diabetic nurse

Hi carlos. Your bm's seem to be very high for just an omelette or salad as a meal , both of which are low in carbs. Have you had a C-peptide or GAD test done. It would make sense for you to push your doctor for a quicker appointment. With the problems you are having with just light meals, two months is too long to waite to be seen.
Best of luck

Carlos, insist on an earlier appointment, ask about what other hospitals your PCT has contracts with and ask to go to one of those.

You are not obliged to go to the hospital that is suggested, you have choice.

If you still have no luck then phone your PCT and ask them to refer you for an earlier appointment, I really think your BGs warrant
early intervention, and to wait 2 monyjs is unacceptable.

H

Hey carlos, hello all. I found the fact that they were saying weeks etc extremely frustrating. The fact that you have been told 4 weeks is disgusting, I did find that I had to push my health center to get things done earlier you must tell them that the wait is unacceptable it is your health that is being hurt not theirs. As for them saying that you have to wait for that appointment at hospital to get insulin is false, request an HBA1c test and 2 days after they have done that start phoning them to get the results that was what I did. When they got my results I insisted on going to my health center and getting my results in person, if your readings are as high in the test you can instist on starting treatment before you go to your hospital appointment, above all carlos dont give up fighting the system.

Why oh why do we now have to fight to get what is a basic right in this nation.

All the best

Simon aka Cobra3164

Hi. I can understand why your DN may have put you onto Sitagliptin as it is good at reducing spikes, but from what you say there are suspicions of late onset T1 hence the suggestion you might ask for c-peptide and GAD tests. I guess 4 weeks is worth a try, but if you observe your sugars going even higher and you feel unwell then be prepared to talk to your surgery or the hospital more urgently.

Well done Carlos, a good result, it is amazing (and annoying) how quickly things can happen if you "fight you corner",

We shouln't have to do it but sometimes it is the only way.

I have no knowledge of insulin so wait for a knowledgeable amswer.

H

Carlos37,
Don't worry about starting insulin, you will be fine.
I was like you a 'type 2' with rising levels that wouldn't come down despite max doses of all medication.
I went to see the consultant with an HbA1c of 86 and rising day by day and keytones of +4. She said if I didn't go on insulin there and then she would expect me to be admitted as an emergency within the next 10 days before my GAD antibodies test results would be back.....needless to say I agreed. (I am a coach driver so am now having a 5 month sabbatical whilst I prove to DVLA that I am safe).

I had my first injection whilst at the hospital and my second with my evening meal and by then I felt so much better, by the time I took my Lantus (Basal) in the evening and went to bed I was so awake and alert again it took me ages to get to sleep :lol:

Should have gone on it months ago. By the way the GAD test proved positive so I am really a Type 1.

Don't worry, it's a lot to deal with but after learning what carbs do to you as a 'type 2' you will find the carb counting side easier than just being diagnosed overnight.
Best wishes
Angie

carlos37 said:

yethanks know it sounds silly but do feel slightly better knowing that at least it might come down at last pratically eating nowt at mo also i also have a coach liscence i dont use it at moment for my job i thought once you was on insulin you lost it for good

Click to expand...

Up until October last year you did lose a PSV / PCV or HGV / LGV licence for good when going onto insulin, but they changed the law to come into line with the EU rules (something good for once).
Now you have to notify DVLA straight away and stop driving group 2 vehicles (buses & lorries). You then apply to get it re-instated and once you have 3 months worth of data on your tester the hospital Consultant downloads it and fills in a medical form. The hospital gave me an Accucheck Mobile as this keeps 90 days of data and they can download that one there. I started on insulin on 7th August this year so have not driven PSV's since. Originally I had an appointment on 4th December but about a week beforehand they wrote and said it had been re-scheduled for 8th January....so another month not working! Just hope my figures are good when I finally get there (shouldn't have too many hypos over Christmas with all the food about :lol: )

Hope all goes well.
Angie

Hey Carlos,

I don't blame you for being unhappy with the treatment you recieved, and I am genuinly shocked and disgusted when I read about your experience. I mean to have to live with the ketones for such a long time with T1, you must have felt so ill and it's really bad that professionals have dragged their feet over your care, I too have had some very bad experiences with GPs.

On a brighter note, when you start on insulin you will start to feel better, you'll have more energy and with good blood glucose control life should get better.