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Diabetes following pancreatitis, Newbie looking for advice
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<blockquote data-quote="Honeyend" data-source="post: 2189447" data-attributes="member: 430576"><p>I have the same condition as you, I think because I was diagnosed/treated quickly my pancreas is not completely knackered, I was discharged on nasogastric feeds and insulin, but after having a pseudo cyst drained I am now eating real food and not using insulin but eating a LC and lower fat diet. I have not had my gall bladder out yet, that joy is to come.</p><p>I have a form of PTSD, although I function now pretty much normally day to day, and look well, there is that fear you will be that sick again, it happans so quickly, I was at work two days before and I just thought I had a tummy bug, I didn't even know I had gall stones.</p><p>My husband doesn't really get that I am diabetic, but has been the cook since I have been ill. I drip feed myself new information. I got very little support from the hospital, if I had cancer of the liver I would have ticked that box, and got more support. We are a small, but lucky, sub group that everyone seems to forget about.</p><p> Type 3C is a fairly new way of thinking of the cause of the diabetes, and what its means, your GP is unlikely to understand and certainly you need to see the right specialist. It is different from Type 1, beause it has other potential effects on the liver and metabolism. You may have to push but often they just do not want the responsibility of the descision, and a referal is easier.</p><p></p><p> There seems to be a fear in GP's that insulin is scary, that people will not cope. If you get the right funding, you should because you are 3C, you should get and pump and a Freestyle Libre funded, which will take a lot of the load off you.</p><p> I have an advantage over you that I have been LC for a while, but once you realise that there are lots of things you can eat it will be easier. I recomend Lovelife bread, from Waitrose because it normalises a meal, just stick ham, cheese, smoked salmon in it and anyone can make it. The eat out meal is the all day breakfast, don't eat the toast and until you get your BS lower leave off the hash brown or the baked beans.</p><p></p><p>Insulin balances out the carbohydrates and sugars that you eat, the GP may be happier with a higher BS because it's less scary to them than a hypo. I have discovered that they are reluctant to alter anything the hospital has prescribed, but really the HPB team are more insterested in the nuts and bolts of the pancreatitis and the surgery than long term managment. Until you seen a specilaist I would cut out the higher level carbs and test, and see how it goes.</p><p>This is a really good video about the amount of carbotydrate/sugar in foods, I know its talking about how to treat Type2, but Dr Unwin makes it so easy to understand. Start from about 6.00</p><p>[MEDIA=youtube]KxbWw5jwzHs[/MEDIA]</p><p></p><p>I was really lucky a neighbour who had the same problem over ten years ago drives past every day to see to his animals, feed and water them. When I was really sick and could just about get myself out of the chair, I was 20kg over loaded with fluid, he was my insperation. I can now get up stairs and push a wheel barrow, but it has taken me since July since I was first ill. Its been hard, some times frustrating, but with small steps we will get there. The diabetes thing is just another step.</p><p></p><p>PS .</p><p>Forgot to say that we have had a serious life theatening illness, and we have to cut ourselves a bit of slack.</p><p></p><p>I didn't eat meat for over 30 years, because I needed the protien, vits and everthing else that come with meat, and I could only eat very small amounts without throwing up I regressed to childhood food, bacon, corned beef, and chicken curry. I will probabely continue eating meat because I want to live well, and be well.</p><p> Sometimes you have to take a step back and think whilist this may not be my end goal, doing this will help me get there. So whilist ever what you are doing now may not be perfect, its not going to be perfect, but you will with effort make it perfect for you.</p><p></p><p>Edited by moderator, to remove a diagnosis.</p></blockquote><p></p>
[QUOTE="Honeyend, post: 2189447, member: 430576"] I have the same condition as you, I think because I was diagnosed/treated quickly my pancreas is not completely knackered, I was discharged on nasogastric feeds and insulin, but after having a pseudo cyst drained I am now eating real food and not using insulin but eating a LC and lower fat diet. I have not had my gall bladder out yet, that joy is to come. I have a form of PTSD, although I function now pretty much normally day to day, and look well, there is that fear you will be that sick again, it happans so quickly, I was at work two days before and I just thought I had a tummy bug, I didn't even know I had gall stones. My husband doesn't really get that I am diabetic, but has been the cook since I have been ill. I drip feed myself new information. I got very little support from the hospital, if I had cancer of the liver I would have ticked that box, and got more support. We are a small, but lucky, sub group that everyone seems to forget about. Type 3C is a fairly new way of thinking of the cause of the diabetes, and what its means, your GP is unlikely to understand and certainly you need to see the right specialist. It is different from Type 1, beause it has other potential effects on the liver and metabolism. You may have to push but often they just do not want the responsibility of the descision, and a referal is easier. There seems to be a fear in GP's that insulin is scary, that people will not cope. If you get the right funding, you should because you are 3C, you should get and pump and a Freestyle Libre funded, which will take a lot of the load off you. I have an advantage over you that I have been LC for a while, but once you realise that there are lots of things you can eat it will be easier. I recomend Lovelife bread, from Waitrose because it normalises a meal, just stick ham, cheese, smoked salmon in it and anyone can make it. The eat out meal is the all day breakfast, don't eat the toast and until you get your BS lower leave off the hash brown or the baked beans. Insulin balances out the carbohydrates and sugars that you eat, the GP may be happier with a higher BS because it's less scary to them than a hypo. I have discovered that they are reluctant to alter anything the hospital has prescribed, but really the HPB team are more insterested in the nuts and bolts of the pancreatitis and the surgery than long term managment. Until you seen a specilaist I would cut out the higher level carbs and test, and see how it goes. This is a really good video about the amount of carbotydrate/sugar in foods, I know its talking about how to treat Type2, but Dr Unwin makes it so easy to understand. Start from about 6.00 [MEDIA=youtube]KxbWw5jwzHs[/MEDIA] I was really lucky a neighbour who had the same problem over ten years ago drives past every day to see to his animals, feed and water them. When I was really sick and could just about get myself out of the chair, I was 20kg over loaded with fluid, he was my insperation. I can now get up stairs and push a wheel barrow, but it has taken me since July since I was first ill. Its been hard, some times frustrating, but with small steps we will get there. The diabetes thing is just another step. PS . Forgot to say that we have had a serious life theatening illness, and we have to cut ourselves a bit of slack. I didn't eat meat for over 30 years, because I needed the protien, vits and everthing else that come with meat, and I could only eat very small amounts without throwing up I regressed to childhood food, bacon, corned beef, and chicken curry. I will probabely continue eating meat because I want to live well, and be well. Sometimes you have to take a step back and think whilist this may not be my end goal, doing this will help me get there. So whilist ever what you are doing now may not be perfect, its not going to be perfect, but you will with effort make it perfect for you. Edited by moderator, to remove a diagnosis. [/QUOTE]
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