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Diabetes Insipidus. A decsription.
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<blockquote data-quote="ChocFish" data-source="post: 18665" data-attributes="member: 981"><p>Hi Ragnar</p><p></p><p>I am horrified to hear you say that your nephews are being refused drink and not allowed to go to the toilet, and doctors just not bothering any more.</p><p></p><p>If I were you I would search the internet, english and american websites and just everywhere, there must be somewhere, someone out there who can help, maybe not cure but at least ease and control the symptoms to give you a better quality of life? Did you check out the links I posted earlier, there is some research going on.</p><p>I think you should start kicking up a fuss where doctors are concerned, I know in Germany many doctors are still of the old school 'I am the doctor, I have the knowledge and you are the patient', I almost lost my life because of that attitude, I lived at the time in Passau and consulted my GP as I felt a lump in my throat, I saw him on 3 separate occasions over 8 months and each time I was told 'its just nerves, you have only recently been bereaved, every nervous person has a lump in their throat' - I then moved across the border to Linz, consulted with a doctor there, I felt this lump worse than ever, I was told its just a swollen gland, have I had a cold recently, or something, I gave up as by then I was convinced that this lump may really just be in my mind, these quacks looked down my throat and couldnt see anything, felt my neck and hardly felt anything, so it must be right, huh?</p><p>Things got so bad that eventually I wasnt able to hold my head upright when swallowing, I wasnt able to eat solid food anyway, I was told I am paranoid and a hypochondriac and all sorts, its all in my mind, I was referred to a psychologist, this is where I met my second husband actually, he brought me over to the UK with him, I registered with a GP, in Yorkshire, I mentioned the problem with my neck, within a week I saw a specialist and another week and I had an operation, the lump had grown inside, pressing on my windpipe and gullet, it turned out that my "nervous lump" was thyroid cancer, my uncle is a lawyer, the doctors in Germany and Austria settled out of court...the Austrian doctor was banned from practising as he was involved in a similar incident before.</p><p></p><p>Just dont put up with any doctors supercilious attitude; if the UK doesnt release your medical notes, have you put your request in writing, go higher, write to some chief executive or whatever, but really the doctors in Berlin can do their own tests, they dont need the notes from the UK, surely? It sounds to me like they are dismissive and lazy, oh well you have had this condition for such a long time, why bother now?! It's just not good enough.</p><p></p><p>Gosh I wish I could somehow help you.</p><p></p><p>Karen</p></blockquote><p></p>
[QUOTE="ChocFish, post: 18665, member: 981"] Hi Ragnar I am horrified to hear you say that your nephews are being refused drink and not allowed to go to the toilet, and doctors just not bothering any more. If I were you I would search the internet, english and american websites and just everywhere, there must be somewhere, someone out there who can help, maybe not cure but at least ease and control the symptoms to give you a better quality of life? Did you check out the links I posted earlier, there is some research going on. I think you should start kicking up a fuss where doctors are concerned, I know in Germany many doctors are still of the old school 'I am the doctor, I have the knowledge and you are the patient', I almost lost my life because of that attitude, I lived at the time in Passau and consulted my GP as I felt a lump in my throat, I saw him on 3 separate occasions over 8 months and each time I was told 'its just nerves, you have only recently been bereaved, every nervous person has a lump in their throat' - I then moved across the border to Linz, consulted with a doctor there, I felt this lump worse than ever, I was told its just a swollen gland, have I had a cold recently, or something, I gave up as by then I was convinced that this lump may really just be in my mind, these quacks looked down my throat and couldnt see anything, felt my neck and hardly felt anything, so it must be right, huh? Things got so bad that eventually I wasnt able to hold my head upright when swallowing, I wasnt able to eat solid food anyway, I was told I am paranoid and a hypochondriac and all sorts, its all in my mind, I was referred to a psychologist, this is where I met my second husband actually, he brought me over to the UK with him, I registered with a GP, in Yorkshire, I mentioned the problem with my neck, within a week I saw a specialist and another week and I had an operation, the lump had grown inside, pressing on my windpipe and gullet, it turned out that my "nervous lump" was thyroid cancer, my uncle is a lawyer, the doctors in Germany and Austria settled out of court...the Austrian doctor was banned from practising as he was involved in a similar incident before. Just dont put up with any doctors supercilious attitude; if the UK doesnt release your medical notes, have you put your request in writing, go higher, write to some chief executive or whatever, but really the doctors in Berlin can do their own tests, they dont need the notes from the UK, surely? It sounds to me like they are dismissive and lazy, oh well you have had this condition for such a long time, why bother now?! It's just not good enough. Gosh I wish I could somehow help you. Karen [/QUOTE]
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