Search
Search titles only
By:
Search titles only
By:
Home
Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
Search
Search titles only
By:
Search titles only
By:
New posts
Search forums
Menu
Install the app
Install
Reply to Thread
Guest, we'd love to know what you think about the forum! Take the
Diabetes Forum Survey 2024 »
Home
Forums
Diabetes Discussion
Type 1 Diabetes
"Cured" of type 1?
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Message
<blockquote data-quote="TopoGigi" data-source="post: 1380655" data-attributes="member: 38211"><p>JuicyJ life before Pancreas Transplant was okay but since my mid twenties I'd had Peripheral Neuropathy and severe Gastroparesis for which I had two gastric surgeries, but my Diabetic Consultant was concerned about my ongoing deterioration and was in contact with a reknowned surgeon who was starting a pancreas transplant programme in the U.K. and thought I might be a suitable candidate, after much consideration and several consultations with the Transplant team I agreed that this was the better option but I was going into the unknown, I read up as much as I could mainly US studies but at that particular time there were no other UK patients that I could share their experience with, very scarey compared to the support and groups that are around now, many of which are on FB.</p><p>After a 'work up' of approximately 6 months I was called 2 weeks after going on the transplant list which was a shock as I wasn't prepared for what might happen. After many serious life threatening complications and additional surgery I was allowed home 5 weeks later but had to return to a transplant clinic 3 times a week for many months, now 20 years later I still attend the same clinic every 2 months or sooner depending on blood test results. I have had many biopsies of the pancreas and had mild rejection on a couple of occasions for which thank god has been treated. I've also had other health issues some related to being immunosuppressed and some cardiac problems, a pacemaker and stents in 2013 and oh I now have CKD stage 4. My transplant consultant has told me on many occasions that if I'd not gone ahead with the transplant then I would not be here today so it says it all really. Would I change things? No . I am happy, fairly healthy and live each day as anyone else would, although I take immunosuppressants plus a whole load of other drugs it doesn't worry me.</p><p>Hope that answers a few of your questions</p></blockquote><p></p>
[QUOTE="TopoGigi, post: 1380655, member: 38211"] JuicyJ life before Pancreas Transplant was okay but since my mid twenties I'd had Peripheral Neuropathy and severe Gastroparesis for which I had two gastric surgeries, but my Diabetic Consultant was concerned about my ongoing deterioration and was in contact with a reknowned surgeon who was starting a pancreas transplant programme in the U.K. and thought I might be a suitable candidate, after much consideration and several consultations with the Transplant team I agreed that this was the better option but I was going into the unknown, I read up as much as I could mainly US studies but at that particular time there were no other UK patients that I could share their experience with, very scarey compared to the support and groups that are around now, many of which are on FB. After a 'work up' of approximately 6 months I was called 2 weeks after going on the transplant list which was a shock as I wasn't prepared for what might happen. After many serious life threatening complications and additional surgery I was allowed home 5 weeks later but had to return to a transplant clinic 3 times a week for many months, now 20 years later I still attend the same clinic every 2 months or sooner depending on blood test results. I have had many biopsies of the pancreas and had mild rejection on a couple of occasions for which thank god has been treated. I've also had other health issues some related to being immunosuppressed and some cardiac problems, a pacemaker and stents in 2013 and oh I now have CKD stage 4. My transplant consultant has told me on many occasions that if I'd not gone ahead with the transplant then I would not be here today so it says it all really. Would I change things? No . I am happy, fairly healthy and live each day as anyone else would, although I take immunosuppressants plus a whole load of other drugs it doesn't worry me. Hope that answers a few of your questions [/QUOTE]
Verification
Post Reply
Home
Forums
Diabetes Discussion
Type 1 Diabetes
"Cured" of type 1?
Top
Bottom
Find support, ask questions and share your experiences. Ad free.
Join the community »
This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies.
Accept
Learn More.…