don't I end up feeling worse in my head, then physically. It's hard, it's a monumental challenge to control T1 and feel OK, but it is what it is and the first thing is to accept how we are, find what's best fir our own body to live as healthily as possible, and try to keep a level steady rythm of control, which is the hardest part. I used to wonder why, why, why am I so tired, and look for answers with or without a doctor's help, but I had to accept my tiredness because a thyroid test proved my thyroid was normal and no other test was really applicable. I think T1 takes a toll on the body in a way that has yet to be talked about as much as they tell you about what you should and shouldn't eat, what nice complications to look forward as the T1 gets older. And they say it matter of factly, as if it's all the same for absolutely everyone. Well, we're not all the same are we?
Everyone in the medical field is busy talking about how To 'get your sugars under control' which is essential advice, but they have no concept of how hard it is to do that well, all the time, unless they've got T1 tthemselves. They never tell you to "expect to feel tired" or to gice yourself a mental break. A hypo cam knock you out and feel like you've been in a boxing match afterwards, for a whole day sometimes. But even as a strict eater, low carb, plenty of daily exercise, climbing, hiking, swimming, and steering clear of any abuse of food or alcohol, I am tired most of the time.
It's something I have to accept and work against, it's an effort, but I have to carry on and do what I want to do without letting it take over my whole life. Diabetes is a big enough baby to manage 24/7 without the draining effects of wondering what the meaning of this tirdeness is without a concrete clue in sight. No doctor or specialist nurse has ever told me it's part of T1 unless after a hypo, so with all my blood tests showing I'm 'ok', no defficiencies etc., I say I have to accept it, I try to toss out the negative doom and gloom about T1 the medical profession has always dished out to me at clinics where, in this day and age, despite ever growing numbers of T1 diagnoses, it's still looked upon like a death sentence. I'm glad for those T1s who've got lovely doctors, my experience has always been of negative attitudes, restrictive advice about becoming limited and expecting grave complications as the books say. Well, we're not in a book, we are all different.
Sorry I've written a short book, what am I like? Anyway, I just wanted to tell you you're not the only one feeling tired, I share your feelings, so you're not alone, although I'm sorry I have no explanation for the blasted tiredness.
For the first time in my life I've heard another T1 talk about constant tiredness and not knowing why. Welcome to my world, here's a T1 who's exactly the same! I don't even tell people to go and talk to their doctor, that's never worked for me, even after changing doctors. I like to read and find out medical info for myself. I hope you're doing alright. Don't let it get you down , be your own best friend and pull yourself through the tirdeness with small aims, small activities, bright thoughts, and find the path that suits your own pace. Best wishes.
I've had T1 diabetes for 43 years since age 5, and I can honestly say ai have felt tired most of my life, despite intentionally living an active life. No matter what exercise regimen or activities I do, no matter how health-conscious I am (I have always been quite strict about diet and BG control), and even at my strictest level of control, I continually feel tired. Anyone with a cooperative, truly understanding doctor or medical team is very lucky, because I 've always had dismissive replies to my questions about unexplained tiredness, and i even paid for my own thyroid tests to find out if I had an under active thyroid to explain my tiredness, but that was normal. I've never let diabetes ruin or obstruct my life despite most medics treating T1 as some sort of death sentence, so I try to learn as much as I can myself, and I love this website for bringing real lives together to share info and advice. I like to quietly prove doctors wrong about how eventually diabetes will just dissolve me and I keep as healthy as I can but of course with the usual hiccups, there's no such thing as perfect control. But I've never cured or found a lasting remedy for this tiredness that's with me all the time. So I found ways of living with it, accepting it, not letting it depress me for too long, and working despite it. I work and have hobbies and I push myself to exercise no matter how tired i feel, because if I don't I end up feeling worse in my head, then physically. It's hard, it's a monumental challenge to control T1 and feel OK, but it is what it is and the first thing is to accept how we are, find what's best fir our own body to live as healthily as possible, and try to keep a level steady rythm of control, which is the hardest part. I used to wonder why, why, why am I so tired, and look for answers with or without a doctor's help, but I had to accept my tiredness because a thyroid test proved my thyroid was normal and no other test was really applicable. I think T1 takes a toll on the body in a way that has yet to be talked about as much as they tell you about what you should and shouldn't eat, what nice complications to look forward as the T1 gets older. And they say it matter of factly, as if it's all the same for absolutely everyone. Well, we're not all the same are we?
