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Type 1 Diabetes
Could it be Autonomic Neuropathy?
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<blockquote data-quote="EllieM" data-source="post: 2314188" data-attributes="member: 372717"><p>I second this, as most GPs aren't that clued up about diabetes in general, T1 more so than T2, and are particularly clueless about T1 complications.</p><p></p><p>I've been tested for coeliac disease more than once, when I naively asked my specialist why it needed testing again when I hadn't had it before he told me that you can develop it any age and its a relatively common comorbidity with T1.</p><p></p><p>Also, if you tell your team that you want to try for a baby then there's a good chance that they'll do a proper panel of blood tests even if they weren't going to anyway.</p><p></p><p>As regards poor control in one's teens, I was a poster child for this (pre glucometer and I stopped bothering to do the urine tests which were via a tablet, 5 drops of urine, 10 of water in a test tube). My control was awful. When the hospital gave me my first glucometer in my early twenties they suggested that I might like to try to get my average blood sugar below 13!.</p><p></p><p>Maybe I've been lucky, but it's never too late to improve your diabetic control (still a work in progress for me after 50 years of T1) and a lot of complications can be stalled or even turned round by means of better control (I've had on again off again background retinopathy for decades). </p><p></p><p>I was lucky to have two relatively healthy pregnancies in my latr twenties and early thirties (healthy for the babies, a little stressful for me) and I can definitely say that poor past control is no reason for not being able to successfully have a baby. (And very many non diabetic pregnancies unfortunately end in miscarriage, it's just that people tend not to talk about it.)</p><p></p><p>Good luck with this, do encourage your partner to come here for support and get her to push her team to try to identify what is happening to her. It may or may not be connected to diabetes, but there is no reason for her to keep suffering like this without help from medical professionals.</p></blockquote><p></p>
[QUOTE="EllieM, post: 2314188, member: 372717"] I second this, as most GPs aren't that clued up about diabetes in general, T1 more so than T2, and are particularly clueless about T1 complications. I've been tested for coeliac disease more than once, when I naively asked my specialist why it needed testing again when I hadn't had it before he told me that you can develop it any age and its a relatively common comorbidity with T1. Also, if you tell your team that you want to try for a baby then there's a good chance that they'll do a proper panel of blood tests even if they weren't going to anyway. As regards poor control in one's teens, I was a poster child for this (pre glucometer and I stopped bothering to do the urine tests which were via a tablet, 5 drops of urine, 10 of water in a test tube). My control was awful. When the hospital gave me my first glucometer in my early twenties they suggested that I might like to try to get my average blood sugar below 13!. Maybe I've been lucky, but it's never too late to improve your diabetic control (still a work in progress for me after 50 years of T1) and a lot of complications can be stalled or even turned round by means of better control (I've had on again off again background retinopathy for decades). I was lucky to have two relatively healthy pregnancies in my latr twenties and early thirties (healthy for the babies, a little stressful for me) and I can definitely say that poor past control is no reason for not being able to successfully have a baby. (And very many non diabetic pregnancies unfortunately end in miscarriage, it's just that people tend not to talk about it.) Good luck with this, do encourage your partner to come here for support and get her to push her team to try to identify what is happening to her. It may or may not be connected to diabetes, but there is no reason for her to keep suffering like this without help from medical professionals. [/QUOTE]
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Could it be Autonomic Neuropathy?
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