donnellysdogs
Master
- Messages
- 13,231
- Location
- Northampton
- Type of diabetes
- Type 1
- Treatment type
- Pump
- Dislikes
- People that can't listen to other people's opinions.
People that can't say sorry.
Hi All
Can I ask that us diabetics especially younger ones.. People wanting changes with NHS and CCG ie people wanting pumps, people not getting test strips consider getting involved with their hospitals and CCGs.
Our CCG encourages meetings with patients and engagement with them and all CCGs are doing this.
The reason I ask is because I went to a meeting tonight regarding diabetics/dietetics/nutrition which was for patients in our County to attend and hive their views.
At 51 years old I was the youngest patient there.. So no hope for youngsters although I did try to help with my opinions from people that I am aware of....
There was more NHS staff than patients at this meeting. Only 7 patients from the whole of the county. The oldest person had been type 1 for 62 and out his good living and good health down to rationing and weighing all his food for 62 years since diagnosis.
The CCG were wanting to know patients views.. But some older persons still have their GPs down as Gods and so weren't forthcoming with any ideas.
There were 2 reprsentatives over 65 from diabetes uk....a GP still with views that type 2's can get away without test strips unless on hypo drugs. I asked that they consider allowing patients that want bloodstrips to self manage to be given the empowerment tools that they need..
Please can I ask that you look at your CCG websites or GP websites for Patient Engagement or Patient Participation Groups?
It was startling to me that the only patients attending these meetings are over 65 beside me. How can youngsters, get pumps or 40 year old pre diabetics etc get things changed within their CCGs without involvement??
Can I ask that us diabetics especially younger ones.. People wanting changes with NHS and CCG ie people wanting pumps, people not getting test strips consider getting involved with their hospitals and CCGs.
Our CCG encourages meetings with patients and engagement with them and all CCGs are doing this.
The reason I ask is because I went to a meeting tonight regarding diabetics/dietetics/nutrition which was for patients in our County to attend and hive their views.
At 51 years old I was the youngest patient there.. So no hope for youngsters although I did try to help with my opinions from people that I am aware of....
There was more NHS staff than patients at this meeting. Only 7 patients from the whole of the county. The oldest person had been type 1 for 62 and out his good living and good health down to rationing and weighing all his food for 62 years since diagnosis.
The CCG were wanting to know patients views.. But some older persons still have their GPs down as Gods and so weren't forthcoming with any ideas.
There were 2 reprsentatives over 65 from diabetes uk....a GP still with views that type 2's can get away without test strips unless on hypo drugs. I asked that they consider allowing patients that want bloodstrips to self manage to be given the empowerment tools that they need..
Please can I ask that you look at your CCG websites or GP websites for Patient Engagement or Patient Participation Groups?
It was startling to me that the only patients attending these meetings are over 65 beside me. How can youngsters, get pumps or 40 year old pre diabetics etc get things changed within their CCGs without involvement??