Triscornia
Well-Known Member
- Messages
- 83
Hello @Triscornia
This is a good course to help build knowledge: https://www.bertieonline.org.uk/
'Think like a pancreas' by Gary Scheiner available on Amazon, is a really useful book to read.
Unsure of your son's age but children have growth hormones which affect their insulin usage, as well as other variables like exercise, stress, other hormonal activity, sleep, and many other factors which can impact on the individual and these variables make stable control difficult and are outside our capability to manage the condition as effectively as we'd like. I would suggest getting back in touch with your DSN to discuss his control with them and ask for more support, they may be able to offer him a pump which would help micro manage his control more easily and combined with a continuous glucose monitor, it would help you cope better, if you can self fund then the Dexcom G6 is great as you would be alerted by smart phone to what's happening with him as it can link to other users, this system also has an alert which will tell you if he's going high/low.
In regards to courses, there's some useful info on the JDRF website here, although ignore DAFNE as this is only available to adults: https://jdrf.org.uk/information-sup...diabetes-3/type-1-diabetes-management-skills/
Hi there, we have just passed our first year anniversary of my son’s diagnosis of type1. It was a very difficult year to say the least and I thought by now we would have mastered it but no. Seriously We don’t understand how we can give him the same foods and it reacts in totally different ways. It’s very frustrating to say the least. If he is low going to bed we give him a biscuits bring up his level, that same biscuit on one night could bring him to the level we want and another night hardly move. Now my Dr said never give him biscuits but a banana or yogurt. I feel we have no idea yet what we are doing and need a course. I check my son every night at 2am and sometimes have to wake him because he is low but normally he is ok, the other night I went out and didn’t check him and he was low all night and was upset I didn’t check him as I think he is afraid of what could happen. Like is it ever going to get better as I write this my eyes well up, he is still so thin it’s heartbreaking. Does anyone know of a course we go on in the UK? We were explained about it in hospital but really not enough. Thanks.
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