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<blockquote data-quote="NicoleC1971" data-source="post: 2260815" data-attributes="member: 365308"><p>Hi and firstly I understand your fear of retinopathy as it is a cause of blindness/sight loss.</p><p>I had had type 1 for 20 years with up and down control in my teens and 20s, before I had some background changes in my blood vessels. These were treated with a laser which was uncomfortable and a nuisance (I could not drive for a few hours after each treatment). Bottom line is that when I was pregnant and in the chaos of having a premie newborn, my retinopathy ran amok and the laser treatments did not prevent haemorrages in both eyes resulting in almost total blindness.</p><p>It was very scary as I had a 1 year old child, could not drive and had people sending me leaflets on getting a guide dog!</p><p>I went on to have a vitrectomy in both eyes to 'seal off' the bleeding vessels and recovered in a prone position for 6 weeks with a gas bubble to keep the eye stable. This was not easy but the surgeries were very successful and my sight has been stable for the last 16 years. My sight is damaged but I can use my phone and drive a bike if not a car. I struggle with certain font sizes but most people are surprised to hear that I have a visual impairment.</p><p>I think I was pretty unlucky as I understand that for most people retinoptathy develops slowly hence going to your annual checks is important and also that usually treatment by laser works.</p><p>I hope you have the tools such as fsl to help you get great 'time in range' results; as we all know a good hba1c can mask swings in blood sugars and its this variability which is damaging to our micro vessels in our kidneys and eyes!</p></blockquote><p></p>
[QUOTE="NicoleC1971, post: 2260815, member: 365308"] Hi and firstly I understand your fear of retinopathy as it is a cause of blindness/sight loss. I had had type 1 for 20 years with up and down control in my teens and 20s, before I had some background changes in my blood vessels. These were treated with a laser which was uncomfortable and a nuisance (I could not drive for a few hours after each treatment). Bottom line is that when I was pregnant and in the chaos of having a premie newborn, my retinopathy ran amok and the laser treatments did not prevent haemorrages in both eyes resulting in almost total blindness. It was very scary as I had a 1 year old child, could not drive and had people sending me leaflets on getting a guide dog! I went on to have a vitrectomy in both eyes to 'seal off' the bleeding vessels and recovered in a prone position for 6 weeks with a gas bubble to keep the eye stable. This was not easy but the surgeries were very successful and my sight has been stable for the last 16 years. My sight is damaged but I can use my phone and drive a bike if not a car. I struggle with certain font sizes but most people are surprised to hear that I have a visual impairment. I think I was pretty unlucky as I understand that for most people retinoptathy develops slowly hence going to your annual checks is important and also that usually treatment by laser works. I hope you have the tools such as fsl to help you get great 'time in range' results; as we all know a good hba1c can mask swings in blood sugars and its this variability which is damaging to our micro vessels in our kidneys and eyes! [/QUOTE]
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