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Confusion over tiredness
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<blockquote data-quote="rosedreams" data-source="post: 1509700" data-attributes="member: 403911"><p>Hello faujidoc1, I hope your daughter continues to recover well, and I like what Scott-C said about adapting and managing to live a full life despite the blasted T1, he's so right. </p><p></p><p>I do have unexplained tiredness and have had several trials of different insulins, and to be perfectly frank I remember becoming intensely more aware of the tiredness when I became a guinea pig for human insulin at the Institute of Child Health, London in 1981. Perhaps going from ox insulin (since 1974 aged 5) to human, triggered something in my body? </p><p></p><p>I not eat more than 120 gm carbs a day even in my 20s, and now it's 30g a day, that works for me. I feel better with less carbs. All diabetics are different, we don't have the same height, weight, stamina or routine. It's a matter of finding what suits best. </p><p></p><p>The dieticians who used to guide me as a kid and teenager insisted on carbs, and what used to be considered 'essential' never really was, it was trial and error for me. I remember being told off by an obese dietician once when I was 7, she read my BS results that I wrote in my little book and tried hard to keep stable, she waved her finger at me and told me to 'stop being naughty with food" and to eat my carbs properly, whatever that meant, and I saw her two packets of Jaffa Cakes on the desk and thought "How dare you, at least I don't need Jaffa Cakes to work in an office!" even though I was obviously still at school and not working. But it did make me angry, her presumptive cockiness.</p><p></p><p>Having learned what's better for me over the years, my metabolism is more compatible with less carbs, and I know I'm not defficient in nutirents or protein/calcium/B12 etc.., from tesrs, and my food intake revolves around vitamins and nutrients. </p><p></p><p>I used to do a lot of rock climbing, mountain hikes, cycling etc.., so rock on Scott-C in the great outdoors! I only cycle daily now, I spend a lot of time on my work and despite moaning about tiredness I think I'm lucky, very lucky, especially when I see far worse health problems afflicting other people. </p><p></p><p>I don't think for one minute every T1 diabetic should feel tired, I get tired, but it doesn't stop me from wanting to live my life, so I accept it because multiple tests, and research told me there's nothing 'wrong' with me so I had to accept it. </p><p></p><p>Please take this with the utmost respect from me: it's a blessing that your perspective on Diabetes has been enhanced and personalised because of your daughter; we need more doctors to truly feel the reality of diabetes when they talk about it with us. </p><p></p><p>If more doctors knew the true ins and outs of it, living with it, there'd be far more changes in how its dealt with by the professionals. I mean changes such as talking to a newly diagnosed patient using positive, encouraging words like those of Scott-C about your daughter's diagnosis. Encouraging, not going on at you about everything that could go wrong, or making her fear its consequences before she's even adjusted to it . Not looking at it as a death sentence and prescribing restrictions for life. I've had doctors and specialist nurses predict things for me that would make someone want to jump off a cliff, casually saying things they 'assume' happen to all diabetics as a final scenario, making the mind fear the worst and dread the day of reckoning, whereas I've always tried to grab life by the horns and consider myself a self-regulating active diabetic living fully and healthily. OK, a bit tired, it's not debilitating, and nobody needs extra doom and gloom at the clinic about what is essentially their life.</p><p></p><p>Wishing your daughter a beautiful life - she will be a strong survivor - and wishing you the peace of mind and strength that every loving parent deserves.[emoji258] [emoji255] [emoji258]</p></blockquote><p></p>
[QUOTE="rosedreams, post: 1509700, member: 403911"] Hello faujidoc1, I hope your daughter continues to recover well, and I like what Scott-C said about adapting and managing to live a full life despite the blasted T1, he's so right. I do have unexplained tiredness and have had several trials of different insulins, and to be perfectly frank I remember becoming intensely more aware of the tiredness when I became a guinea pig for human insulin at the Institute of Child Health, London in 1981. Perhaps going from ox insulin (since 1974 aged 5) to human, triggered something in my body? I not eat more than 120 gm carbs a day even in my 20s, and now it's 30g a day, that works for me. I feel better with less carbs. All diabetics are different, we don't have the same height, weight, stamina or routine. It's a matter of finding what suits best. The dieticians who used to guide me as a kid and teenager insisted on carbs, and what used to be considered 'essential' never really was, it was trial and error for me. I remember being told off by an obese dietician once when I was 7, she read my BS results that I wrote in my little book and tried hard to keep stable, she waved her finger at me and told me to 'stop being naughty with food" and to eat my carbs properly, whatever that meant, and I saw her two packets of Jaffa Cakes on the desk and thought "How dare you, at least I don't need Jaffa Cakes to work in an office!" even though I was obviously still at school and not working. But it did make me angry, her presumptive cockiness. Having learned what's better for me over the years, my metabolism is more compatible with less carbs, and I know I'm not defficient in nutirents or protein/calcium/B12 etc.., from tesrs, and my food intake revolves around vitamins and nutrients. I used to do a lot of rock climbing, mountain hikes, cycling etc.., so rock on Scott-C in the great outdoors! I only cycle daily now, I spend a lot of time on my work and despite moaning about tiredness I think I'm lucky, very lucky, especially when I see far worse health problems afflicting other people. I don't think for one minute every T1 diabetic should feel tired, I get tired, but it doesn't stop me from wanting to live my life, so I accept it because multiple tests, and research told me there's nothing 'wrong' with me so I had to accept it. Please take this with the utmost respect from me: it's a blessing that your perspective on Diabetes has been enhanced and personalised because of your daughter; we need more doctors to truly feel the reality of diabetes when they talk about it with us. If more doctors knew the true ins and outs of it, living with it, there'd be far more changes in how its dealt with by the professionals. I mean changes such as talking to a newly diagnosed patient using positive, encouraging words like those of Scott-C about your daughter's diagnosis. Encouraging, not going on at you about everything that could go wrong, or making her fear its consequences before she's even adjusted to it . Not looking at it as a death sentence and prescribing restrictions for life. I've had doctors and specialist nurses predict things for me that would make someone want to jump off a cliff, casually saying things they 'assume' happen to all diabetics as a final scenario, making the mind fear the worst and dread the day of reckoning, whereas I've always tried to grab life by the horns and consider myself a self-regulating active diabetic living fully and healthily. OK, a bit tired, it's not debilitating, and nobody needs extra doom and gloom at the clinic about what is essentially their life. Wishing your daughter a beautiful life - she will be a strong survivor - and wishing you the peace of mind and strength that every loving parent deserves.[emoji258] [emoji255] [emoji258] [/QUOTE]
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