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Could anyone offer any advice if possible please?
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<blockquote data-quote="Maxy" data-source="post: 974249" data-attributes="member: 90581"><p>Hi everyone,</p><p></p><p>First of all thank-you for your replies, apologies for the inactivity I've been tied up in new job and as of recently pump therapy.</p><p>After a long wait it has finally happened, I did 4 days on a saline circulation- yesterday and today I've begun first insulin circulation. It has been very exciting to say the least- although it's early days I already feel fantastic. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p><u>I'd like to sincerely thank each and every single one of you lovely souls</u> for replying to my post and giving me genuinely useful advice- I reckon that due to the nature of this condition; anecdotal words from those who have it themselves are more valuable than medical professionals in many ways. It seems it's difficult to grasp a full understanding the condition unless you <em>live and breath it. </em></p><p>That isn't to say I have any less respect from someone who doesn't have it and has had the initiative to get their head around.</p><p></p><p>I am practically awestruck with my results of my first full day. From my memory I have <strong>never</strong> experienced blood sugars this stable, I've still got a huge amount of calibration to do and still experiencing a few hypos- but from me this absolutely unbelievable:</p><p></p><p><img src="https://scontent-lhr3-1.xx.fbcdn.net/hphotos-xtf1/v/t35.0-12/s2048x2048/12176187_10208033214766961_1619354394_o.jpg?oh=881265c1be81ce390d83597cade9ee1a&oe=5629CCA3" alt="" class="fr-fic fr-dii fr-draggable " style="" /></p><p></p><p>I have never been so consistently in my goldilocks zone. To put it in perspective before I was injecting 40 units of basal in the morning, I was unable to use basal insulin in the evening due to constant night-time hypos. There were some obvious patterns such as morning hyperglycaemia but otherwise no continuity- most days were train crashes like so:</p><p></p><p><img src="https://scontent-lhr3-1.xx.fbcdn.net/hphotos-xpf1/v/t34.0-12/12179614_10208033305489229_702323268_n.jpg?oh=945df3f90c3bcca50acf4bc4827c5fda&oe=562AA3C9" alt="" class="fr-fic fr-dii fr-draggable " style="" /></p><p></p><p>Amazingly, my basal insulin has now been cut down by just under 50%, it is so far acting predictably and with continuity. As expected, this delivery seems to be vastly superior (for my requirements anyway).</p><p></p><p>For those who are interested I've written down my first impressions:</p><p></p><p></p><p><strong><u>Wednesday, 21st October</u></strong></p><ul> <li data-xf-list-type="ul">Last night the quality of sleep I experienced was enhanced significantly- it seems having stable BS levels overnight affects quality of sleep more significantly than I thought. Woke up feeling well rested and just what I imagine being <em>‘normal’</em> is like. <br /> I experienced far less anxiety/paranoia when actually falling asleep last night, the stability (fewer up/down fluctuations) at this point seems to be making me feel more relaxed/well rested.<br /> <br /> </li> <li data-xf-list-type="ul">I feel far more mental clarity- it’s too early to say but I feel the positivity I’m experiencing isn’t solely down to the relief of finally beginning pump therapy; I feel more on the ball, talkative, no extreme continuous mental fatigue and brain fog. <br /> <br /> </li> <li data-xf-list-type="ul">I’m sure others have experienced this also, but I think I might have forgotten what being healthy feels like. Even on a good day previously, (relative to my control) the delivery of my insulin combined with the way my body metabolised macronutrients meant constant up and down spikes- I feel these constantly made me feel terrible. I’ve experienced these spikes from diagnosis at age 11, I’m now 23- I reckon it’s easy to forget that what you’re feeling isn’t normal. I feel both blessed and privileged that I might start feeling <em>normal</em>, waiting this long will mean it’ll feel that little bit more sweet. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /><br /> <br /> </li> <li data-xf-list-type="ul">My vision seems to have improved, the continuous ups and downs were causing visual disturbances including black spots, flushing, floaters- could have been due to decreased blood flow to the brain. During hypos I have in the past experienced hallucinations which usually manifested themselves as strange fractal patterns and sharpening/splitting of the edge of visible objects- the brain works in mysterious ways.