Continious Glucose Monitors

no experiences but thought I would just say it sounds as if you would be a perfect candidate for one, even if it s just to see whats going on regards the hypos........but definitely over the long term too as it has affected your life and your husbands....

getting back on the pump is also a good idea.....

good luck, my fingers are crossed...

Yep these is a small tight group of us on here @Spiker @PaulinaB @Hooked Who else?

Yes, yes! It's a great help! I've been having problems with hypos and since getting a CGM I had almost no hypos at all. It has it's drawbacks (inaccuracy, calibrations, false alarms, etc) but for me it has been a GREAT help. I honestly think that everyone should get one funded. Especially since you're having such gigantic issues with hypos.

Talk to your new doctors - since you're having many hypos and lost your awareness and it is affecting your life so much, you should qualify for a funding of a CGM, at least for a short-time to figure out what is going on.
Take a look here: http://www.inputdiabetes.org.uk/glucose-monitoring/cgm-costs/

Or if self-funding is an option for you...

Let us know if you have any specific questions and how you get on!

Engineer88 said:

Yep these is a small tight group of us on here @Spiker @PaulinaB @Hooked Who else?

Click to expand...

I chickened out of getting one after talking to the DSN. Testing about 10 times a day and kind of regretting not going for it anyway.
Tracey, you sound like you could be in with a good chance of perhaps getting funding for one. Check out this website to learn more:
http://www.inputdiabetes.org.uk/glucose-monitoring/cgm-costs/

Also, your clinic will probably offer the use of a CGM for a week. You won't be able to see the results until you take it back to the clinic, but coupled with a thorough exercise and food diary, it should help in seeing more of what's happening.

ETA: Durrrhhh! Just noticed that Pauline has given you the same link! Sorry

Hooked said:

http://www.inputdiabetes.org.uk/glucose-monitoring/cgm-costs/
.

Click to expand...

Same link!

Hi Tracey,

I have used CGM for the past 3 years with my Veo pump and it has been a life saver. I've been type 1 for nearly 37 years and lost all hypo awareness probably about 10 years back. Using a pump helped with the severity of my hypos but I was still going unconscious without warning. I tried all ways I could think of to pick up on any low blood sugar warnings but without success.

CGM has allowed me to get tight control but avoid severe hypos where I need third party help. I can go to sleep with the safety net of knowing my pump will alarm -and some nights it does drive me up the wall alarming - and also knowing that insulin delivery will be suspended to my pump for 2 hours if my glucose level falls below a certain threshold.

It has altered my life in terms of feeling safer, knowing where my glucose level is and having an early warning system to hopefully protect me from harm. It is quirky as it measures interstitial glucose and there is a time lag between blood and interstitial glucose but you soon adapt to this. It also makes you focus on what and when you are eating and also when you are delivering boluses, in fact it makes you super aware of everything that is going on glucose wise.

If your hospital consultant supports your application for funding I would totally recommend it especially knowing how frightening life becomes with no hypo awareness. At present there are no NICE guidelines for the use of CGM so the decision for funding even with support may not be straightforward but don't be put off. Most diabetes clinics can loan you a CGM for a week to see how it might help you and if it something you would want to use. Good luck with it all.

I use a CGM and it's fantastic.