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<blockquote data-quote="Flowerpot" data-source="post: 647734" data-attributes="member: 47217"><p>Hi Earman</p><p></p><p>I understand how you are feeling with the utter frustration of managing life with serious complications.</p><p></p><p>I've had T1 for a similar number of years to yourself and have lived through losing my sight completely, I am exceedingly grateful to an amazing eye surgeon for restoring some central vision in my one eye. My bones have been degenerating in my feet over the past 15 years and at present my one leg has been in a plaster cast for 24 months due to a non healing fracture following an operation. It does become very difficult to cope with the massive impact complications have on all aspects of normal life. Dealing with the blood sugar part of it is small fry in comparison to the hideous all consuming problems complications bring.</p><p></p><p>How to cope? I deal with it all by being as philosophical as I can and occasionally having a serious rant at the kitchen wall, I do everything within my capabilities to keep tight glucose control and plod on taking the rest as it comes. Having experienced living with no sight for about 1 year I feel that I can pretty much manage with most other things that might come my way. What I find exasperating is the ongoing nature of problems, I have an HbA1c of 6.2% yet I cannot stop the express train of complications.</p><p></p><p>Control wise have you done all you can to get maximum benefit from your pump? Have you done a DAFNE or equivalent course to get your ratios and basal levels accurate? Can your pump team loan you a CGM to try to improve your control?</p><p></p><p>You can only do your best with the issues you have been dealt and try not to beat yourself up to much over things that may or may not have been avoidable. It is hard work to keep positive and not get worn down, I hope things improve for you and you have some better days to come. Good luck.</p></blockquote><p></p>
[QUOTE="Flowerpot, post: 647734, member: 47217"] Hi Earman I understand how you are feeling with the utter frustration of managing life with serious complications. I've had T1 for a similar number of years to yourself and have lived through losing my sight completely, I am exceedingly grateful to an amazing eye surgeon for restoring some central vision in my one eye. My bones have been degenerating in my feet over the past 15 years and at present my one leg has been in a plaster cast for 24 months due to a non healing fracture following an operation. It does become very difficult to cope with the massive impact complications have on all aspects of normal life. Dealing with the blood sugar part of it is small fry in comparison to the hideous all consuming problems complications bring. How to cope? I deal with it all by being as philosophical as I can and occasionally having a serious rant at the kitchen wall, I do everything within my capabilities to keep tight glucose control and plod on taking the rest as it comes. Having experienced living with no sight for about 1 year I feel that I can pretty much manage with most other things that might come my way. What I find exasperating is the ongoing nature of problems, I have an HbA1c of 6.2% yet I cannot stop the express train of complications. Control wise have you done all you can to get maximum benefit from your pump? Have you done a DAFNE or equivalent course to get your ratios and basal levels accurate? Can your pump team loan you a CGM to try to improve your control? You can only do your best with the issues you have been dealt and try not to beat yourself up to much over things that may or may not have been avoidable. It is hard work to keep positive and not get worn down, I hope things improve for you and you have some better days to come. Good luck. [/QUOTE]
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