That's great thanks@Jenninp89 - I'm going to tag @himtoo to hopefully drop in and have a chat with you.
Hi there, no sadly I don't have a DSN at the moment. Services in my area are in a bad state. I'm having to wait a long time to even see a nurse. At the moment my GP manages my tablets and insulin etc. He isn't very helpful. He just keeps saying that my insulin is a 'baby dose' whatever that means. If that's the case then increase it I said to him.Hi @Jenninp89
not an expert at all on LADA -- but what I can say is that all of our doses and medications are individual to us --I would be questioning the novomix insulin regime -- this pretty much means you must eat a fixed amount of carbs at each meal -- that is what this insulin is meant to work best with -- if that makes sense
do you have a DSN ( diabetic nurse ) -- often they are easier to contact and more in touch with individual needs.
I am going to tag in a LADA to offer some support too.
@DaftThoughts
and also tagging @catapillar for her very sensible views on most every topic
Hi, thanks for your reply, I don't have a means to test for ketones, and right now that is very much a concern. Without going to hospital or the GP tomorrow morning I have no idea. I've had no advice at all only that I should take my tablets as told and my insulin, and wait to see a nurse next monthDo you have a confirmed LADA diagnosis @Jenninp89 ? Gliclazide isn't really recommended for those with LADA if they want to retain residual beta cell function.
In addition, mixed insulin isn't recommended for type 1s, which is what LADA is. NICE says type 1s should be on a basal bolus regime rather than mixed insulin. With mixed insulin your dosage will only be able to manage a certain carb intake, have you been given any guidance on how many carbs per meal your dose can cope with? If not you should seek guidance on this from whoever prescribed it.
Do you have a means to test for ketones?
hey there == you are not getting the care you need to manage a difficult illness -- can you ask for a referral to an endocrinologist ??Hi there, no sadly I don't have a DSN at the moment. Services in my area are in a bad state. I'm having to wait a long time to even see a nurse. At the moment my GP manages my tablets and insulin etc. He isn't very helpful. He just keeps saying that my insulin is a 'baby dose' whatever that means. If that's the case then increase it I said to him.
Many thanks
I saw an endocrinologist last month. He was awful. Simply said that my GP would manage my condition and that he was only there for specific questions. Nightmare to be honesthey there == you are not getting the care you need to manage a difficult illness -- can you ask for a referral to an endocrinologist ??
Hey, I normally test 2/3 times daily. It was just I noticed I was going to the toilet a lot that I checked again this evening. Approx two hours ago. They have been above hovering around 20 for around two to three hours nowon a similar and related topic -- how often are you testing your blood sugars -- and what sort of readings are you seeing ??
I saw the 20.1 you posted to start this thread -- are they consistently at that sort of level ??
if so -- you should be talking to NHS 111 service for further advice -- as you can not test for ketones .
and unfortunately -- you did not have a clue what specific questions to ask -- or that needed answeringI saw an endocrinologist last month. He was awful. Simply said that my GP would manage my condition and that he was only there for specific questions. Nightmare to be honest
Exactly, the specialist just flooded me with information and then ushered me out the door. It's only recently, having learned more, that I noticed how terrible he was. Thanks againand unfortunately -- you did not have a clue what specific questions to ask -- or that needed answering
that is not good at all
I would phone 111 and also speak to your GP tomorrow as a matter of urgency -- your BG's should be in single figures -- not in high teens and low 20's.
Hi, thanks for your reply, I don't have a means to test for ketones, and right now that is very much a concern. Without going to hospital or the GP tomorrow morning I have no idea. I've had no advice at all only that I should take my tablets as told and my insulin, and wait to see a nurse next month
My doctor has said it is highly likely that I am LADA, late onset type one, if I'm correct? he is sending me for a GAD blood test. Thanks again
I think I will have to give them a call now. My figures have gone up to 22.3 now. Annoying.If you're concerned about ketones now, you could call 111 for advice. You could buy ketone test strips on Amazon, the urine ones are cheap if giving a vague result. You really should have been prescribed a means of testing ketones if your doctor thinks it's highly likely you are LADA, which is type 1.
I'm not sure why your doctor would be sending you anywhere for a GAD test. It's just a blood draw, you'd just have blood drawn at the surgery and then the blood sample, not you, is sent off to be tested for antibodies.
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