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Diabetic maculopathy

torheedamy

Member
Messages
22
Type of diabetes
Type 1
Treatment type
Insulin
I have recently had my yearly eye sceening, today I recieved the results and it shows that I have signs of Diabetic maculopathy. I have to go for further testing in 3 months times, im worried of what the further testing will show if anything and what it will mean for me.
Has anyone else experience this?
Any advice or information will greatly be appreciated.
I have read information about this but would like to know about other experience with this.
Also does the further testing happen at the opticians or is it at hospital, don't really have much information about what next apart that I will recieve a letter nearer the time, so I 3 months to worry about this. :(:confused::nailbiting::yuck:
 
Hi torheedamy

I also had the same thing, a regular screening highlighting an issue. I was then given an appointment at the local eye hospital where they carried out further tests. Initially they carried out the same type of test as you get at the optician except they injected a dye into my arm to highlight the vessels within the eye. The second type of test is a scan of the landscape of the eye, this is the one more pointing toward the maculopathy. When you have the test you see a red horizontal line which travel from top to bottom. This then allows the clinician a 'map' for the wont of a better word of the retina showing up the bumps and lumps (if any).

So far I have had a little micro pulse laser treatment which burns the retina. The thought of this procedure terrified me for at least two years and when finally they did it I walked away thinking was that it? I was expecting a big humming machine, pain and my very own episode of star wars. I never saw or felt anything. My eyesight however improved after.

Now I attend the clinic every three months as I have one slight bump in an area they are reluctant to laser as it is within my field of vision so they are 'monitoring it'. This has now been monitored for the last three year and so far seems stable if arguably a little better (their words not mine). If it gets worse there is the possibility of injections but that may or may not be in the future.

My eye issues have truly terrified me in the early days but take heart that they can now do something now that it has been found. The fact that the powers that be have not whisked you into a clinic but told you there will be another check in three months. These three months appear to be the standard cycle of checks.

You will hear this many times but the key points now is to control your sugars, cholesterol, and blood pressure as over everything these are the key factors to recovery and control of eye issues. A WARNING! if your sugars are on the uncontrolled side DO NOT drop them as quickly as you can as there is empirical evidence that this can adversely affect some eye conditions. Slow steady and controlled is important.

I hope this is of help, I appreciate what worry you may have at the moment.
 
Hi torheedamy

I also had the same thing, a regular screening highlighting an issue. I was then given an appointment at the local eye hospital where they carried out further tests. Initially they carried out the same type of test as you get at the optician except they injected a dye into my arm to highlight the vessels within the eye. The second type of test is a scan of the landscape of the eye, this is the one more pointing toward the maculopathy. When you have the test you see a red horizontal line which travel from top to bottom. This then allows the clinician a 'map' for the wont of a better word of the retina showing up the bumps and lumps (if any).

So far I have had a little micro pulse laser treatment which burns the retina. The thought of this procedure terrified me for at least two years and when finally they did it I walked away thinking was that it? I was expecting a big humming machine, pain and my very own episode of star wars. I never saw or felt anything. My eyesight however improved after.

Now I attend the clinic every three months as I have one slight bump in an area they are reluctant to laser as it is within my field of vision so they are 'monitoring it'. This has now been monitored for the last three year and so far seems stable if arguably a little better (their words not mine). If it gets worse there is the possibility of injections but that may or may not be in the future.

My eye issues have truly terrified me in the early days but take heart that they can now do something now that it has been found. The fact that the powers that be have not whisked you into a clinic but told you there will be another check in three months. These three months appear to be the standard cycle of checks.

You will hear this many times but the key points now is to control your sugars, cholesterol, and blood pressure as over everything these are the key factors to recovery and control of eye issues. A WARNING! if your sugars are on the uncontrolled side DO NOT drop them as quickly as you can as there is empirical evidence that this can adversely affect some eye conditions. Slow steady and controlled is important.

I hope this is of help, I appreciate what worry you may have at the moment.

Thank you for this, it has help I now know what i could expect to happen when i go to the eye hospital. Dam my eyes thought i had got away from that place, from having to be there on a regular basis for a different eye problem when i was younger
 
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