Everyone in the medical field is busy talking about how To 'get your sugars under control' which is essential advice, but they have no concept of how hard it is to do that well, all the time, unless they've got T1 tthemselves. They never tell you to "expect to feel tired" or to gice yourself a mental break. A hypo cam knock you out and feel like you've been in a boxing match afterwards, for a whole day sometimes. But even as a strict eater, low carb, plenty of daily exercise, climbing, hiking, swimming, and steering clear of any abuse of food or alcohol, I am tired most of the time.
It's something I have to accept and work against, it's an effort, but I have to carry on and do what I want to do without letting it take over my whole life. Diabetes is a big enough baby to manage 24/7 without the draining effects of wondering what the meaning of this tirdeness is without a concrete clue in sight. No doctor or specialist nurse has ever told me it's part of T1 unless after a hypo, so with all my blood tests showing I'm 'ok', no defficiencies etc., I say I have to accept it, I try to toss out the negative doom and gloom about T1 the medical profession has always dished out to me at clinics where, in this day and age, despite ever growing numbers of T1 diagnoses, it's still looked upon like a death sentence. I'm glad for those T1s who've got lovely doctors, my experience has always been of negative attitudes, restrictive advice about becoming limited and expecting grave complications as the books say. Well, we're not in a book, we are all different.
Sorry I've written a short book, what am I like? Anyway, I just wanted to tell you you're not the only one feeling tired, I share your feelings, so you're not alone, although I'm sorry I have no explanation for the blasted tiredness.
For the first time in my life I've heard another T1 talk about constant tiredness and not knowing why. Welcome to my world, here's a T1 who's exactly the same! I don't even tell people to go and talk to their doctor, that's never worked for me, even after changing doctors. I like to read and find out medical info for myself. I hope you're doing alright. Don't let it get you down , be your own best friend and pull yourself through the tirdeness with small aims, small activities, bright thoughts, and find the path that suits your own pace. Best wishes.
You are very welcome Lynz84, your post made me feel I wasn't alone, seriously, for the first time in many years of T1, no one ever really took what I said about tiredness as something worth looking into. That's what's so good about this forum, helping people to feel constructive empathy because. Stay strong, I know how awful the mental effects of tiredness can are, and remind yourself that you do an amazing job controlling such a demanding condition.Thank you from the bottom of my heart Rosedreams! Your words mean a great deal! Ive had all the blood tests and all ok. Ive been exercising, eating well and with good control aside from the hot weather bringing some hypos. I have done the Bertie course, my own research, taken supplements etc but to no avail. Its so frustrating but thank you for not making me feel like im the only one! My tiredness doesnt render me useless nor does it keep me from having a life but it is hard to keep positive somedays when you feel youve done everything you can and you still feel wore out.
As Donnellysdogs rightly points out mental fatigue can have an affect and i completely agree and at times that can be an issue but for every other day there is simply no explanation.
Thank you again for your words xx
Hello Donnelysdogs, you've now got me onto looking up ACT therapy I love reading up on all sorts, thank you. I'm grateful to find this website, because regardless of how long I've had T1, I keep finding out things I never knew or considered before, and hearing Lynz48 and you, and many others on here, helps me.Beautifully written and expressed.... wish I could have put it that way....
I noted that OP said no underlying causes so I took this to be that thyroid, B12 and full blood counts,D3 been tested....
Good to hear that others feel so similar too and that acceptance has to come in to equation. Thats what ACT therapy teaches....
So sorry I meant Lynz84.Beautifully written and expressed.... wish I could have put it that way....
I noted that OP said no underlying causes so I took this to be that thyroid, B12 and full blood counts,D3 been tested....
Good to hear that others feel so similar too and that acceptance has to come in to equation. Thats what ACT therapy teaches....
Lol thats ok! Some days feel like a few years have been added lol xSo sorry I meant Lynz84.
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