<br /> <br /> </li> <li data-xf-list-type="ul">Not yet, but over the following months I could see myself spending far less of my life actually thinking about diabetes- over the past year or so most of my waking thoughts have been consumed with whats been going on the background; I think this will offer some relief and also some trust/control.<br /> <br /> </li> <li data-xf-list-type="ul">I find the Medtronic 640g as a device very pleasing on the eyes, user interface is nicely designed- but the device itself is quite bulky. Stealth belt arrived today, will have to experiment with positioning. Overall I have no reservations with wearing the device itself, the actual act of injecting 7–9 times a day is equally ‘unnatural’ and disruptive in my opinion. Personally I’d do whichever type of therapy offered the most stable blood sugar levels. The size and inconvenience is a small price to pay for what it seemingly offers and I’m sure in a week even it’ll feel even more natural.<br /> <br /> </li> <li data-xf-list-type="ul">Again, too early to make full assessment- but due to slower ascending/descending levels it instinctively it feels as though my hypo awareness has already improved. I have noticed that both hyper and hypoglycaemic levels seem to have a different character.<br /> <br /> <strong>Hyper</strong>: Feels more pronounced, noticeable but effects seemingly linger around a bit longer.<br /> <br /> <strong>Hypo:</strong> My Freestyle Libre helps with this in a big way but nevertheless my hypoawareness feels heightened. I can really feel when I’m hypo, it hits me like a tonne of bricks but perhaps in a different way. Granted, as can be expected it’s still uncomfortable but I suspect the more gradual descent into hypo (rather than a plane spiralling out of control towards the ground) makes me able to rationalise more easily and not go into panic mode and start over-treating.<br /> <br /> </li> <li data-xf-list-type="ul">I have lost a great deal of weight this year, used to have a much more athletic build until I was purposely run high in order to avoid hypos- have received many comments asking me whether I’m okay due to my weight. I look forward to being able to eat normally again and once I have a safe split basal set-up running to begin my exercise routine again and gain weight.</li> </ul><p>__________________________</p><p></p><p>Thanks for taking the time to read, if you have any comments or advice on possible changes to my regime in the near future I'd hugely appreciate it.</p><p></p><p>Wish love, blessings and good health to you all. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="Maxy, post: 974249, member: 90581"] Hi everyone, First of all thank-you for your replies, apologies for the inactivity I've been tied up in new job and as of recently pump therapy. After a long wait it has finally happened, I did 4 days on a saline circulation- yesterday and today I've begun first insulin circulation. It has been very exciting to say the least- although it's early days I already feel fantastic. :) [U]I'd like to sincerely thank each and every single one of you lovely souls[/U] for replying to my post and giving me genuinely useful advice- I reckon that due to the nature of this condition; anecdotal words from those who have it themselves are more valuable than medical professionals in many ways. It seems it's difficult to grasp a full understanding the condition unless you [I]live and breath it. [/I] That isn't to say I have any less respect from someone who doesn't have it and has had the initiative to get their head around. I am practically awestruck with my results of my first full day. From my memory I have [B]never[/B] experienced blood sugars this stable, I've still got a huge amount of calibration to do and still experiencing a few hypos- but from me this absolutely unbelievable: [IMG]https://scontent-lhr3-1.xx.fbcdn.net/hphotos-xtf1/v/t35.0-12/s2048x2048/12176187_10208033214766961_1619354394_o.jpg?oh=881265c1be81ce390d83597cade9ee1a&oe=5629CCA3[/IMG] I have never been so consistently in my goldilocks zone. To put it in perspective before I was injecting 40 units of basal in the morning, I was unable to use basal insulin in the evening due to constant night-time hypos. There were some obvious patterns such as morning hyperglycaemia but otherwise no continuity- most days were train crashes like so: [IMG]https://scontent-lhr3-1.xx.fbcdn.net/hphotos-xpf1/v/t34.0-12/12179614_10208033305489229_702323268_n.jpg?oh=945df3f90c3bcca50acf4bc4827c5fda&oe=562AA3C9[/IMG] Amazingly, my basal insulin has now been cut down by just under 50%, it is so far acting predictably and with continuity. As expected, this delivery seems to be vastly superior (for my requirements anyway). For those who are interested I've written down my first impressions: [B][U]Wednesday, 21st October[/U][/B] [LIST] [*]Last night the quality of sleep I experienced was enhanced significantly- it seems having stable BS levels overnight affects quality of sleep more significantly than I thought. Woke up feeling well rested and just what I imagine being [I]‘normal’[/I] is like. I experienced far less anxiety/paranoia when actually falling asleep last night, the stability (fewer up/down fluctuations) at this point seems to be making me feel more relaxed/well rested. [*]I feel far more mental clarity- it’s too early to say but I feel the positivity I’m experiencing isn’t solely down to the relief of finally beginning pump therapy; I feel more on the ball, talkative, no extreme continuous mental fatigue and brain fog. [*]I’m sure others have experienced this also, but I think I might have forgotten what being healthy feels like. Even on a good day previously, (relative to my control) the delivery of my insulin combined with the way my body metabolised macronutrients meant constant up and down spikes- I feel these constantly made me feel terrible. I’ve experienced these spikes from diagnosis at age 11, I’m now 23- I reckon it’s easy to forget that what you’re feeling isn’t normal. I feel both blessed and privileged that I might start feeling [I]normal[/I], waiting this long will mean it’ll feel that little bit more sweet. :) [*]My vision seems to have improved, the continuous ups and downs were causing visual disturbances including black spots, flushing, floaters- could have been due to decreased blood flow to the brain. During hypos I have in the past experienced hallucinations which usually manifested themselves as strange fractal patterns and sharpening/splitting of the edge of visible objects- the brain works in mysterious ways. [*]Not yet, but over the following months I could see myself spending far less of my life actually thinking about diabetes- over the past year or so most of my waking thoughts have been consumed with whats been going on the background; I think this will offer some relief and also some trust/control. [*]I find the Medtronic 640g as a device very pleasing on the eyes, user interface is nicely designed- but the device itself is quite bulky. Stealth belt arrived today, will have to experiment with positioning. Overall I have no reservations with wearing the device itself, the actual act of injecting 7–9 times a day is equally ‘unnatural’ and disruptive in my opinion. Personally I’d do whichever type of therapy offered the most stable blood sugar levels. The size and inconvenience is a small price to pay for what it seemingly offers and I’m sure in a week even it’ll feel even more natural. [*]Again, too early to make full assessment- but due to slower ascending/descending levels it instinctively it feels as though my hypo awareness has already improved. I have noticed that both hyper and hypoglycaemic levels seem to have a different character. [B]Hyper[/B]: Feels more pronounced, noticeable but effects seemingly linger around a bit longer. [B]Hypo:[/B] My Freestyle Libre helps with this in a big way but nevertheless my hypoawareness feels heightened. I can really feel when I’m hypo, it hits me like a tonne of bricks but perhaps in a different way. Granted, as can be expected it’s still uncomfortable but I suspect the more gradual descent into hypo (rather than a plane spiralling out of control towards the ground) makes me able to rationalise more easily and not go into panic mode and start over-treating. [*]I have lost a great deal of weight this year, used to have a much more athletic build until I was purposely run high in order to avoid hypos- have received many comments asking me whether I’m okay due to my weight. I look forward to being able to eat normally again and once I have a safe split basal set-up running to begin my exercise routine again and gain weight. [/LIST] __________________________ Thanks for taking the time to read, if you have any comments or advice on possible changes to my regime in the near future I'd hugely appreciate it. Wish love, blessings and good health to you all. :) [/QUOTE]
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