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Type 1 Diabetes
Diabetes does kill
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<blockquote data-quote="pumppimp" data-source="post: 329265" data-attributes="member: 52090"><p>Hi There,</p><p>just to give a bit of advice from a different point of view, I'm not a parent but have been someone aged 11 at high school with diabetes so few notes of wisdom from somone who is older and wiser looking back.</p><p>Firstly when I was 15 I got cognetive behavioural therapy as part of a study I took part in I think this really helped come to terms with the fact I would have this disease for the rest of my life. It also helped me increase the amount of times I tested and sticking to my diet taking injections on time etc, I was still a teenager but I was much better behaved.</p><p>The next part (not that I'm pointing fingers or anything like that) but everything about diabetes and being a teenager was negative. Everytime my parents brother sister or even my friends mentioned diabetes it was in a negative way everything I did was going to kill me and I look back at a time when I feel I never did anything right in anyone elses eyes. Infact I would go as far to say that my parents and myself aren't close now because I never felt supported or trusted by them everything about my care was negative. I would suggest ignoring bad behaviour (really hard to do I know) and everytime you see them doing something good for their care really over praise for it (testing and taking injections) maybe a reward after a week of really good control of taking injections and testing. I think this would have helped me to form a positive realtionship to my care more quickly. When you tell somebody whos 12 they will end up at 30 with no feet or blind or in a coma if they don't do better, they will pay no attention as they can't feel any effects at the moment.</p><p>It wasn't until I had decided to take control of my condition that everything went **** up. </p><p>The next thing is having access to the best treatment having a good consultant and DSN that a teenager can relate to and respect. If the professionals don't care what you do why would you care at 12? Personally I'm on a pump and I think it's the bees knees with that I can eat what I want (within reason) cravings are definitely less for me nothing is forbidden, whenever something is forbidden you want it even more. restricting food and having locked cupboards is definitely not the way to go I too grew up with this and it just made me think my parents will never trust me. if a pump isn't possible personally I would allow sugary snacks as long as they took an extra injection or went for a run or some sort of excercise to burn off the sugar, the do something good get a reward approach. With a pump I don't need to inject and can bolus inside my pocket without anyone noticing, also makes you feel less like a special case when people stare at you in school or have to be dragged into a special room when you want to be chilling with your mates.</p><p>Shouting, screaming, crying, telling a teenager their feet will fall off in my experience doesn't work the only thing that did for me was praise while they're still young enough to get into good habits and not end up like the poor ladys husband above. </p><p>Lastly don't feel a failure, teenagers are only going to learn what they want to learn you just have to be there to pick up the pieces as all good parents do when things don't go the right way. I think you were both really brave to say you struggle with your teenagers behaviour, hopefully this helps a little if not then oh well.</p><p>Laura</p></blockquote><p></p>
[QUOTE="pumppimp, post: 329265, member: 52090"] Hi There, just to give a bit of advice from a different point of view, I'm not a parent but have been someone aged 11 at high school with diabetes so few notes of wisdom from somone who is older and wiser looking back. Firstly when I was 15 I got cognetive behavioural therapy as part of a study I took part in I think this really helped come to terms with the fact I would have this disease for the rest of my life. It also helped me increase the amount of times I tested and sticking to my diet taking injections on time etc, I was still a teenager but I was much better behaved. The next part (not that I'm pointing fingers or anything like that) but everything about diabetes and being a teenager was negative. Everytime my parents brother sister or even my friends mentioned diabetes it was in a negative way everything I did was going to kill me and I look back at a time when I feel I never did anything right in anyone elses eyes. Infact I would go as far to say that my parents and myself aren't close now because I never felt supported or trusted by them everything about my care was negative. I would suggest ignoring bad behaviour (really hard to do I know) and everytime you see them doing something good for their care really over praise for it (testing and taking injections) maybe a reward after a week of really good control of taking injections and testing. I think this would have helped me to form a positive realtionship to my care more quickly. When you tell somebody whos 12 they will end up at 30 with no feet or blind or in a coma if they don't do better, they will pay no attention as they can't feel any effects at the moment. It wasn't until I had decided to take control of my condition that everything went **** up. The next thing is having access to the best treatment having a good consultant and DSN that a teenager can relate to and respect. If the professionals don't care what you do why would you care at 12? Personally I'm on a pump and I think it's the bees knees with that I can eat what I want (within reason) cravings are definitely less for me nothing is forbidden, whenever something is forbidden you want it even more. restricting food and having locked cupboards is definitely not the way to go I too grew up with this and it just made me think my parents will never trust me. if a pump isn't possible personally I would allow sugary snacks as long as they took an extra injection or went for a run or some sort of excercise to burn off the sugar, the do something good get a reward approach. With a pump I don't need to inject and can bolus inside my pocket without anyone noticing, also makes you feel less like a special case when people stare at you in school or have to be dragged into a special room when you want to be chilling with your mates. Shouting, screaming, crying, telling a teenager their feet will fall off in my experience doesn't work the only thing that did for me was praise while they're still young enough to get into good habits and not end up like the poor ladys husband above. Lastly don't feel a failure, teenagers are only going to learn what they want to learn you just have to be there to pick up the pieces as all good parents do when things don't go the right way. I think you were both really brave to say you struggle with your teenagers behaviour, hopefully this helps a little if not then oh well. Laura [/QUOTE]
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