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Message: <blockquote data-quote="pleinster" data-source="post: 1125286" data-attributes="member: 221545">Hi. There is no doubt in my mind at all, from years and years of experience (as I was diagnosed with polycystic kidneys at 17 year old as a result of an inherited condition), that while there are some excellent GPS - their knowledge compared to that of renal specialists is less convincing by some distance..but..it's great to have one so concerned and cautious. I can completely relate to your partner's situation. The kidney I received was from my sister, and I was told it was as pumping away as they attached it..a brilliant match. You say he is on 2 Tacrolimus a day but what is the dosage? It will be Prograf. So you know...the body has a tacrolimus level, and the doctors will want his to be in a certain range..so they prescribe so many mgs to achieve that. they can and will change that amount depending on the level's consistency. I take it and my MMF twice a day, and it's been changed a wee bit here and there as my levels have gone slightly up or down. Tacro fights rejection...too low and it isn't fighting enough..too high and the body's immune system is to open to bugs - so they check it at all his clinics in blood tests and will alter it to keep it just right. This drug and this specific kind of treatment is relatively recent and wasn't around years ago..hence the improvement in post-transplant success. It used to be the case (as with my mother) that they just prescribed steroids and hoped these were enough. Now, we are also given the steroid - prenisolone - as well BUT that can and does often cause new onset diabetes which can and often does lead to Type 2. My advice is ask about reducing the steroid..as I have done with complete support from my doctors...because it will push the blood sugar up. If your partner is self testing with a meter, he'll probably notice a spike in blood sugar a couple of hours after the takes the prednisolone. Mine is now a low dose and this has really made a difference..which helps control through low carb diet...and make sit all more achievable. note - ask your doctors about your husband having access to an online service called Patient View (if its UK)as its easy to use and lets you see all test results and patterns over time. Hopefully, with less of the steroid, plenty of fluid intake and NO simple carbs (ie. those with over 10g carbohydrate per 100g of product), his blood sugar can be handled. i am no longer even on meds for diabetes. Good luck.         Paul</blockquote>

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