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<blockquote data-quote="Magisham" data-source="post: 1125695" data-attributes="member: 94221"><p>Thanks again. It is so good to talk to someone who understands what we have been going through. I can't remember his tacrolimus dose, but he has a blood test every 3 months and they said his levels are good. Just before his transplant they put him on 14 a day and he was so I'll I thought he was dying! We told 3 different people at the clinic and they all just said "He'll get used to it". Then, later in the day when they got the blood test results back, they rand up and said " Get him off the tacrolimus, his levels are far too high!!!" So now it's one in the morning and one at night. I will ask about the steroid when we next go. Don't have transplant clinic until July now. Disappointed this morning as we just had eggs at lunch time yesterday and grilled chicken with salad last night and his blood was 10 first thing. I wonder sometimes if he goes for too long without food. Or if he ate too much chicken as I know protein can put it up. It's frustrating. Don't know if it's morning liver dump. Will try it again in a while, 2 hours after eating.</p></blockquote><p></p>
[QUOTE="Magisham, post: 1125695, member: 94221"] Thanks again. It is so good to talk to someone who understands what we have been going through. I can't remember his tacrolimus dose, but he has a blood test every 3 months and they said his levels are good. Just before his transplant they put him on 14 a day and he was so I'll I thought he was dying! We told 3 different people at the clinic and they all just said "He'll get used to it". Then, later in the day when they got the blood test results back, they rand up and said " Get him off the tacrolimus, his levels are far too high!!!" So now it's one in the morning and one at night. I will ask about the steroid when we next go. Don't have transplant clinic until July now. Disappointed this morning as we just had eggs at lunch time yesterday and grilled chicken with salad last night and his blood was 10 first thing. I wonder sometimes if he goes for too long without food. Or if he ate too much chicken as I know protein can put it up. It's frustrating. Don't know if it's morning liver dump. Will try it again in a while, 2 hours after eating. [/QUOTE]
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