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Diabetic Macular Oedema

Steve480

Steve480

Member
Messages
9
Type of diabetes
Treatment type
Tablets (oral)
I am getting an injection in my eye on the 20th using Eylea,has anyone had this and does it help
 
Steve480 said:
I am getting an injection in my eye on the 20th using Eylea,has anyone had this and does it help
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I steve, no had it personally,but our son in law has over a period of 2 yrs and its worked for him, his eye is now 20/20 ::))
 
Hi steve480
i have had 3 injections ( 1 avastin and 2 lucentis )
in my particular case they did not help and they are not pleasant --

i have however recently started on a non invasive treatment that is showing early promise -- link below
it is not funded by the NHS yet -- it is still going through NICE clinical trials
i know it says for retinopathy but i have a small macular edema bulge near my central vision and this mask appears to be working for me.

http://noctura.com/
 
I've had around 15 Lucentis jabs. My left eye responded after around 6 and is as good as is was before.

My right eye has a small cyst of fluid on the retina which has gone down but is being a bit more stubborn so taking time.

The injection isn't something I'd like everyday but it is far from terrible, the build up and discomfort in the prep is the worse bit, in comparison the actual injection is pretty quick and often happens without noticing. They use plenty of numbing drops, I find it difficult to blink for a few hours after and get very blurry vision - more so than just with the drops used for the retinal scan. I have walked a couple of miles back to York station from the hospital without bumping into things or getting run over. You may want to take someone as a guide if you're getting both eyes done.

Afterwards I've had the ocassional bit of discomfort, grain of sand under the eyelid feeling and sometimes the eye feels tender or bruised. This goes off after a day or so. Sometimes there are black blobs\bubbles that float around and reduce over a day or so. Twice I've had the needle catch a blood vessel so had a red eye for a week or so.

Otherwise it's all got a little bit routine now.
 
Allan93 said:
I've had around 15 Lucentis jabs. My left eye responded after around 6 and is as good as is was before.

My right eye has a small cyst of fluid on the retina which has gone down but is being a bit more stubborn so taking time.

The injection isn't something I'd like everyday but it is far from terrible, the build up and discomfort in the prep is the worse bit, in comparison the actual injection is pretty quick and often happens without noticing. They use plenty of numbing drops, I find it difficult to blink for a few hours after and get very blurry vision - more so than just with the drops used for the retinal scan. I have walked a couple of miles back to York station from the hospital without bumping into things or getting run over. You may want to take someone as a guide if you're getting both eyes done.

Afterwards I've had the ocassional bit of discomfort, grain of sand under the eyelid feeling and sometimes the eye feels tender or bruised. This goes off after a day or so. Sometimes there are black blobs\bubbles that float around and reduce over a day or so. Twice I've had the needle catch a blood vessel so had a red eye for a week or so.

Otherwise it's all got a little bit routine now.
Click to expand...

Allan93 said:
I've had around 15 Lucentis jabs. My left eye responded after around 6 and is as good as is was before.

My right eye has a small cyst of fluid on the retina which has gone down but is being a bit more stubborn so taking time.

The injection isn't something I'd like everyday but it is far from terrible, the build up and discomfort in the prep is the worse bit, in comparison the actual injection is pretty quick and often happens without noticing. They use plenty of numbing drops, I find it difficult to blink for a few hours after and get very blurry vision - more so than just with the drops used for the retinal scan. I have walked a couple of miles back to York station from the hospital without bumping into things or getting run over. You may want to take someone as a guide if you're getting both eyes done.

Afterwards I've had the ocassional bit of discomfort, grain of sand under the eyelid feeling and sometimes the eye feels tender or bruised. This goes off after a day or so. Sometimes there are black blobs\bubbles that float around and reduce over a day or so. Twice I've had the needle catch a blood vessel so had a red eye for a week or so.

Otherwise it's all got a little bit routine now.
Click to expand...
Allan93 said:
I've had around 15 Lucentis jabs. My left eye responded after around 6 and is as good as is was before.

My right eye has a small cyst of fluid on the retina which has gone down but is being a bit more stubborn so taking time.

The injection isn't something I'd like everyday but it is far from terrible, the build up and discomfort in the prep is the worse bit, in comparison the actual injection is pretty quick and often happens without noticing. They use plenty of numbing drops, I find it difficult to blink for a few hours after and get very blurry vision - more so than just with the drops used for the retinal scan. I have walked a couple of miles back to York station from the hospital without bumping into things or getting run over. You may want to take someone as a guide if you're getting both eyes done.

Afterwards I've had the ocassional bit of discomfort, grain of sand under the eyelid feeling and sometimes the eye feels tender or bruised. This goes off after a day or so. Sometimes there are black blobs\bubbles that float around and reduce over a day or so. Twice I've had the needle catch a blood vessel so had a red eye for a week or so.

Otherwise it's all got a little bit routine now.
Click to expand...


Hi Allan93
Thanks very much for your detailed message,I'm just getting one eye done at monthly intervals starting with the left
 
Are you going to 'awake' as injections and eyes, bring me out in a sweat, I have had an eye operation 18 months ago, but was put out. :nailbiting:

I wish you all the best and good luck too.

RRB :)
 
It probably depends on hospital but the quickest I've been in and out is an hour, longest was about 4 hours as we had to wait for some of the rooms having an emergency clean up (They're pretty hot on the clean routines as eye infections can be nasty). Mostly it's around 2 hours.

Get there, eye test and health checks, then retinal scan, discussion and checks with consultant and then the injection.

I used to be really squeamish about eyes and hate needles, I have to look away on the quarterly blood samples. The Lucentis injections have been easier than the blood tests :)
 
Allan93 said:
It probably depends on hospital but the quickest I've been in and out is an hour, longest was about 4 hours as we had to wait for some of the rooms having an emergency clean up (They're pretty hot on the clean routines as eye infections can be nasty). Mostly it's around 2 hours.

Get there, eye test and health checks, then retinal scan, discussion and checks with consultant and then the injection.

I used to be really squeamish about eyes and hate needles, I have to look away on the quarterly blood samples. The Lucentis injections have been easier than the blood tests :)
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Thanks Allan93,I've played rugby for 20 years and have had some bad knocks at times but a needle in the eye will be a new one for me,but will just grin and bear it.
 
I had over 30 Lucentis injections hence my user name. It's virtually painless in fact the worse part is the eye drop before hand which stings for about 20 seconds. The main anesthetic jab is hardly noticeable as a result and the main jab painless.

Overall it's about on a par with having a tooth filled, the fear is far greater than the reality.

Good luck with your treatment.
 
Macular1 said:
I had over 30 Lucentis injections hence my user name. It's virtually painless in fact the worse part is the eye drop before hand which stings for about 20 seconds. The main anesthetic jab is hardly noticeable as a result and the main jab painless.

Overall it's about on a par with having a tooth filled, the fear is far greater than the reality.

Good luck with your treatment.
Click to expand...
Thanks very much.
 
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